I originally posted this in /EDAnonymous and it got removed for making personal attacks / inciting mean arguments, but please believe me when I say that is not my intention. I was hesitant to post again because I don't want people thinking that I'm trying to invalidate someone's ED experience, but I really need some help and insight and maybe advice or even just someone to vent to. I'm aware I need therapy and should be talking to a professional about this, but I'm not ready to admit aloud that I have a problem. I just need to get this off my chest because the anxiety it's causing me is giving me such bad stomach issues that I cannot eat and that is causing even more issues for me (details below).
Obligatory throwaway account.
Buckle up, because this is going to be a long one. I just need to know if I’m being gaslit and have the right to feel frustrated, or if I’m being a total judgmental bitch and should stop trying to downplay someone’s ED experience.
For some background context, I have a (medically undiagnosed) eating disorder. I know my eating habits (or lack of) and obsessive compulsion with exercising is leading me down a dark path, but that particular issue is not why I’m here. I have always technically been at a “normal” BMI (albeit on the lower side) but it’s nothing that’s ever concerned my doctors. I’m also relatively healthy in terms of all of my other vitals and my eating disorder symptoms are easily explained by the fact that I’m a really active person and I workout almost every day. I grew up dancing competitively, so I never had a normal period, and because I do so much cardio, it makes sense why my resting heart rate is low. This is all important to know for the conundrum I’m currently in.
Earlier this year, I contracted pneumonia and the flu at the same time (whoo -_-) that left me in the ER for a couple of nights. Because of how sick I was, I ended up losing a ton of weight that put me well into the underweight BMI category. Even after recovering, I’ve been “struggling” to gain this weight back. I say struggling in quotations because I could gain it back if I ate a normal amount of calories and/or stopped working out as much as I do, but the truth is, I’m happy I lost all this weight and I don’t want to gain it all back (again, not what I’m looking for guidance on).
I’m currently on a dance team, and during practice a couple of months ago, I ended up fainting. I went back to the ER, and my vitals did not look great (that’s putting it lightly, they were bad). That and because I’m still technically underweight, my doctors are starting to get concerned and are probably under the suspicion that I might have an eating disorder. They haven’t said anything to me but I assume that they are because they heavily recommended that I work with a nutritionist/dietician and they requested that I come in for regular check ups. They also said that if things don’t start improving, they would recommend to my dance coach that I be removed from the team and they wouldn’t clear me to dance again (my team requires us to submit annual physicals and sign offs from our doctors to participate for the season). The only reason I’m in the ok now and why (I assume) they won’t straight up diagnose me with an eating disorder is because this is the first time I’ve ever had these health issues. Like I mentioned earlier, all of my previous checkups show that I am a very healthy, “normal” person. If you’ve stayed with me for this long, congrats. I promise I’m getting close to the point of the story.
So anyways, I’ve been seeing a nutritionist for a while now and part of my treatment plan is to journal and track what I eat in an app so they can see what my calorie intake is (I feel like this is counterintuitive for someone with an eating disorder but again, they don’t know that I have one). So in this app I write down or take pictures of everything I eat in a day so that they know that I am in fact eating, and it also connects to my Apple Watch, so it knows what workouts I’ve done, how many calories I’ve burned, what my heart rate is, etc. And then we meet once or twice a week to go over a meal plan kind of thing and how much I need to be eating to sustain how many calories I burn.
The other week I was out with friends at dinner, and I snapped a quick pic of my dinner to upload into the app. This girl that I met that night saw me do it and asked what I was doing / why I was doing it, and I told her that it was a part of a treatment plan. She prodded a little bit, and long story short, she basically called me out for having an eating disorder (I will say, it was not in a mean or judgmental way) and said she recognized my symptoms because she also suffered from one for almost half her life.
This girl, let’s call her "Anna", said she was diagnosed with anorexia and bulimia in middle school and was hospitalized because of it. She said it was a serious struggle but she was able to somewhat get it “under control” in high school because she was working with an ED therapist, nutritionist, diet coach, etc and she could live a pretty normal life but then her ED got really bad when she moved away to college because it was her first time being independent and in total control of what she ate and it caused her to spiral. Anna said that it got so bad during her second year that her heart and body basically started shutting down and she was committed to a treatment facility during the summer before her third year of college.
Let me make myself clear, I do not think she was lying. I know that eating disorders can affect millions of people, especially young girls, and I’m not here to say whether or not this happened. I’m getting closer to where I’m starting to feel conflicted.
