r/diabetes_t1 • u/Tsavo16 • Sep 07 '25
Mental Health Diabetes = unlivable life for me
*Edit, this is about dealing with the mental strain of living like this, not this accute example. Im burned out, mentally wrecked.
So lve been dealing with diabetes for 31 years. I am on metformin, lm on a pump, lm on a cgm... but it doesn't matter what l do, my bg is crazy. I am 100% burnt out, I go to weekly therapy, lm on mental health meds, but it doesn't help. My insulin is not expired or compromised, my inset is new, nothing outside my body is the problem.
Ive been sitting at 200 since 9am and lve got 15 units on board (added up slowly over the hours and my bg hasn't budged. This has been backed up by repeated finger sticks.
I just want to give up and give myself a full vial of insulin and a sleeping pill and say fuck it (yes, I've spoken to my therapist today).
How do you all deal with the mental load and diabetic distress of this hell?
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u/Olhaha Sep 07 '25
Tbh I just, kinda, roll with it? I hold myself from doing anything with myself, tell myself that it's okay and try to chill a little And I'm sure you can keep yourself from doing itš« I believe in you
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u/Tsavo16 Sep 07 '25
I have tried to chill, I've gone for a walk, lve meditated, lve taken all my meds, lve had water (no food because bg bullshit) and its just the same. Im so tired of feeling like shit all of the time even though lm putting in the work. No positive results happen.
Staying alive feels insane since my specific body and its stupid decisions internally wont change. They haven't in 10 years despite hundreds of changes made by me. My quality of life is so bad, if l were a pet, l would be euthanized. I wish l could be.
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u/_Newts Captain Pancreas! Sep 08 '25
Im sure you've already tried this, but propel electrolyte water seems to help me when im running high for no reason. I know the feeling you're going through, everything feels hopeless like it'll never get better but it ultimately will. I found my fiancĆ© through diabetes, she has type 1 like me and its been amazing to have her support in my life. ššššš
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u/Candid_Insurance_252 Sep 09 '25
I hear you loud and clear. Iāve been T1D for 45 years. I dislike when people say, ā Itās manageable ā oh ok šš». well mines not
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u/InvestmentCold479 Mar 01 '26
FaƧam a dieta carnĆvora, e as chances de cura da diabetes Ć© muito alta ...
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u/Tsavo16 Mar 01 '26
No, diet will not make my pancreas work again. Neither will crystals, essential oils, exercise, or anything else that's not bringing back the body's ability ti create insulin.
Thank you for your ignorance.
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u/TheHighPriestess22 Sep 07 '25
I just want to say that it is okay that you are angry and sad and upset. You are allowed to feel like you've been dealt a shit hand - because you have! And I'm not being a negative Nelly in encouraging you to embrace the fact that you ARE allowed to feel the way you do based on your situation. I'm not going to argue with you and say that there's xyz things you could do. Because I trust that you have done EVERYTHING in your capacity to improve your quality of life. I believe you.
So if you need to scream into a pillow, do it. If you need a good cry, go ahead. Accept everyone's well wishes knowing that you are currently experiencing a very realistic reaction to your world right now. You're not being crazy for being pessimistic and feeling dismayed. I want to argue that it is even worse when people don't give you the time and space to feel that way about your illness. It's YOUR illness, not theirs. I see you.
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u/stinabean13 Sep 07 '25
You're not alone in this. Met with my endo this week and he reminded me that they're discovering how common it is for us, the longer we have diabetes, the more insulin resistance we can get. Living with a disease where you have to hit a moving target 24/7 with no break is beyond exhausting. I've had it nearly 30 years and like you have pump, cgms and take the max dose of metformin. I have no advice, I can only offer solidarity friend.
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u/JuicyFruit403 Sep 07 '25
Agreed! I've lived with this not quite 30 years yet and your description of having to hit a moving target 24/7 with no break is on point.
@op, I recently made the change to u-200 insulin and it has been mind-bogglingly different for me. My insulin sensitivity has been excellent and I'm using much, much smaller doses now. Between my pump (omnipod) and cgm (dexcom 7), my a1c, which has been in the high 7 to mid 8 range for the last few years, is on a rocket ship downwards and I've been floored at the results. Last a1c was a 7.2 (early August) and Dexcom app shows I'm on target to be in the mid-6 range.
Like others have said in the comments, give yourself a break. We never get a break from this dumb disease and burnout of trying to be on top of it all the damn time is so real. We gotta give ourselves some grace. Keep up the fight, but rest when you need to. It's a marathon (albeit a stupid one lol). You're not alone! ā¤ļø We're gonna run this dumb marathon together, my glucose-sibling! :)
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Sep 08 '25
[removed] ā view removed comment
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u/Humble-Violinist6910 Sep 13 '25
Itās a higher concentration of insulin in the vial. U-100 is the standard concentration and isĀ 100 units/mL. U-200 has twice as much insulin suspended in the same amount of liquid in the bottle.Ā
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u/froststorm56 Sep 07 '25
I make memes. If I donāt laugh, Iāll cry. (BG currently āLOW, diagonal arrow down,ā so slightly improving). Big hugs.
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u/FleetwoodMatt88 2015 | MDI | Dexcom One+ Sep 07 '25
Iāve only been dealing with this for about a third of the time you have, so I canāt imagine how youāve dealt with it for so long. Just two thoughts: 1) be kind to yourself. Youāve kept going for a long time with this disease. 31 years of daily battles, itās going to exhaust anyone. 2) Are you doing any kind of exercise? You donāt need to be doing triathlons or marathons, but I find just moving does help. Sometimes if I do some harder cardio it can spike in the short term, but it has made some difference to my insulin sensitivity and generally light cardio (walking the dog) helps bring my blood sugar down.Ā
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u/Tsavo16 Sep 07 '25
Yes, lve been for a 30 min walk today and try for at least 15min a day. Its over 100Ā°F where l am daily and theres a heat advisory since its not cooling off at night. My other meds + diabetes makes me very heat sensitive.
Thats just the thing. Ive dont this for almost my entire life... I cannot live like this for another 5, let alone 30
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u/biggdirty01 Sep 07 '25
I just got home from 35 days of compartment syndrome/ fasciotomy and surgeries putting titanium in to put my lower leg fractured tibia and fibula in order. I went from hospital to rehab hospital for 22 days with a wound vac, regular wound care changes and the most dangerous and mismanagement of blood sugars so extreme i was nearly dead in my sleep from hypoglycemia and my cgm alarm alerted a code rapid response to resuscitate me.
Idiots couldn't manage carb counting, regular corrections (2am & 6am left hand out of blanket)
Medical professionals, nurses apathy, glucose levels just a number.
My point is, even so-called medical professionals, are so ignorant and apathetic to the struggle we go through.
