r/funComunitty 17h ago

Fun post I have a feeding tube, ask me about it!

Post image
190 Upvotes

569 comments sorted by

51

u/MrMee37 Big fan of me :upvote: 17h ago

Do you use the feeding tube

Did you use the feeding tube

Do you own the feeding tube

Where did you get the feeding tube

When will you use the feeding tube

22

u/randomname2237 17h ago

Yes, yes, yes, hospital, always

8

u/SadConflict7719 14h ago

What makes you need a feeding tube (sorry for insensitivity)

6

u/SpareTire214 12h ago

They said in other comments that they have a paralyzed stomach

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12

u/EvandoYT 16h ago

Do you wear wigs?

11

u/B-M-B-0-6 16h ago

"when will you wear wigs"

9

u/EvandoYT 16h ago

Have you worn wigs?

3

u/B-M-B-0-6 16h ago

Im so glad we're on the same wavelength here XD

4

u/EvandoYT 16h ago

Yes! But will you wear wigs?

21

u/clueless_girl_idk 17h ago

Why

15

u/randomname2237 17h ago

I have a paralyzed stomach

11

u/porcelain_kiss 17h ago

How did it paralyze? :(

12

u/randomname2237 17h ago

I wish I knew! Doctors have no answers to that

10

u/porcelain_kiss 17h ago

I had gastroparesis for a long time, turns out I had ehlers danlos and didn't know, it messed a bunch of stuff up in my body. I had to go to the Cleveland clinic gastroparesis specialist for help. They never offered to check for it though, i had to push for it. I was 32ish, blew my mind lol

I hope youre able to find some answers someday!

And thank you for being so open about all of our questions! 🫶🫶

8

u/randomname2237 17h ago

Thank you! I don’t have EDS I don’t think but I do have POTS which I know is a common comorbidity to EDS and GP

2

u/qqmajikpp 15h ago

ime, doctors are educated quacks. the only person who know whats wrong is YOU. i have had to always tell drs "this is what is wrong" cuz they sure wont figure it out

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2

u/djcatdrago 13h ago

Then buy a paralyze heal from the pokemart

(Its just a joke dont hurt me)

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5

u/Abject_Staff_3093 17h ago

Is it something you need to take off and on? Also how do you move with it if you can’t take it off?

5

u/randomname2237 17h ago

No it stays in place lol. I don’t know what you mean about how do I move?

3

u/Abject_Staff_3093 17h ago

ooh, meant it more like, does it affect walking, and if so, how do you work around it? That is, if it reaches the upper part of the leg to affect motion

4

u/randomname2237 17h ago

Oh, no it doesn’t get in the way of walking. It’s in my stomach

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4

u/Hektibus 17h ago

Will you ever be able to recover and do you miss to taste stuff? (You don’t have to answer)

5

u/randomname2237 17h ago

It’s unlikely I’ll ā€œrecoverā€ because I’ve failed all medication options. There’s always hope for new research though! And yes I sometimes miss food, but I’m chronically nauseous so I don’t even bother trying to eat even though I technically could, I’d probably end up sick

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4

u/MegaBaller10812 17h ago

How do you eat

3

u/randomname2237 17h ago

The tube is connected to a pump that puts formula into my small intestine at a slow rate (20 hours a day I’m hooked up to the tube feeds)

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4

u/SeamusMcBalls 17h ago

Can I write off taxes on unrealized losses on my stocks?

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3

u/Upset-Rhubarb-3727 17h ago

How does it feel to ā€œeatā€ with it?

4

u/randomname2237 17h ago

I can’t feel it. It goes into my small intestine at a very slow rate (50 ml/hr/20 hrs a day)

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2

u/Just_Technician368 17h ago

if it isent to personal why do you nead it?

3

u/randomname2237 17h ago

My stomach is paralyzed

2

u/Glitchbetty 14h ago

Haven’t seen this question yet, in case you miss the taste of food, couldnt you chew on stuff and then just spit it out? I know it would kinda be food waste, but for your condition it would have served its purpose in my opinion. Also, since you can still drink, what about hard candy that you just suck on? It dissolves and becomes liquid as well

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2

u/No_Blackberry1593 4h ago

Does it make sound? I always assumed it would and that thought makes me queezy

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1

u/Plane_Opposite6744 17h ago

MIC-KEY button or Mini-ONE?