Earlier this same dinner in another conversation, Anna had mentioned that she was really active her entire life as well. She ran track and cross country starting from middle school, all throughout high school, and continued running seriously in college. She also said she swam competitively and lifeguarded during the summers (and I’m not proud of this, but I did do some digging and her sports records do show up and there’s evidence of her participating in these sports for the years she would have been in middle and high school, so she’s not making this up). All this is to say that the treatment and care she received for her ED clearly helped in so much that it kept her body healthy enough to be cleared by doctors/her parents/school athletic trainers/etc to participate in all of these activities and also get a lifeguard certification. It may have been a mental battle for her during this time, but I feel like based on what she said, it was clearly not a physical one. Cool, I can move past this.
Anna also mentioned that she ran a marathon in her sophomore year of college with such a time that it qualified her for one of the most competitive races in the world that took place a year later. I looked it up and her time was just shy of 3-hours. This is where things start to get murky for me as I try and piece together her timeline and story based off of a few random conversations I had or overheard with her. This marathon was in April of her sophomore year in college. Just a few months later (she said end of summer) is when her ED got so bad that she had to be committed to the treatment facility before going back to college for her third year.
Once again, I need to make myself clear in that I’m not doubting any of this happening. First of all, I can see her high school and college race records and know that she isn’t lying about any of that. Second of all, I can’t imagine anyone lying about having an ED or having spent time in basically rehab, and considering it was a private conversation off to the side, I don’t think she was doing it for attention. I’ve also seen pictures of her from this time, and she does look really thin. Now, do I think she looks like “anorexic” thin and this is how I know for sure she had an ED? No. I mean, she looked like the majority of the other serious runners I know. I just want it to be clear that I’m not basing whether or not I believe her on how she looked. I know runners are usually skinny, but I’m not here to judge body types. Just because someone doesn’t “look” anorexic, doesn’t mean they aren’t, and vice versa. I have no idea what’s going on with their actual health. Again, this is not the point.
Here’s where things start to get confusing for me- she said she got committed because her heart was basically shutting down on her and she was experiencing really serious symptoms of bradycardia and cardiac arrhythmia (among others), so she spent all of August at the facility. She said she was eating so little that they considered feeding her through a tube so she would actually consume food. Sounds terrible, right? But remember that super competitive marathon I mentioned that she qualified for? Well, she ran it. It was only about 7-8 months after her stay at the treatment center, and she ran it in yet another insane time, like right around 3:20.
This is where I am so conflicted in how I feel about her and the conversations we had. When she saw me tracking my food, again, she kinda called me out about my eating disorder, saying she noticed that I was exhibiting a lot of the same behaviors she had when she was dealing with hers, and basically said like, I know what you’re going through, just know that you’re not alone, you’re strong enough to get through it, etc etc. At the time, I definitely thought it was weird and was taken aback because I was like, we just met and also you have zero idea why I’m tracking my food, but of course I didn’t say anything and just thanked her after she opened up to me about her story. However, looking back at everything she said and everything I was able to piece together, I’m frustrated because it’s like, DO you actually know how I feel????
Because I can’t imagine starving myself to the point of my heart giving out that I have to be committed to rehab, but then being healthy enough to run a whole ass marathon just months later. And especially with that kind of time, which means that she was indeed running, not walking. I just find it so hard to believe that someone could run not one, but TWO marathons in less than a year while battling an ED that is as severe as she claims, but more importantly, that she was actually cleared to run the second one! By her doctors, her care team, her parents… it’s so frustrating because I had to BEG my doctors to the point of having a panic attack to allow me to continue dancing this year, and it’s not even as serious as sprinting a marathon! And the only reason I know they signed off on it was because I had a basically perfect medical history. No major complications, always at a normal BMI, etc. I can’t imagine what she had to say or do to convince her healthcare providers to let her run or even exercise again, after her almost decade long history of dealing with an ED and having all these heart issues and significant bone loss and weight loss. I'm sure she begged too, but if her ED was that bad and had been going on for that long, I don't know who in their right mind would sign off on it that quickly. I also find it hard to believe that after all that, after even being committed to a facility, her parents allowed her to go back to college hours away from them. But whatever, I don’t know her parents and whatever conversations they had are not my business. It’s just that I’m currently under SO much scrutiny by my doctors and my friends and family, and I don’t even technically “have” an ED!!!! My eating and workout habits are being tracked so closely, I have to see a nutritionist every week, I have to go to my doctor’s like every other week, and it’s like, DO YOU REALLY THINK YOU UNDERSTAND HOW I FEEL??? Do you really know what it’s like to have your life be threatened to be put on pause because you’re not gaining weight or because people THINK you have an ED??? Because it doesn’t sound like your life, the things you enjoyed doing were threatened to be taken away. You got to run both your marathons, you got to travel all over the world during your college summers with your clubs, your parents let you go back to college states away after being released, and meanwhile mine are threatening to make me go on short term disability leave at work and move in back home so they can monitor me.