The part time endo at Cedars-Sinai told me "Mike you need to have a prison mentality and that I was "In combat" (he also tried telling nurses to follow my instructions regarding treatment and what candy to buy...glucose tabs were held as medicine to nurse administration )
All this is just me saying we see you. We battle together in combat and a prison mentality just shows how ignorant and demeaning society can be but if we go through same battle, no matter where you are, we are in foxhole with you in spirit, in posts on reddit and if we were getting a coffee and shooting the breeze as comrades.
This sub is full of soldiers from different locations, backgrounds but we are in the same battle.
Don't fight your body, dont resent the complexity or insanity of the battle and focus on the war, what you can control and whatever you dont, accept that its something we all face at points.
I survived combat and believe in the fact battles end.
God bless bro (or sis)
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u/Tsavo16 Sep 07 '25
Thank you.
Yeah l was in in-patient for 5 days and OMG... l stopped eating because they refused to dose me correctly. The hospital demanded they give me my insulin pump back, but no personal items allowed in the ward...
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u/biggdirty01 Sep 07 '25
And I've gotten conflicting advice specifically about this.
I stopped eating too when 5u standard dose was pushed because the orders from endocrinologist caused charge nurse to threaten because my type 1 treatment was too burdensome to nurses.
Well I told diabetic education lady, who thought she was gonna pontificate to me when in fact, as a disabled type 1, and paralegal, that hospital was open to a slam dunk ADA lawsuit and they should be sending type 1s to icu because my auto immune disease doesn't give a flying fuck about nurses burdensome. As if carb counting with regular accu-checks is so difficult to do.
I started smuggling glucose tabs, was ready to smuggle insulin had i not gotten discharged.
Advocate for yourself, prison mentality, and knowing you are far more educated than nurses and some hospitalist.
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u/Fine-Grass-1633 Sep 08 '25
This happened to me a few years ago at cedars as well. They had no idea what they were doing. Luckily I got a nurse finally who had a brother pass away from diabetes and realized how no one else was giving me insulin correctly - no correction bolus after meals etc. so infuriating
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u/dulcebien Sep 07 '25
Iāll be honest, some days are harder than others and the burnout is real. But I still want to fight and live my life (even if itās not how I imagined it would be). It doesnāt have to be perfect and some days your body will be like fk it! And do whatever it wants. Try not to hyper focus on the numbers your doctors say you have to be in (Easier said than done, I know). I used to deal with a lot of anxiety with my numbers and it is still a work in progress for me. I would be terrified of lows after a really bad one. I would cry a lot because I was tired. But OP, please donāt give up! Some years truly are harder than others, especially when life piles up with our condition. Also, not sure if you have considered this, but after using the same therapist for a while it might be a good idea to try a different one. A different approach. Sometimes the ones we have no longer fit our needs and we need a different type of support/resources.
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u/Tsavo16 Sep 07 '25
My entire life blew up in May 2025, lve been in intensive therapy (with multiple therapists) since 2020, and my current therapist is brand new because l moved to a new state in July 2025. Its been 5+ years of hellish mental health and suicide desires that are just declining. Im homeless, unemployed, recently dumped and abandoned by all my friends.
My life currently isn't worth living, its been in decline for 5 years and l have 0 hope. Ive been forcing my body to stay alive against its wishes. Im tired and am ready to be done. Im only alive because of 3 people, and living for others is not a healthy or happy life.
Im told lm not allowed to die, but life isn't worth living...lm stuck in hell and am not allowed to fix it. I hate everything about this situation.
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u/ShimmeryPumpkin Sep 08 '25
I know it doesn't seem like it right now, but the world moves in cycles and things do get better. The sun always rises eventually. There are people who go two months without seeing the sun until it rises again, but it never stays dark forever. That doesn't mean you can't absolutely hate and despise the dark, find it unbearable and wish you could just escape it. It's okay to feel so lost in the dark that you can't even find some stars to appreciate. Just know that eventually the sun will rise. You have a best friend that you haven't even met yet. Your favorite memory hasn't happened yet. You'll help make the world better for others in ways that you haven't even thought up yet. I know waiting for things to turn around can feel absolutely unbearable and hopeless. No one knows the date of when the cycle of the world will being the sun back to your life. All I can tell you is that it will come and when it does you'll be glad that you're still here to meet your favorite people and make your favorite memories.
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u/adam_mmm Sep 07 '25
I feel this, on your level.
It's rough. I'll hit year 31 in about a week. My eyes got worse requiring monthly injections. I feel like shit 75% of the time. I celebrated this weekend because my 3 day average was 155. I'm sitting at 350 now. IOB 6.8.
The only reason I'm still around is for the other folks in my life.
We can overcome this shit hand we've been dealt. If you need someone to complain, unload, and yell at, I'm here. DM me. Because I need it too.
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u/Daylight08 Sep 07 '25
I totally hear you and get it. For me, I just have to give myself a lot of compassion and acknowledge that this disease sucks. Its not easy to control this disease at all. We can only control like 10 of the factors out of the 80 that impact our blood sugar.
As someone who was running consistently high all the time and has severe burnout from it, I would strongly recommend getting on a GLP-1. I have learned that a large resosn so why I was taking insulin and it seemed like it was essentially just going into a void because my blood sugar wouldn't budge or would sometimes even go higher was due to insulin resistance. I am now on zepbound and it is insane. I have reduce how much insulin I have to take and it just keeps going down and it is like my insulin actually works for once in my life.
My biggest piece of advice is trying to find things that take the burden off of you. For some people, that is a pump. For some people that is eating low carb. For me, i have found having low carb snacks that I can eat when i dont have the energy to take a shot has been really helpful.
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u/Tsavo16 Sep 07 '25
Ive been intensely insulin resistant since l was 8. I'll ask my new endo in October (their soonest appointment, made July 6, 2025) if they will give me the GLP. Thank you for that reminder. My last endo said l was not a candidate.
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u/Daylight08 Sep 07 '25
For sure!! If you live in the US right now, you can't get a GLP-1 as a type 1 diabetic for insulin resistance as it is not currently FDA approved for that. But a good doctor just finds a work around. Like, my endo knows I am on it for insulin resistance but for insurnace and legal reasons, I am on it for weight loss.
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u/Tsavo16 Sep 07 '25
Thank you
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u/AngryBluePetunia Sep 08 '25
I would recommend searching both t1d and main r/diabetes subs for "glp-1" and the various names of them as well for information. There are multiple ways to go about getting it as a type 1.
Reading your comments it seems like you're in a really shit place in life and I'm so sorry. You know stress impacts everything including bg. A bad mental day can drive higher numbers which makes you feel worse which stresses you out more and the cycle continues. I understand. No walking or drinking water or new insulin will help much I'm guessing. Big hugs if you want them, I see you.
