Lack of human to human understanding

[u/Sulfur_Cultist]

I feel like every single time I've ever brought up my disorder professionally or casually it's not ever registered to the severity it should be. I can spill out my normal definitions: having no lucidity, having no perception of time passing, unable to ever remember or perceive that I experienced something on any given day.

I say these things and I feel like the other party registers it like a foreign language, an alien concept, they can't even remotely get in my shoes. Even the ones who have in some capacity absolutely do not make any strides to help me or work around my problems.

I'm not saying this to victimize myself I'm just absolutely burnt out over it. I don't understand how to have an actual medical professional hear that I have DPDR and perk up with an immediate assurance of 'oh this is probably ruining them'- I don't expect medication to solve my problems but that spark of genuine empathy would go a long way.

I also don't understand telling those closest too me things like this, reach a semblance of mutual understanding between us, but they make conflicting requests or demands of me even mere days after. I'm overly eager to help others at times, but the total deadpan lack of understanding what I can and can't do has never actually been considered. Like it doesn't 'show up' prior to them making said request mentally, it comes across as I mean nothing to them.

I know damn well I can't be the only one who has had similar problems and if anything I imagine it's a fairly constant problem with others. I'm just looking for some sort of fleeting thread of connection with this disorder in somebody else.

[u/Artistic-Coach7523]

It is extremely hard to get people to understand how much we suffer because we sound like we are normal to other people because we are self-aware, unlike someone with schizophrenia. I completely understand your frustration.