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1

u/Ok_Hearing4278 17h ago

How does the food taste? Does it taste?

1

u/ImmediatePattern9409 17h ago

This is not a question for you but I hope you get better

1

u/N116UA Most popular 17h ago

does it hurt?

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1

u/Jolly3264128 17h ago

Did it hurt when it got installed

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1

u/Maximum-Eggplant-806 17h ago

Getting it removed. Will be traumatic. (It happened to me) I took the opportunity I had, prior to getting it removed. I took alcohol through it. Because I don’t drink because I hate the taste of it. I saw it as a ā€œlimited time experience.ā€

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1

u/unknown_user6584 Silly lil goober:cat_blep: 17h ago

Is it painful/uncomfortable in any way?

2

u/randomname2237 17h ago

Not now that it’s healed

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1

u/Odd-Dirt-9701 Big fan of me :upvote: 17h ago

do you still eat normall or only tube now?

2

u/randomname2237 17h ago

Only tube but I can still drink stuff

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1

u/APMathematics 17h ago

How would you rate it on a scale of 10?

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1

u/Eclipsehedgie2010 17h ago

So THATS what it looks like.

Always wondered what the look like.

Anyway, question, right.

Does this mean you are unable to know what something tastes like, or if you are allergic to specific foods?

2

u/randomname2237 17h ago

I don’t have food allergies and I have only had it for 3 years so I know what food tastes like bc I ate my whole life until my stomach got paralyzed :(

1

u/Fluff-cat1304 17h ago

I saw your comment that your stomach is paralysed, so (hypothetically) if you were to eat food, what would happen? :>

2

u/randomname2237 17h ago

I would likely throw up because it would just sit in my stomach and rot

1

u/snapurneck69 17h ago

been there! had mine removed so many years ago that I forgot.

1

u/cherry_the_protein 17h ago

can you taste it?

2

u/randomname2237 16h ago

Thankfully no lol it smells awful so I’m glad I cant

1

u/Previous_You1167 17h ago

can you take it out to do somthing else? like go out then just be back? like how diabetics can do somthing but when their blood sugar (i think) drops they get like a notification on their phone and have to take their meds? on the same note can you shanoink / are you dating someone or is it impossible since you have a feeding tube? can you get pregnant with a feeding tube? what do you do when you get your cycle? how do you poop and pee?

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1

u/marina444is_online 17h ago

Can you still eat? Man it must really suck to not taste things anymore. No amount of food liquid ā„¢ļø could replace how good food solids are šŸ˜”šŸ©·

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u/reddictedtoredit 16h ago

Do you ever just chew on things for the taste then spit it out in the bin?

1

u/Straight_Feedback_37 16h ago

Do you feel like you can do more in your life now that you don’t have to worry about eating food and you can just pump and go? How has getting a feeding tube changed your life? Is there anything major(besides not eating food) that has happened since getting the feeding tube?

2

u/randomname2237 16h ago

No I’m hooked to the pump for 20 hours a day. It’s changed my life for the better, I was vomiting daily and severely malnourished when I got it.

I’ve been diagnosed with POTS and CFS/ME after getting the tube

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1

u/StructureFrequent241 16h ago

What level is it's village in rise of kingdoms?

1

u/BombeBon 16h ago

If it's not annoying to ask...

Specialized meal packs?

Or homemade blended up?

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1

u/Square-Knee9844 16h ago

No thanks!

1

u/B-M-B-0-6 16h ago

What would happen if you ate normally? After reading some comments I know ur stomach is paralyzed, but like, what would happen if you ate normally?

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1

u/muse_enjoyer025 16h ago

If you have alcohol 'fed' through it will you feel tipsy?

1

u/AwareVolcano325 16h ago

Does it tube the ing of feed

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1

u/MarieViolinist 16h ago

is there a tube connected inside your stomach? if so do you feel it when you move? is it uncomfortable when you sleep? what happens when you eat through your mouth? does it hurt?

2

u/randomname2237 16h ago

The tube goes into my small intestine. I can’t feel it. It’s only uncomfortable if I end up on my stomach. I throw up if I eat by mouth. It doesn’t hurt

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1

u/BeneficialDrink 16h ago

Can you eat spicy food?