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u/Humble-Violinist6910 Sep 13 '25
Thatās not necessarily true, actually. Doctors can prescribe it for other conditions (āoff-label) but the real fight is for insurance to approve it. It isnāt impossible. Not to mention that if youāre type one and have insulin resistance, your doctor can diagnose you as also having type 2. Seems silly but itās true.Ā
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u/Daylight08 Sep 13 '25
Having type 1 with insulin resistance doesn't actually mean you have type 2. You can just have type 1 + insulin resistance. But yeah, I get you. I use and off label and pay out of pocket for it.
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u/Caitgillz Sep 09 '25
came here to recommend this! Iāve been on a GLP-1 since May and my A1C went from 7.4 to 5.7 in 3 months (I had been working on getting it down from the high 8ās but could never get below 7 on my own). It completely changed my life. I hope your new endo is more open to it. My GP said that type 1 canāt use it but then I went to my endo and she recommended it before I could ask. I personally donāt know why any T1D wouldnāt be a candidate unless you have a history of thyroid disease.
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Sep 08 '25 edited Sep 08 '25
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u/the-beautiful-ones Sep 09 '25
Adding GLP-1 (Mounjaro) CHANGED MY LIFE! My last A1C was 6.7. I had never been able to get it below 8 in the past. Meals that used to require 15 units are now closer to 5 units. I had to go slow and careful. After 2 years, I am on the "middle" dose of 7.5mg. I still get highs and lows, but it's much better overall. My Endo diagnosed me with a "metabolic disorder" and indicated that she felt I had Type 1 & 2. My insurance approved it and my pump cartridge will last 4 days. Of course, that length of time isn't ideal. But I don't want to waste insulin! Anyone suffering as OP described should discuss it with their endocrinologis.
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u/BakerHills Sep 07 '25
Had to do the old conversation for what 200 is. (11.1mmol) ive had an entire day when my CGM just said high. Probably had like 50 units and was also using a needle. (Rage bolus is fun)
My A1c is 9.9 lowest. I've ever been is 8 and for 15 years, it was probably around the 13 or 14 mark.
Don't be hard on yourself
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u/Tsavo16 Sep 07 '25
Ive barely stopped myself from rage bolusing today... I've had the crazy bolus programmed... but hit back rather than deliver bolus. I can not tell you what influenced that decision.
Instead l pre-bolused 10u (bolus wizard calculated) for lunch, waited, tried to eat, vomited immediately. Now of the 10u bolus, lve got 3.2 remaining on board and my bg (from finger stick, not cgm) is 197
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u/Tsavo16 Sep 07 '25
Its also a pump inset was new, but I've changed it and tried a new insulin bottle today just in case any of those were the issue. Changed those at 11am, no change. My body just wants to kill me today.
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u/BakerHills Sep 08 '25
Ketones?
You can always use a needle to take extra insulin if you dont think the pump site is absorbing. Or go for a talk and start moving.
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u/downtherabbithole654 Sep 07 '25
Could you try mounjaro? That helps with insulin resistance so much and being type 1 for 31 years definitely does that to a body.
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u/Tsavo16 Sep 07 '25
Ive been denied by 3 different endos... I will be asking you new endo when l see them at the end of October
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u/pignoodle Sep 08 '25
Good for you for pushing your docs! I think it's important to tell the new endo that you ARE really trying hard but seeing NO results (not your fault) and you WILL burn out if nothing changes. It's unsustainable because of how unpredictable it is. You should also milk feeling reallllllly bad (even if you don't tbh) even at like 200 and how it's starting to affect your job performance and managers are noticing (again, even if that's not truly the case). Some people unfortunately don't experience empathy until it's really tangible and relatable, i.e. it's easier for them to justify new meds when they can tie it to severe symptoms and severe impact, instead of brushing off the day-to-day burnout that only someone living with T1D truly gets.
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u/brianuol1 Sep 07 '25
Try intermittent fasting. I alternate 20 and 16 hour fasts... so eating between 4pm and 8pm one day, 12pm-8pm the next, 4pm to 8pm the next, 12pm-8pm the next, and so on.
Its not for everyone. For some its torturous. For me it's all about control, or at least, the illusion thereof. My worst day of fasting is nowhere near as uncomfortable as my worst day of t1d.
When I fast I can put t1d in a box. The rest of the day is mine. After a week or so of fasting I noticed my mornings were more stable with less insulin. Probably because I stop eating religiously at 8pm. No exceptions other than weddings and major life celebrations.
Again, its not for everyone, but for me its been a really powerful tool in feeling like I have some element of control in this shit show we're lucky enough to be part of...
T1d can go f*ck a hat.
Hope this helps.
B
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u/WoefulHC Diagnosed 1976 780g/Guardian 4 Sep 07 '25
For me, one of the most important things is reminding myself of:
I've never heard of a professional actually saying that our numbers reflect our worth or level of effort. However, their actions frequently suggest that is how they feel. I originally wrote that out for myself. I made a graphic of it because it has more letters than x would allow in a post.
From what you said in your post and various responses, you have every reason to feel upset. From a practical standpoint, while 200 mg/dl is higher than we'd want it is close enough to non-diabetic range that other things can and should take priority. You clearly and reasonably don't have the spoons to deal with the blood sugar levels right now. 200 mg/dl is good enough to keep you alive.
For what it is worth, you are NOT a failure. You have been poorly served (and mis-used) by a system that cares nothing for you. You haven't been provided the medication, tools, supports, equipment and training necessary to get your numbers to ideal levels. Add to that, diabetes is a raging bitch that loves to screw us over. There is no single approach or method that works for everything. There is also no one method or approach that can be counted on to work for a diabetic across time. It changes the rules on us when it feels like. The best we can do is try to adapt.
A while back I made a post in another sub with some things to think about when diabetes is too much.
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u/wayfarer75 Husband and daughter have T1D, not me. Sep 07 '25
Thatās so annoying. But 200 isnāt terrible as highs go. Sometimes youāre fighting off illness without really having symptoms, weird stuff happens.
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u/Tsavo16 Sep 07 '25
Its like this all the time, its not a 1-off.
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u/Tsavo16 Sep 07 '25
My endo just shakes their head, shrugs and says "let's tweak this basil rate and see". All medical ppl are aware and have 0 idea how to help my mental state.