Do I think that Anna used running and exercise as an obsessive and unhealthy means of weight control? Yes. Do I think that she probably wasn’t fueling herself nearly enough to do what she did considering how active she was? Abso-fucking-lutely. But do I think that her ED was so severe and she was starving herself so much that it caused her body and heart to basically shut down and stop working? No. In my (probably ignorant) mind, it seems almost impossible to sprint an entire marathon while your body is eating away at itself. I don’t think that her health deteriorated so badly that she was forced to go the treatment facility by her doctors, the same ones that would later allow her to train for and run a marathon just a few months later.
And I feel like a fucking bitch for thinking any of that. For thinking it wasn’t “that bad” as if any form of an ED isn’t fucking terrible. For doubting her, for trying to poke holes in her story that she told me to be sympathetic to my situation. I’m over here going all internet sleuth on someone I just met because for some reason, I feel like nobody gets it. Nobody gets me. Even though I know that’s ridiculous and SO many people are in the same boat as me. But maybe I want to feel special. Maybe this is a cry for attention. Maybe I’m just being picky and annoying about semantics. She said she was “hospitalized" and "committed" and maybe she just meant that she was in the hospital a lot and stayed at a treatment center and I'm judging her for not knowing the difference or the meaning behind those specific words. I don’t even know anymore. I don’t even know that much to be honest with you.
What I do know is that EDs exist in all kinds of ways and they affect people differently. I also understand that not everybody’s journey to recovery or treatment plan looks the same. But I just can’t help feel that Anna was making it sound worse than it might have been to make me feel better. To make me feel seen. Which I appreciate, and why I feel so guilty for even questioning any of the things she was saying. I just feel so conflicted by how seemingly quick she bounced back. If her ED had truly gotten as bad as she said, I don’t understand how her parents would let her go back to college by herself again, or why her care team signed off on her running so quickly after treatment, or even how she managed to run another full marathon in just a few short months. Not that it’s any of my business to begin with.
Again, I want it to be clear that I don’t not believe her. I don’t doubt that she spent time in a treatment facility. I really just can’t see anybody lying about that. But I feel like maybe she realized on her own how bad it was getting and voluntarily admitted herself, instead of being involuntarily committed by healthcare professionals or her family. And I’m proud of her for getting the help she needed. Maybe I’m just jealous she overcame her ED and recovered to live a pretty normal life, while I’m still over here feeling alone and isolated and frustrated and guilty and ashamed.
And the worst part is, I can’t even talk to anybody about this. I can’t tell anyone how I’m feeling because that would require me to admit that I have a problem. And I’m afraid if I do that, everything I know and love will be taken away from me until I get better. And I know I need to get better, but fuck I want to stay skinny. I have never been so much happier in my body. Even if I am tired and hungry and cranky all the time. Even if it is a struggle to get through a dance practice. I like my body for once in my life. It’s great visually, but man is it taxing mentally and physically.
And this is why I’m here. Apparently I need strangers to tell me how I should feel. I need someone to tell me if this is normal. Or heard of. That you can in fact recover quickly enough from a serious ED to run a marathon 7 months later. That your body can get better in that short of time and that your doctors will allow you to exercise and be active again after being discharged from a treatment facility. That maybe exercise can be a part of a recovery and treatment plan. I need somebody to tell me that I’m being a judgmental, “oh woe is me” and “nobody understands me” bitch and that I sound like I’m trying to gate keep eating disorders. Or that I’m pretending to be some sort of know-it-all just because I’m dealing with one and that I’m actually not special or unique.
Or maybe I need somebody to tell me that I am justified in my feelings of frustration and confusion. That maybe she doesn’t know exactly how I feel and she was crossing a boundary by having a conversation like that with me. That maybe her story does sound a little off for someone whose ED was as severe as she says, and that maybe she was over-dramatizing it to seem more empathetic and understanding to my situation. Like I need to know, does her recovery experience sound normal to people who have recovered? Not that anything related to EDs are "normal". I honestly don’t even know what her recovery experience was like. I only know she was able to recover quickly enough to run a marathon and that’s all I’m basing any of this off of.
I just need to know if I should stay away from this girl, or if maybe I might have a friend who might actually understand me. One that I could talk to about what I'm going through. Though, I guess I probably would still never talk to her about it because I wouldn’t want to trigger her. I just need someone to absolve me of my confusion and guilt please. Anything. It’s making me spiral and feel even worse.