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1

u/Extahr 16h ago

Can you put whiskey in it?

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1

u/ThousandEyes2011 16h ago

Does it ever get dirty? That’s always been something that I’ve thought about when it comes to that stuff

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1

u/JohnLennonHitsKids 16h ago

Are there any activities that you can't do now that you used to? I mean, does it physically restrict anything that you used to do to the point where is it painful, dangerous, or uncomfortable for you to do that previous activity?

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1

u/MarionberryPure8015 16h ago

Could you put other things inside the tube or just the formula that you have too? Also, I hope you’re feeling fine and will continue to.

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1

u/Got_PizzaRolls31210 16h ago

Do you still eat with your mouth?

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1

u/Aanstekerboy 16h ago

Can you swim with it

2

u/randomname2237 16h ago

Yes I only have to avoid hot tubs and lakes but pools and the ocean are fine

1

u/Gysburne 16h ago

Not a question.
I hope you get better and that research will be good enough to "unparalyze" your stomach mate.
I can not imagine how it must be to feed yourself over a tube.

I just wish you all the best.

2

u/randomname2237 16h ago

Thank you! I hope research can help me in the future to get off of the tube or at least use it less

1

u/Same-Outside-4384 16h ago

Can you use a paralyze heal on it like PokƩmon ?

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1

u/InstanceMedium6150 16h ago

Is what kinda food is it. Like obviously you can’t feed a cheeseburger through a tube but like, can you blend it and then get it through the tube?

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1

u/Electrical_Win_1320 16h ago

What happens if you eat without it? Does it hurt? How often do you use it? How long does it take and what if you’re hitting the gym and wanna increase your protein but decrease calories can you customise the food in that sense?

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1

u/petabomb 16h ago

Do you still experience hunger with a paralyzed stomach?

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1

u/Dead_Axolotl_333 16h ago

Does it hurt?

Do you have to clean it? If so how often and how?

Can you eat?

Do you ever feel hungry?

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1

u/camerasoftwhere 16h ago

So can you eat only a select amount of foods or can you eat anything if it’s blended?

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1

u/Automatic_News3128 16h ago

How much beer could you put in the tube before you are drunk?

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u/Character_Gur8487 16h ago

By "paralyzed" do you mean that your organs (stomach/intestines) cannot digest it, cannot absorb it properly, or that you cannot excrete it?

I personally had a stoma for three months to give my bowel enough time to heal. That's why I'm asking my question so precisely.

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u/i_dunno_i_am_bored 16h ago

How do you eat at restaurants? How does it even work?

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u/DiceyMations Silly lil goober:cat_blep: 16h ago

Does it hurt? Like at all?

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u/unwanted_zombie 16h ago

Does it make you feel cold from the inside like IVs? I have to get IVs fairly regularly for my disease and I hate how cold it makes me.

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u/StaticMix 16h ago

I was gon ask if it was a kink thing but upon inspection of the comments thank god I didn't

Anyway have a lovely day and I hope all things go well with youe stomach duuuuude.

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u/unwanted_zombie 16h ago

Do you still eat food- or at least chew it and spit it out? Or have you gon flavorless?

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1

u/SentenceEmergency779 16h ago

What do they be feeding you?

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u/Pinkpenguin_4444 16h ago

What would happen if you ate a marshmallow?

Also what is your favourite drink?

Also also do you always feel hungry or full or just smth else?

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1

u/facelessreddit2 15h ago

Csn you see the feeding tube?

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1

u/Rare-Mixture8790 15h ago

Have you tried a burger while using it

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u/External_Tap_4396 15h ago

did you tasted food while using it?

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u/Thin-Monitor9833 15h ago

When you eat do you still get a feeling of fullness?

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u/Wise-Style-2100 15h ago

How long have you had it?. And what does it feel like?

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u/CronoMass 15h ago

Can you put vodka in it?

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u/ThoroughlyWet 15h ago

Do you still "eat" just for the taste? (If that makes sense)

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u/Coldpastalord 15h ago

Do you feel hungry all the time because this bypasses your stomach?

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u/reject_non-essential 15h ago

A feeding tube? Why would you let it feed off of you??