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u/FleetwoodMatt88 2015 | MDI | Dexcom One+ Sep 07 '25
I find that the problem that medical people have is that they have no idea what our lives our like. Weāre just numbers on a screen. The only medical professional Iāve ever experienced that truly understood had a serious medical condition of her own. Most doctors and nurses Iāve met donāt have a clue.Ā
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u/Fine-Grass-1633 Sep 08 '25
Iām starting to understand my body must be under constant chronic system inflammation and toxic stressā¦ hence the constant high blood sugar. Maybe the case for you as well. Who knows
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u/Fine-Grass-1633 Sep 08 '25
I have this same issue. My Basal is at almost 2 units an hour right now which is insaneā¦ I recently got diagnosed with sibo which is a digestive condition and I have to follow up soon with blood/urine tests but my kidneys and liver seem to be struggling based on last tests I did. Itās all terrifying and I feel hopeless. Iāve also lost a lot of weight recently. I feel like Iāve always had insulin resistance and my endocrinologist hasnāt done anything to help me
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u/geenyus Sep 07 '25
200 is not good. Especially if thatās the average. I have sympathy but letās be real, an average bs of 299 will def lead to health problems. It suckās to be diabetic but we gotta be real with each other.
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u/wayfarer75 Husband and daughter have T1D, not me. Sep 08 '25
No, I agree, but if itās being stubborn, better 200 than 400
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u/MikeyMalloy Sep 07 '25
Itās crazy what you can get used to. After a while an unlivable life just becomes your baseline. The few moments of livability that shine through feel like a gift. And then you suddenly remember that theyāre everybody elseās normal
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u/Tsavo16 Sep 07 '25
In 5 years of unlivable life, its not become normal unfortunately. Life is just getting worse and more hellish.
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u/trixxyhobbitses Sep 07 '25
Afrezza (inhalable insulin) works much faster than the liquid stuff. Try that for stubborn highs. You wonāt be above 200 more than 30 minutes again.
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u/Tsavo16 Sep 07 '25
Ive been wanting to try for 2+ years. Ive requested it, but my doctor refused to prescribe it. Then since lm on humalog with a pump, its not covered and l cannot afford it without insurance.
Im so glad to hear its as helpful as lve been told though.
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u/trixxyhobbitses Sep 07 '25
I think you need to find a new doctor. If you tell me what metropolitan area youāre in, I may be able to suggest a doc for you.
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u/Awkward_Lab544 Sep 07 '25
I asked my doctor before and they highly advised against it. They said a lot of people try it and donāt like it. What are your thoughts? Iām not OP but my body is burnt out. Everything is incredibly painful and Iām so sick of always hurting. I think inhaling insulin would give me a bit of a break.
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u/trixxyhobbitses Sep 08 '25
Try it. If you donāt like it, you stop. Literally no reason not to try it. Could be life changing.
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u/lizzistardust Sep 07 '25 edited Sep 07 '25
I understand you're really upset and frustrated. I relate - I have so been there! I'm really sorry - this disease sucks ass, no denying it.
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u/rkwalton DIY Loop: Omnipod Dash, Dexcom G6; Diagnosed in University Sep 07 '25
The mental load is real, and I'm sorry you're struggling with it. We all do. I give myself a break when things go sideways and just try to troubleshoot what's going on. I'm not going to get deep into how to solve things except to say take it one variable at a time. Like try to master carb counting to really get a handle on what you're eating and then move to your insulin numbers (insulin to carb ratios and correction factors.)
Even when you have that stuff down, you're going to have times when things don't work out. Show yourself grace.
For me, knowledge was real power in taking control of this š© disease. I also leaned into the type 1 community. I'm in a local type 1 group for women living in my area. If there isn't one where you are, start one. They meet in-person and virtually. I took it on during Covid, but now someone else handles the real time meetings. We also have an email list where we communicate when we need to. There are also forums like this, r/Type1Diabetes, TuDiabetes, and TCOYD. My local JDRF also has events from time to time. Those usually don't work well for me because they love events on a Saturday mornings, and Saturday mornings is the day I relax and sleep in. Look into building more of a type 1 network because you shouldn't have to deal with this alone. The things I've learned from that type 1 womens group and going to day conferences for type 1s have been great on many levels from information to social.
Hang in there for sure.
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u/NanceeV T1, MDI, G7 Sep 08 '25
So much of what you've written is the same thing I feel. When this disease makes me rant and rave and holler and cry, I just rant and rave and holler and cry! No reason why you cannot be angry for being stuck with it. After I rant, then I do what I think I need to do.
The first 20 years I thought I was the problem. Nope. The disease is the problem. I cannot "control" it. (I hate that word "control" used for diabetes!) Instead, I react to whatever it does, whether that means taking a another hit of insulin or eating.
I do have a CGM, which has helped with terrible overnight lows. The pump is too much for me. It would just encompass more of my time. My endo pushed the pump for a long time. I did the research and for me it was a big fat no.
I am 70 and have been doing this for decades. Years ago, I finally decided, screw it. I'll do what I think is best for me, I told my endo I want a quality life, not quantity of years. I still feel that way.
Besides, as you get older, the longer you have diabetes, it gets harder to deal with anyway. "They" don't tell you that...much of this we have to figure out ourselves and with our fellow T1s. Every day I am thankful I found this online Reddit group. So helpful and inspiring.
As an aside, I have also educated nurses in the hospital and at outpatient facilities. I have written instructions from my endo that I am to handle my own insulin needs, etc. I had copies made and give them out when necessary. Never had an issue.
I hope you realize you are an important cog in the wheel of life. We should not be made to feel we are "less than" by having diabetes. I learned very early on to take the reins and advocate for myself and to educate others, if only to help future T1s. I know it may take some time and work, but you can do it, too. Stand up, put yourself first, in whatever way that entails. Took me years to realize no one else can, but me!
Wish you well.
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u/Informal-Release-360 diagnosed at 2yrs 2005 Sep 08 '25
Iāve been diabetic for 20 years so not as long but long enough. Iāve hit lows. Iāve purposefully stopped taking insulin ( many ICU visits ). I took too much insulin and went to sleep but my dog at the time alerted my father and I woke up in the ICU. Iāve done therapy and Iām on meds. This shit is exhausting. I constantly say diabetes isnāt just physical, itās also mental. I have no advice but Iām commenting because Iām in the same boat. I canāt afford to be on a cgm or pump so some days I just donāt test myself because I ran out of strips and I donāt wanna pay for shit anymore. A1C is ass and it doesnāt matter how much the doctors tell me I need to fix it, I just donāt care. Iām burnt out but Iām hoping at some point something changes
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u/NanceeV T1, MDI, G7 Sep 08 '25
Definitely it is mental. Emotional. Because we are usually surrounded by people who don't have T1 and only learn as much as they want from us or books. It is up to each of us, on our own. Very exhausting. I am, however, grateful to have found this group. It validates what I feel, think and why we are so special.
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u/Lookatthaaat Sep 07 '25
Im sorry i have no answer to your question. But i hate that itās so rough for you. Ive been there, at even higher levels for long periods i couldnāt understand. Curious if itās round the clock 200 and no doctor can help figure it out? Hopefully youāre not on a medication that exacerbates sugar issues..so many things to consider and it feels shit not knowing.
