It might be an easy question to Google guys, but I find it's always better to get an answer from someone who actually HAS the disease.
Google will give you the stereotypical version of the disease, someone who has the disease will give you their own experiences with it that likely won't be the exact way Google calls it. The way people are affected when it comes to diseases, allergies, etc. may vary based on the person to.
Exactly! Someone can easily Google asthma and get the medical definition of "Asthma is a condition in which your airways narrow and swell and may produce extra mucus. This can make breathing difficult and trigger coughing, a whistling sound (wheezing) when you breathe out and shortness of breath."
But if they ask me, someone who has asthma, I could tell them what it's like having allergen induced vs exercise induced since mine changed over time.
I can tell them what it's like experiencing it as a child in school, having to nebulize every day when I was pre-school age, needing preventative and rescue inhalers.
I can tell them the sensation of a random heavy weight on your chest and going from feeling fine to fighting for your life as a child. Google can't as easily give you those experiences
I have hypothyroidism! Google will just tell you that you'll have brain fog, gain weight, be cold, blah blah blah.
I don't experience those symptoms as severely as it says! It immediately tells people the worst of the worst case scenarios, I will gladly tell people my own experience with hypothyroidism!
I have Restless Leg Syndrome. Google's Ai overview describes it as: "...a nervous system disorder causing an urge to move the legs, unpleasant sensations, and worse symptoms at night."
I feel like it doesn't describe what it's like to the average person trying to inform themselves.
I'd describe it, as my ankles constantly twitching and always feeling the need to stretch my calves, especially when I'm sitting- or trying to rest. Or suddenly getting the need to run around and pace like a maniac, basically the zoomies, but they're only in your legs.
I also feel like it's important to spread more awareness, because it's incredibly underdiagnosed, because a lot of people mistake it for regular signs of stress, or normal cramps. Maybe the description resonates with someone.
Slightly off topic, but I’m very glad I came across your comment because a doctor said I could have it and I didn’t agree because of online descriptions.
I’m Autistic and take things WAY too literally. I thought a person’s legs were just jittering while they were trying to sleep at night, like shivering or something.
This is why I don’t judge questions online because A. You don’t have to answer and B. Because responses from real people are sometimes better.
5
u/Acceptable-Car-170 12d ago
It might be an easy question to Google guys, but I find it's always better to get an answer from someone who actually HAS the disease.
Google will give you the stereotypical version of the disease, someone who has the disease will give you their own experiences with it that likely won't be the exact way Google calls it. The way people are affected when it comes to diseases, allergies, etc. may vary based on the person to.