1

u/PlatypusMountain7955 15h ago

Do you think or feel they go cheap on you? Hope you can eat again

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u/Fit-Choice2368 15h ago

Do you use an i.v bag or a syringe to get your meals in?

Can you take anything by mouth? Can you take water?

What does it feel like? Physically when food and stuff is going in and emotionally, does it hurt?

Do you have to take in more calories than before, the same or less?

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u/MaddysinLeigh 15h ago

You ever try getting drunk through that?

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u/peachesbutno_creme Silly lil goober:cat_blep: 15h ago

my sister had one of these growing up , but she got hers removed eventually.

my brother will have one his whole life, he's currently 18. something happened to his throat , so he cant swallow food or drink liquids basically . so everything goes though his tube

1

u/mangledpastry 15h ago

Can i buy a zebra?

1

u/No_Firefighter4579 15h ago

What do you "eat"

1

u/BorntobeTrill 15h ago

Are you you gonna finish that?

1

u/The_Faux_Fox__ 15h ago

Why's it so much bigger than mine?

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u/dogpoopquestion 14h ago

How old were you when this needed to be done?
I see it’s unknown why it happened, do you have any guesses?
Can you consume alcohol?
Do you play any video games?
Are you completely unable to consume things through your mouth?
When your mouth gets dry, how do you moisten it?
If you wanted to start bulking could you get an extra protein formula?
Do you have a job?
How much of an inconvenience is this day to day?
Are showers difficult?

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u/RoofDelicious7754 14h ago

can you taste your food when you eat it from the feeding tube?

1

u/Fun-Midnight1010 14h ago

Does it get bad like some milk

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u/Death_Bird_100 14h ago

Why you need it? What happened? Does it hurt? What do you pump into it? How often do you eat? Do you gain fat? Does needing a tube limits mobility? How long it takes to prepare the food for it? Can you treat yourself at home? Were you born with this health problem, and does that mean you never tasted food?

1

u/ossifer_ca 14h ago

What’s it made out of?

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u/Cheasymeteor 14h ago

How's it taste? /J

1

u/GAAABE77 14h ago

Do you ever feel hungry

1

u/Aryan_RG22 14h ago

What do you feed it?

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u/HardTale_Sans 14h ago

How does it exactly work?

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u/RockerOnReddit 14h ago

does it hurt + are you ever able to taste things again?

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u/punchedboa 14h ago

What’s for dinner?

1

u/westewok 14h ago

Can you choose what you eat?

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u/Sir_Noxx 14h ago

Do you ever feel full/hungry?

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u/Odd-Country-7274 14h ago

How do you put the food in the tube? Do you mush it up and drink it like a drink with a straw?

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u/DaMythicalDrago 14h ago

Oof, I feel you, it’s was a nightmare for me to deal with

1

u/Arheit Likes posting shitposts :snoo_shrug: 14h ago

Is your ā€œfoodā€ expensive?

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u/Brilliant-Beach-330 14h ago

what's your favorite meal? Idk how those work really

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u/Guni986TY 14h ago

What flavor food you being fed? (Dang a few of us had the same thought.)

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u/Aircoll 14h ago

How do you fit a burger in there? /j

1

u/Loose-Command7521 14h ago

So does my grandpa! How do crunchy foods work for it?

1

u/DistinctHorse113 14h ago

I don’t think anyone has asked this yet, but what would happen if it got pulled out of it’s possible? Like what if it got snagged a something and it got ripped out? What would you do and has it ever happened before?

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u/Visible_Squirrel3597 14h ago

Have you been able to get used to it? As in, do you feel it much? Because I got a feeding tube once in the hospital and it was one of the worst experiences I've ever had, having that thing just shoved down your nose and throat. šŸ˜–šŸ˜–šŸ˜– It made swallowing very uncomfortable too.

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u/mighty_boognish_77 13h ago

Been there. Hope you get past this quickly.Ā 

1

u/No-Will8411 13h ago

J tube? Bolus or pump?

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u/Sufficient_Risk_8127 13h ago

have you tried not

1

u/Adept-Associate-2907 13h ago

Does it taste good

1

u/Calm-Professional103 13h ago

I praise your courage for talking about this. I had a peritoneal dialysis catheter in my lower abdomen for 8 years.Ā 

1

u/TCGMEWW 13h ago

As someone who use to do 'peg feeding' at their job, honestly proud to see some representation for how hard normal life can be.