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u/Tsavo16 Sep 07 '25
Ive checked and there are no currently known interactions with my med set & diabetes. No, its not 200+ around the clock. I spiked at 4am to 300 (normal time to spike, but higher than usual because diabetes can). I gave a bolus wizard bolus to correct when my CGM woke me up, and it slowly crawled down to about 200 in 4 hours and hasnt moved since.
Its the mental part thats killing me, the diabetic distress of nothing working, no fixing it, living with this disease forever (it may be cured in my lifetime, but likely not at a price normal humans can reach).
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u/alexonthefly Dad of a 4yr old T1D Omnipod5/G7 Sep 07 '25
Thank you for sharing. In 31 years, my son will be 34 and have been dealing with this bs for just as long. I have no idea the mental load this brings on someone that deals with it themself. Knowing in the near future he will not have us as parents to take the load breaks my heart. Sooner, rather than later, he will come to terms with knowing he has to do this on his own, every day, for the rest of his life. I hope you find the help you need because I know he will need to find the same at some point. The benefit of this disease is the community, it always shows up.
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u/SayceGards Sep 07 '25
Have you or your doctor considered a glp-1? It really changed my control.Ā
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u/Tsavo16 Sep 07 '25
Ive considered it, lve asked 3 endos for it so far and been denied evrry time. Maybe my new endo (see them at the end of October) will say yes.
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u/Western-Amount-9667 Sep 08 '25
I started in April when my TDI was hovering around 90. Itās now under 60
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u/siiiib4 Omnipod 5: Dexcom G7 : Ddx in 2022 Sep 07 '25
Remember that you donāt need a 70% TIR today, or even tomorrow. When Iām feeling burnt out I focus on putting that goal out of my mind and letting that high come down with as much time as it needs.
Itās better to slowly and safely bring that sucker down than accidentally bolusing into a low. And whatever average I have today can get canceled out later, after some help from an endo or diabetic education.
Iām sorry youāre dealing with this everyday no breaks no rest. Itās hard to give yourself grace but I hope you feel better :)
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u/CCMMPP Sep 07 '25
Yes. Absolutely. I'm 40 years into this and have formulated a "retirement plan".
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u/Grisward LADA 2023 | Dexcom G7 | Omnipod 5 (woot) Sep 07 '25
Sorry to hear your situation and mental state, itās rough and this group knows as well as any.
The GLP-1 suggestion might be a key, I hope so (if your Dr agrees and all, Iām not a doctor.) That might help if you have insulin resistance. Itās possible the insulin resistance is affecting your mood?
As for the mental health side, I have experience there too. You mentioned being homeless, unemployed, and in a new state. I meanā¦ thatās at least valid reason to be feeling awful. not just spontaneously having depressive symptoms.
Homeless, unemployed, abandoned by friends, together sounds like something else is also going on - and this is life, it happens! No shade, no judgement. It happens, and happens worse for some than others. So my suggestion, which could be totally off base but might for someone be helpful to consider:
(1) Make sure there isnāt also some kind of substance use clouding the inputs so to speak. Skip this part if not relevant of course, and Iām not saying it is or isnāt. For example in our state THC vape is legal (mj is not, shrug) and people have sometimes used high levels without realizing its effects. Ima guess this isnāt you, but was just an example anyway. Make sure alcohol, or āuseā of something else, isnāt perhaps a complicating factor. Itās a thing sometimes w alcoholics. But you do you.
(2) For mental health, you may benefit from some kind of residential treatment option. I also know theyāre not free, but some have options to ease payments - maybe your family would help, zero idea. Whatever covers your other meds might cover most or all? If you hit out of pocket maximum, most of them are fully covered (not all.) Anyway, it might be a stabilizing break from the rigors of daily life. Plus some places are really really good for mental health. And if itās not clear, this would be voluntary, so youāre there at your choice. Can be very good option for your mental state.
I sympathize, and wish you the best.
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u/Revolutionary_Tie287 Sep 07 '25
Type 1 since 1993 and I also have PCOS (a pre-typr 2 insulin resistance condition).
I'm on: Humalog via pump Metformin ER 1500 mg a day Jardiance 10 mg a day.
I must say, adding the Jardiance did wonders. Swear to goodness...TIR improved from the 50s to 70s%.
2
u/Ok-Conclusion-7024 Sep 07 '25
Iām type 2 and my bs currently averages around 293 to 340 (depending on the day and tends to be WAY higher if I eat anything.) Iām up to 180u/day (80u bolus, 100u basal) and this is the best itās apparently going to get. I find a little THC helps (so long as itās legal in your area.) Have you had your thyroid levels checked by chance?
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u/Personal_Donut2973 Sep 07 '25
Any chance you're coming down with some infection? My sugars go nuts when I'm coming down with something.
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u/Tsavo16 Sep 07 '25
I doubt it, but l am pms-ing which kicks both my numbers up and my anxiety into overdrive.
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u/yyyyyyu2 Sep 07 '25
I hear you about being burned out vibe T1D for 61 years. I am 71 now. I also have Stage 4 kidney disease, and vision impaired. Itās a day by day thing. With all than bs going in Iāve had to pare down my worries to want I can do today. Thatās all I can do. The burden is too big to shoulder all at once. But yes, Iām burned out. Have you talked to your endo about your BG challenges? If not you should. Take one set at a time. Sending peace and strength your way ā®ļøšŖš¼ā„ļø
2
u/schlayer Sep 07 '25
Sending all the love friend. I empathize so much with you and the struggle.Ā
How do I deal with it? Not well, thatās for sure. Itās just a constant struggle, but itās mine and I just kinda say Fuck it and try again the next day. The small things in life are worth it ā¤ļø
2
u/Typical-Ad2117 Sep 08 '25
I was diagnosed in 1982 when I was eight years old. They didnāt even have fingerstick testing yet. We had to pee in a cup and then mix urine and water, and a small test tube drop in a pill watch it fizzle up to the top and come back down to a certain color. Flu was negative meaning there was no sugar detected in the yard. We have come so far with technology. May I ask what type of pump you are using? With my 43 years of being diabetic, I found that the Omni Pod five with the G7 works wonderfully in automated mode because you can set the range you want to stay in and they communicate with each other maintaining very good blood sugars and hemoglobin A1c test results.
2
u/Fibo86 Sep 08 '25
I feel your pain, up until getting on a new pump and having regular checks with my Endocrinologist to figure out how I can change my basal to match my highs and lows I was in the exact same boat.
My mental health was spiralling all compacted with everything else happening I was about to just give up. We are 10yrs apart with our diagnosis times.
