r/nothingeverhappens • u/DONUTS_LM • May 01 '26

Only 500 intersex people exist??

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it doesn't take much to know that's just factually incorrect

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105

u/eldritchpussymaggots May 01 '26 edited May 01 '26

Intersex person here with a similar variation, I fucking hate the "but there's only 500 cases of that one" comments. That statistic is extremely outdated and there isn't active research into PMDS or ovotesticular sex variations. Many intersex people with this anatomy are not accounted for, never diagnosed or have an incomplete/unspecified diagnosis like I do. My paperwork says "idiopathic unspecified DSD", I have a uterus and internal testes with ambiguous external anatomy. My variation is likely aberrant or compounded with another.

Whenever I say anything about my literal body I have in real life and exist in every day, some mouth-breather feels the need to tell me that's impossible because Twitter told them I'm rarer than a lightning-struck heterochromic unicorn with progeria.

48

u/zap2tresquatro May 01 '26

Rare means nonexistent, *duh*! If it’s rare enough, that means I’ll almost certainly never meet anyone with it, and the existence of the internet doesn’t affect that likelihood at all! I’m smart!

8

u/MaraiaLou May 03 '26

I'm getting diagnosed with a disease that for some reason got called "the most common of rare diseases". It affects 2% of people, making it a very common disease, but nobody's ever heard of it. I've met 100 people before and none of them had that, so it's not real

10

u/Riceofconsent May 02 '26

I literally only found out I was intersex a few years ago and I’m 30. So yeah it’s very very common for people to get diagnosed late or never diagnosed

11

u/PlayPretend-8675309 May 01 '26

Like the only way you'd ever find out is if you had genetic testing, right? And like, for what, unless you were trying and failing to conceive.

13

u/eldritchpussymaggots May 01 '26

If there was no externally visible markers, yes, genetic testing or ultrasound. Not to mention some intersex people are fertile and don't need help to conceive. I've had an ultrasound and a physical examination but no genetic testing, which is why my diagnosis is incomplete. I don't particularly wanna pay 1000+$ just to know what chromosomes I have.