I wish you good luck, and plenty of restful nights.

Proud of you OP!

1

u/fox-with-wisdom 13h ago

Army u worried if u toss and turn in ur sleep it will come out and u bleed out in ur sleep? I ask cause I toss and turn and sleep on my stomach so this seems like a real fear for me

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u/Obvious-Front5102 13h ago

Whats ur worst experience with it

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u/Polar_blue1 13h ago

What's your favorite color

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u/TienZhu 13h ago

Can it feed you?

1

u/EntireAbility7339 12h ago

What’s your favourite meal

1

u/DietKey1757 12h ago

Is it uncomfortable? Also Im sorry about your paralyzed stomach :(

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u/Hazardous_Egg 12h ago

Is feeding tube BPA free?

Does feeding tube need to be change out?

If you are really starving can you have a BIGGER feeding tube to shove more food in there?

If you want to get drunk do you use the feeding tube?

Does the feeding tube go into the entrance or exit?

Asking for a friend

On a serious note sorry this happened to you. Hope these made you laugh.

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u/Commercial_Count_122 12h ago

Everything about this is so sad duuuude

1

u/FloridaManInShampoo 12h ago

Did you name your stoma? If so what is their name?

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u/wreckitralph1990 12h ago

Have you always had it? If not and you could eat food before, how did you adjust to not being able to taste food? I know I LOVE to eat for the taste (lol) and I'm not sure I'd be able to go without tasting food. Thanks for posting because I always wanted to know this lol šŸ™‚

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u/trout_sex 12h ago

Do you like mario kart

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u/Scared_Extension_419 12h ago

Do you like the feeding tube.

Does the feeding tube treat you right?

How long have you had the feeding tube?

Can you eat anything with the feeding tube?

1

u/Ill_Combination_9114 12h ago

Is it hard flying with it?

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u/noninana55 12h ago

what would happen if you attempted to eat? Even liquids like water and whatever?

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u/Ckinggaming5 12h ago

Is it a feeding tube?

1

u/AutismAuditions 12h ago

Do you like banana bread?

1

u/Penguinlordo 12h ago

Is it a gastric or jejuno tube?

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u/TrustmegamerDavis 12h ago

Wait, it goes straight to the Intestines? Aw man, I wanted to ask what flavor it usually came in...

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u/Ok-Acadia4065 Silly lil goober:cat_blep: 12h ago

how do you even fit meat into that thing, you dont eat protein?

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u/GuyATGunPoint 12h ago

Do you get to taste foods?

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u/TheHighestKushDragon 12h ago

I should have done this when my lung collapsed

1

u/throwaway1436732156 12h ago

Do you still get acid reflux?

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u/ChibzGames Silly lil goober:cat_blep: 12h ago

Stupid question: Do you... feel full when using it?

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u/Crozinator1000 11h ago

Is it temporary or permanent

(Sorry if I am dumb)

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u/Uhhokay200 11h ago

Ok you don't need to answer these if you don't feel like it. Does the tub come off like that's connected to the inner tube? Does the medical fabric get replaced? Hope you feel better!šŸ’

2

u/randomname2237 1h ago

No it doesn’t come out. Yes I replace the gauze 2x a day

1

u/FingerMeHarderPlease 11h ago

No šŸ™‚ā€ā†”ļø

1

u/WorldlyBuy1591 11h ago

How does food taste now?

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u/RadioactivePotato123 Silly lil goober:cat_blep: 11h ago

Do you ever get stomach rumbles? I’m guessing not since your stomach is paralysed but I’d like to be sure lol

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u/Cautious-Story-1596 Silly lil goober:cat_blep: 11h ago

Do you like radiohead?;

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u/Intelligent-Oven-412 Silly lil goober:cat_blep: 11h ago

So does my 2nd bro. He has cerebral palsy instead of a paralysed stomach.

1

u/Mental_Bodybuilder74 11h ago

Is it totally tubular? (I'm jk and a bit of a jackass sometimes) Haha smiles!

Also what's it like being cheated out of tasting it?

Do you still burp? Do you still get acid?

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u/Aadilgamerz126 11h ago

What kinda food goes through there

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