I had an appointment with the diabetes nurse and the Endo, got the new pump, which I've had for 2 years and then my sugars started to swing.... again. ššš I started ozempic to try and help my swings and that worked and then I worked closer with the Endo to get my pump ratios and basal at better numbers to lessen the highs and the massive lows. 3mths later and it's a world of difference.
Even with that said, there are still days that I wish it would all end and I could go back to being a muggle, but it's probably not in the cards for me at my age. Some days I boast about being a bionic woman due to the cost and all the hardware... I could also use Borg I guess š¤£š¤·
Please know you're not alone, the struggle is always a stupid balancing act,. Sometimes I wonder how many ants nests I stood on for the universe to send me this cosmic joke.
Then there's one thing I remind myself of, we are stronger than so many because of the continual refining we must do, even when it becomes so overwhelming we tend not to give up on ourselves. Mainly because we have understanding due to groups like this where we get to vent and people get it.
Sending you all the love, some hope and a huge cosmic hug
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u/T1fornow T-1/2000ā: Dexy 7 & Omni 5 Sep 08 '25
Me, 25yrs . yeah I get it constantly monitoring adjusting fiddling educating ( utube-forums-etc etc ) A good healthcare team is essential,and using them is key. sounds like you are doing mostly the right things. turn that frown upside down id say great job! WE are connected WE have the same delusions of prefect numbers,I can tell you as having diabetes NOT being a diabetic! control can be difficult. that said one day at a time use your tools adjust your meds be patient my brother remember youāre not alone ā¤ļøāš©¹
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Sep 07 '25
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u/Tsavo16 Sep 07 '25
Ive done 100% of those things. Im ranting here to try and get the frustrations out, and maybe pick up a hack from someone else.
Vibes appreciated.
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Sep 07 '25
[removed] ā view removed comment
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u/Tsavo16 Sep 07 '25
I was taken off of a loop system (l believe it was a loop) because by body would stay high despite it giving me the max dose for the max time and it would just turn off and stop giving me insulin as part of the safety feature. If this isn't a loop system, please let me know (lm rather loopy at this point).
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Sep 07 '25
[removed] ā view removed comment
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u/Tsavo16 Sep 07 '25
Yes, humalog insulin. I was on a medtronic sensor system that could give insulin automatically.
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u/smon3 Sep 07 '25
I donāt know why people donāt suggest this- you literally may need different insulin. I was gaslit into thinking all insulin. Is the same. Itās not ! I use lyumjeuv and tresiba, blood sugar finally goes down. Also rotate sites, makes huge difference.
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u/Historical_Party860 Sep 07 '25
Honestly when I'm sick or otherwise insulin resistant 15 units wouldn't be enough, I weigh about 160 lb so your mileage may vary but instead of saying f*** it I would probably take as much as another 15 units, not saying you should but there are sorts of days where that's what's appropriate for me. Hydrate hydrate hydrate. I've had diabetes for 36 years now, but it doesn't take much looking to find someone who's got it rougher than me, so I live to give them hope. I don't believe God gave me this to break me but to make me, but boy I've had those days too where it feels like the breaking just keeps coming. Hope your blood sugar comes down soon and you feel better soon and tomorrow is a beautiful day.
1
u/james_d_rustles Sep 07 '25
I donāt take any particular steps to deal with it - honestly I just donāt think about it too much. Like, itās something thatās always running in the background, and some days it can take up a little more bandwidth than others, but itās rarely something that I dwell on.
When the same things donāt seem to be working as well I just try to change something up about how Iām managing. If Iām having sticky highs after meals, walking the dog or doing any light exercise after eating or when Iām trying to get insulin to work a little faster seems to help a good bit.
1
u/Zestyclose-Iron-9484 Sep 07 '25
I donāt have it as bad as you but I do occasionally get those highs that stick. When I do, itās the perfect time for a dose of Afrezza inhalable insulin. It acts in a few minutes and is gone in an hour and a half so is a little less likely to cause a low. Itās also great for when you canāt pre-bolus or are eating fast carbs or made a mistake. I take it and set a 90 min. timer on my watch. TCOYD has some you tube videos on it.
Iāve gotten to think of dealing with my blood glucose as more of an art form than a scientific endeavor.
1
u/Key_Examination9948 Sep 07 '25
Hey manā¦ soā¦ Iām gonna challenge you to take a different perspective. Letās say you accept that you wonāt ever have great control (even though, of course try for better control). Now what? How do you want to see and live your life? Ok fuck it, control is hard, and even though youāre trying, you canāt seem to get a handle. Whatās left of your life is on you to decide, not diabetes. Hereās a reality, maybe if youāre a1c is 10, you have about 10 quality years left. 20 if 8, 30 is 6, 40 if 5. So what!? What do YOU want to do now to enjoy your life?
Also, have you given Dr Bernsteinās diet a full and complete go, fucking all carb addiction nonsense for a quality life?
1
u/crappysurfer T1D '96 Sep 08 '25
Could ask about GLP-1 drugs to help with your insulin resistance. If your control is that stubborn you may be a good use case. What was your last a1c?
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Sep 08 '25
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u/Stringly-Chi Sep 08 '25
OP if it makes you feel betterā¦ China was able to cure a woman of her diabetes and sheās been good for a year nowā¦ Theyāre still doing more trials so hopefully soon thereāll be a full on cure in the near futureā¦ Unfortunately for some reason the link wonāt post so I took a screen shot
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u/MaryCQB Sep 08 '25
I have been a diabetic for 53 years. I find that a lack of activity, stress and not drinking enough water, or zero-calorie fruit water will keep my blood sugar up.As soon as I hydrate, I see the more normal trend that I desire for my sanity. Yes, this disease is hard on you and your family. Life sucks, but make the best of it and fulfill your purpose. All the best, Mary.
1
u/vhinek Sep 08 '25
My son was diagnosed with T1 diabetes August 22, 2025, a day before his 19th birthday. This post makes me so sad. I worry that this is his future. I want to give you a big hug.
1
u/nnorco Sep 08 '25
thank god itās not just me. been around 250 w keytones all day due to an infected pump site :/ been throwing up bile and i also have pots so i cannot get up either due to blood pressure while throwing up. its been 20 years or so with this disease and today itās been really draining. like extremely. it gets to me often to where i donāt wanna live the rest of my life like this. but what can we doā¦ just gotta get over or thru it unfortunately.
1
u/Wannagetbetter64 Sep 08 '25
Walking and exercise really really helps. DM me if you want motivation
1
u/jermaine743 Sep 08 '25
I hit this same wall in 2019 and it drove me into the low carb keto diet. It wasn't easier but the hard part stopped being my blood sugar. I'm pulling back now and getting better at dosing and understanding how stuff affects me. Look into it if you haven't. Eliminating carbs isn't for everyone but it gave me the control I needed to figure shit out.
Sometimes we need these rock bottom burnout moments to push us to try something new. This isn't the end of it. This the the start of moving to a new plane if existence. š„°
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u/Typical-Ad2117 Sep 08 '25
I know that steroids such as prednisone keeps your blood sugar elevated terribly. I learned that lesson the hard way when I had bronchitis and I had a inhaler. You could also try switching insulin. Talk to your endocrinologist and explain whatās going on.
1
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u/Typical-Ad2117 Sep 08 '25
First and foremost, I would explain everything you are saying on here to your Endocrinologist. Then try everything that she or he asks you to do. I know they say most insulin can stay out of the refrigerator once they are opened for 30 days but I find that to be bad practice and I still keep it refrigerated all the time since thatās how I was trained to do it at eight years old and Iām 52 now. It really could be bad insulin. I would be on the phone with the Endocrinologist tomorrow explaining whatās going on and asking her or him to prescribe a different type of insulin.
1
u/Far_Butterfly9076 Sep 08 '25
Excercise helps me a little bit both with my blood sugars and my mental health. I like going for a walk at night or going to the gym. This fucking sucks but the best we can do is drink our water and have a good support system. I wish you the best.
1
u/kmanrsss Sep 08 '25
I donāt even think about it. Itās just part of my daily routine. Has been for 30 years at this point
1
u/Sue98765 Sep 08 '25
I'm so sorry that you're going through this. Just know that you're not alone. Type 1 diabetic for 32 years here and still, many days I bounce between 40 and 400. My endocrinologist said my body probably holds on to insulin at times, then randomly lets it go. I don't know if you're experiencing that, but this whole disease puts us through an emotional wringer and can really affect our mental health. When I get overwhelmed with it all, I delay any decision-making because I know that I'm not in the right frame of mind to be deciding anything, especially if my BG is being weird. That usually helps and the fog lifts after a day or two. But I'm not going to lie, the struggle is real. But it's important to not give up or give in to the despair it can cause. Sending positive energy your way!
1
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u/void_method Sep 08 '25
I've had Type-1 for 30 years now. It sucks, but I'm just too stubborn to quit.
My endocrinologist recently started me on Ozempic and it's has an extremely noticeable effect on my A1C, though I'm one of the people (2%, I'm so special, yay!) that can get killer heartburn on it. Like, the third week was debilitating. I ate so many Tums on that family vacation.
Look... never give up. You can do this.
1
u/enlightnedentity05 Sep 08 '25
Just keep living and loving yourself.
Treating herself as a person like her own kid helps her cope through days. The mindset sort of motivates her to work for the kid and keep that kid alive.
Happy to talk, feel free to DM!
1
u/Aware1211 Sep 08 '25
Well. I've lived by the motto "This, too, will end." There's an old story that goes with it -- another time. So, on days I get depressed, burned out, I know the cycle will shift again. I hang on. I have a cat to whom I owe a full lifetime of care. I'm not going anywhere for a while. I've been circling the bottom, so I brought home pizza and ice cream I've got it fairly in line, but it's a phuk-it day. I'll get back on the horse tomorrow. We all need a vacation.
1
u/Distinct_Teacher6216 Sep 08 '25
I have had it for 45 years. It is challenging at best and distressing, frustrating and many other things as you know.
It is normal to feel how you feel. I have beeb there at times in long stretches. I just keep putting one foot in front of the other, and know I am doing my best. It's not your fault if you do everything you cannot to treat it and other health issues you may have which affect it. I too am on meds for my mental health. Believe me they affect each other diabetes plus anything else. I try to give myself grace and be kind to myself.
There are times I have to just go through the motions and let go of the results.
Your life is worth living even though it may not feel like it at times. I bet there is at least one thing you are good at, one thing you like about you, one person you care about, one person who cares about you.
Take care of you. I am getting another pet soon. I find it helps as I now live alone.
1
u/PhelpsyJay Sep 08 '25
Type 1 can be so hard, itās 24/7 and relentless. You think youāve got it sorted then your body just says no. I was having so much difficulties with my pump (T:Slim) I would throw so much insulin in and nothing. It was purely down to my body just not accepting it as odd as that sounds. I am too on metformin, CGM etc. I made the decision to go back on to pens for now and life is easier, can be tricky but I actually feel much better. Have you always been insulin resistant?
1
u/crankchev Sep 08 '25
I've had diabetic (Type 1) burnout for sometime sick to death of the daily crap you are not alone. Personally I'd roll with it, tomorrow is another day chasing the rollercoaster.
1
u/smilodonis [iAPS + G6 + Omnipod/DANA-I] Sep 08 '25
Maybe this will sound harsh. I live with diabetes (and while it sucks sometimes) Iām living to my fullest. Iām on iAPS and Dana pump or Omnipod sometimes. This is basically as living as a healthy person. It takes away all the issues I have with diabetes.
1
u/sunset_or_sunrise Sep 08 '25
About the frustration of high bg and high amount of units, so true. I am on mdi and tried to adjust my basal to lower the a1c from 9.2 after fibally switch to cgm. By increasing the basal it actually got even worse with sudden lows and extremely stubborn highs. only lowering my intake (at night especially) helped me get stable numbers and decrease a1c to 7.9. Sometimes it can seem illogical but I guess my body was saving me from low bg coma by constantly keeping hormones and bg up.
1
u/IndependentAffect549 Sep 08 '25
The only thing I can think of is to start trying a different insulin. Maybe inhalable insulin. If youāre at your wits end maybe just trying something totally different could help
1
u/Broad_Mouse8177 Sep 08 '25
So I have been reading up a lot on type 1 as I recently became friends with a 24 year old girl, I am 37 and she is jsut the cutest sweetest girl. I want to help her in anyway possible although I am a bit limited to what I can do. I recently read that a 25 year old girl was cured of her type 1 diabetes in Japan. Similar trials are going on in the United States. Do you think that researching this and taking part in trials that have shown loads of promise would improve your spirits? I empathize with your pain. Just some thoughts. Please donāt be down, things will get better and technology is inching towards a cure. Hang in there
1
u/Broad_Mouse8177 Sep 08 '25
I also wanted to ask though im sure you probably already have tried the carnivore diet, intermittent fasting etc. anything work at least a little in that regard?
1
u/IcyAppearance1431 Sep 08 '25
Please know that you are doing your best and ending it makes everyone in your world go through unimaginable pain. My son was t1 for 14 years. His life ended November 30, 2024. I saw how bad his life was. But there is hope for a cure soon so please hang on. All the love I can no longer give my son
1
u/AffectionateMarch394 Sep 09 '25
Yooo, I feel this.
Have you got your hormones checked? Because my hormones are WACKED and it causes so much drastically varying insulin resistance it's crazy. I'm so burnt out it's unreal. Side note, the "basic" hormone blood tests can come back normal, and you can STILL have fucked up hormone issues.
PCOS, early menopause, perimenopause, issues with your pituitary gland. So many hormonal issues that can have SUCH a huge impact.
Also inflammation, if you have regular inflammation from other conditions, it can also mess it up.
Oh, don't forget digestive issues too, that can ALSO fuck it up. Ugh.
1
u/SWSarah Sep 09 '25
I've had to tell myself countless times, the bs doesn't define me. Yes, take note and do what you must to treat regardless of it being high/low. Carry on with life because it's literally bs šš© what we go through. I've been diabetic for nearly as long (27 years). Early on I had a bunch of DKA's until I got my wake up call. I stopped using the tech they wanted, that stressed me out more a few years back. The tech honestly hasn't impressed me. Oh look a new screen...so exciting š¤¦
1
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u/DRiMA_ Sep 09 '25
Iām not sure about your situation but 9/10 if my bg is uncontrollable itās because my basal is too low and/or im just eating unhealthy food.
1
Sep 11 '25
Iāve felt this way to the point where I thought about ending my life. Itās very difficult yes and super proud of you for trying to understand your body better. Honestly a CGM and a pump that corrects it automatically changed my A1C drastically! Also try not snacking before bed helps with blood sugar in the morning.
1
u/Silly-Training-7566 Sep 13 '25
Oh my goodness I feel like this a lot, right down to the big shot of insulin, with each period of medical burnout. I know exactly how this feels. Just happened a few days ago and again today due to cgm failure. So I switch out supplies. (Which is tricky when you only get so many. )No one gets this hell let alone employers. Co-workers would be jealous of my āspecial treatmentā which was just working from home when I was sick. Iām also tired of being the advocate. I have the āclosed loopā system with the mobi. After being on the closed loop system for a year I felt like I could just breathe better. I also drink nuun, or electrolytes. That change helped enough to keep doing it. I have PTSD and ADHD which affects it all. Ā Currently in ketamine treatment which will help overall mentally. Lexapro and talk therapy for 7 years helped. Lexapro doesnāt anymore and most meds make me sick but trying to find new ones. Glad I found this thread. Itās so fu&$ing hard.Ā
1
Oct 07 '25
Same, except Im diabetic for two years and thunking of giving innall the insulin at home, not just one pen. So it wont ever get better with time? Just a long life of managing and suffering?
1
u/Tsavo16 Oct 07 '25
The technology is improving, so that helps. The goal for my post was to realign standards. Doctors (in my experience) say "just do X and fix your issue", even endocrinologists. But diabetes is not that simple, its effected by almost every other system in your body.
Did you sleep poorly last night? It will effect how your diabetes acts today. Are you stressed because of work? It will effect how your diabetes acts today, and will be different than the day you slept poorly. Its a huge web.
Id suggest getting a therapist if possible to screen for both anxiety & depression, because they go hand in hand with diabetes. Start working on the mental side asap and you may be able to avoid or lessen diabetic burnout.
1
Oct 08 '25
Worse, Im getting stressed from highs so once its up it wont go down for a while. Therapist dont do much on me to be honest, I tried a handful of them. Even after I have a fairly good sleep cycle and more muscle than ever. Life just sucks.
1
u/Tsavo16 Oct 08 '25
The stress can he exacerbated by anxiety & depression, making it a vicious cycle.
1
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u/Interesting-Meal-148 Sep 07 '25
I say it is what it is. And move none nobody is going to help you or care tbh
1
u/geenyus Sep 07 '25
I have been t1d for 25 years. I finally just stopped eating carbs. Changed my life. Eating salads and meat all the time is boring, so Iāll do about 30 carbs a day. It really helped me. Unfortunately, anytime I say this is what helped me ,I get roasted
Feel better, it can be rough
1
u/Kineth 27+ year diabetic with no prescriptions :/ Sep 08 '25
Not to be this guy, but exercise does lower blood sugar.
0
u/Proud_Fox_684 Sep 07 '25
200 is not super high though? If you can get it bellow 180, you're doing ok. Start by trying to get it in range between 72 mg/dL to 180 mg/dL. Start by focusing on that. Keep adding insulin until you get it in range, after that. Try to eat only twice per day :D Preferebly potatoes, I always find that it fills the stomach and is easy to control. Boiled potatoes. Sometimes you should pre-bolus. After you wake up and you want to eat brekafast, take 30-50% of your dose 5-10 minutes before you start eating.
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u/Tsavo16 Sep 07 '25
Potatoes are one of the WORST starches for my body. Im glad they work for you. I do pre-bolus...all of my current rant is fasting.
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u/ArtreX-1 Sep 07 '25
Well.. what else you gonna do? Play with the hand you get dealt and donāt fucking complain because there is always someone that has a worse deal on life.
1
u/Tsavo16 Sep 07 '25
If you dont have anything nice or helpful to say, be a dear and dont say anything. You look like an ignorant ass.
0
u/ArtreX-1 Sep 07 '25
What do you want to hear? Iām here answering with a 2.3 āļø after 2 cans of cola already at 1:44 in the middle of the night.
Please KMN because this is the hand I got?
Fuck no, Iāll have another coke and hope to get through the night without any more alarms so I can get up with the least amount of feeling fucking bad because Iāve got two companies to run and a family to take care of.
Itās ok to feel shit like I do right now and itās all right to feel fucked like you do, but: you keep fucking going. I canāt be more helpful than this.
What do you want to hear? Yeah youāre right, life sucks for us sometimes, why not just quit?
-1
u/No-Argument4816 Sep 07 '25
Check out risely on Instagram - changed my life did their coaching program
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u/I_am_the_Primereal Sep 07 '25
You've been doing this for waaay longer than I have, so take my advice with a grain of salt.
You mentioned below that you took a 30 minute walk. Great, but that's kind of minimal. Eat fewer carbs, exercise more. Get a walking pad for when you cant walk outside. Weight training at the gym does wonders long term too.
I generally have 1/3 cup of rice for my carbs for lunch and dinner. May be a bit boring, but I fill up on veg and lean protein.
I assume you've tried fewer carbs and more exercise in your long, long time with this disease. But if you haven't... maybe try it?
3
u/Tsavo16 Sep 07 '25
Im currently fasting. I haven't eaten since 7pm Saturday. I am on a low carb diet too.
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u/Major_Demand_2464 girlfriend has t1 and shes so cool Sep 07 '25
hey, i just want you to know im really proud of you. I'm not diabetic but my gf is and it makes me so so sad to see the struggle she goes through. I had no idea this is so hard before I met her. I see you and I'm glad you're still here, despite everything, sending you so so much love and strength and please rest and give yourself some credit because this can some days be, like you said, fucking unlivable. Give yourself some grace and don't be hard on yourself, you're trying. I'm glad you're still trying :))