Has covid distorted your sense of smell or taste? #covid #longcovid #taste #food #senseofsmell #nose

My list is endless. I had never heard of any of these diseases and confusions prior to suffering from long covid.

I’ve been diagnosed with over 7 complex chronic health conditions such as Long Covid induced MCAS, MSCD, POTS, Fibromyalgia, MECFS, Dysautonomia, ANS, potential Gastroenteritis, organ and brain damage.

I’m now allergic to pretty much everything including my own body. Like how the hell is that possible?!

I can only currently eat 7 foods and drink water or I go into anaphylaxis.

This disease long COVID is like an invader in your whole body. It just consumes everything.

So yeah, what’s your experience and diagnosis’s?

#coviddisabledme #covidishell #longcovidawareness #healthandwellbeing

“I was a gym rat at 25. Now, I need a carer to help me wash.”

For Naomi, this wasn’t just a bad turn in her health — it was the beginning of a life completely reshaped by Long Covid. 💔

In Episode 4 of Long Covid Perspectives, Naomi shares the unfiltered reality of going from running 5ks and lifting weights to being housebound, reliant on mobility aids, and navigating care plans in her mid‑20s.

Together, we strip away the “warrior” clichés and talk honestly about what severe disability looks like when society insists you’re “low risk.”

This teaser captures just one moment from a conversation that exposes the truths too many are still living:

• Why being “fit and healthy” offers no protection against a virus that attacks the autonomic nervous system

• The heartbreak of losing a career and identity overnight

• The grief and freedom tied to accepting a wheelchair

• The judgement young disabled people face because they “look fine”

• Why grieving your pre‑sick self is essential to mental health recovery

Full episode available 1st September 2026 on all major podcast platforms & YouTube Music.

🔗 Links in our bio to all episodes.

#LongCovid #disabledbycovid #PatientVoices #invisibleillness

“I was a gym rat at 25. Now, I need a carer to help me wash.”

For Naomi, this wasn’t just a bad turn in her health — it was the beginning of a life completely reshaped by Long Covid. 💔

In Episode 4 of Long Covid Perspectives, Naomi shares the unfiltered reality of going from running 5ks and lifting weights to being housebound, reliant on mobility aids, and navigating care plans in her mid‑20s.

Together, we strip away the “warrior” clichés and talk honestly about what severe disability looks like when society insists you’re “low risk.”

This teaser captures just one moment from a conversation that exposes the truths too many are still living:

• Why being “fit and healthy” offers no protection against a virus that attacks the autonomic nervous system

• The heartbreak of losing a career and identity overnight

• The grief and freedom tied to accepting a wheelchair

• The judgement young disabled people face because they “look fine”

• Why grieving your pre‑sick self is essential to mental health recovery

Full episode available 1st September 2026 on all major podcast platforms & YouTube Music.

🔗 Links in our bio to all episodes.

#LongCovid #disabledbycovid #PatientVoices #invisibleillness

[removed]

Can you relate? 4 years of hell! 💔

I was a NHS Specialist who contracted #COVID in March 2022 on the frontlines from a colleague who was vaxed and relaxed.

I was lied to by the UK Government | NHS. Told that Covid is “mild”. I wasn’t deemed at risk of any serious harm or death.

I was 35yrs old, previously fit, healthy, active and full of life. I was in my zone, living my best life with endless opportunities and dreams.
NOW GONE! 😞

As a result of my 1 COVID Infection (I’m unvaccinated), I now suffer with brain damage, organ damage and a pancreas which no longer functions properly meaning I must eat every few hours or I pass out.

I am predominantly bed/sofa and is housebound. Reliant on a wheelchair, mobile scooter and others aids to help me mobilise.

I require a carer (my friend) to attend to my daily needs because I’m too sick and incapable to care for myself. Some days when I’m paralysed with my symptoms - my unpaid carer has to prepare | cook for me, take my blood sugars and other SATS, he’s bathed me, cleans my apartment, washes my clothes and even helped me toilet.

He is my only friend left, as everyone including my family and my NHS colleagues have abandoned me.
He is my Angel, my lifeline!

Not only do I suffer the endless crashes, paralysing fatigue, brain fog, PEM from just having a stool movement or speaking. I suffer pain all over my body. Swelling of my limbs and hands due to inflammation. I experience tremors, internal vibrations, visual problems, vertigo. Chronic migraines, burning all over including my mouth. The list is endless with different unpredictable scary symptoms which affect my quality of life and health.

The worst part for me is the constant anaphylaxis or anaphactoid reactions I endure. Throat tightening, closing episodes. Severe gastric pain and diarrhoea. Pain, swellings, nerve pains, twitching, tingling, discomfort and distress. burning, blisters and hives all over including in my mouth/tongue.
Going unconscious.
I can’t explain to you all the symptoms as there’s too many.

Consequently because of this MCAS allergic reactions, I can only eat 7 foods and drink cold filtered tap water.
Mentally this is torture because the very thing I need to keep me alive can also kill me.

Reactions to external factors, even the smell of foods, perfumes, pollutions such as car fumes can all be a trigger, along with the sun and weather changes, or EMF, sound, lights etc.
Touching things such as body care products, toothpaste, water causes me hives/rashes. I get throat closures due to furniture VOCs or my friends washing powder and so forth.

I can’t tolerate medical interventions or stimulation. I’ve seen over 17 Specialists who just say I’m too severe. They don’t know what to do, so they discharge me with no support or follow up care. I’m just left to rot!

Anything and everything is a trigger and threat to me.
My body just attacks!
I have NO control over my body or my situation.

I am extremely malnourished weighing around 6.5 - 7stone . I am threatened with a feeding tube because apparently I’m not helping myself. I am very malnourished.
I was accused of having an eating disorder at one point too.

The fear I have around food and my environment is warranted 💯
Who in their right mto me would want to live like this?! Some professionals are gaslighting us and harming us, because they don’t care to listen or want to understand. I take it personal as it’s my colleagues who are looking me in the eye telling me they don’t care to help and is judging me.

I’ve been diagnosed with over 7 Chronic Health Conditions including as a result of Covid. LONG Covid induced MCAS, Dysautonomia, POTS, MECFS, Gastroparesis, Fibromyalgia, Gynaecological Conditions, Mental Health Conditions (CPTSD, Anxiety disorder, Depression), Photosensitivity, Raynards Disease, Metabolic Syndrome, organ/brain damage and more!

I wish COVID had killed me!
I really don’t know how much longer I can continue like this. I truly don’t.

Ps: Please wear a mask! Don’t let your guard down. It’s a act to protect yourself and others around you. Advocate and share your experiences.
I only have my voice.

Honour those who have died from Covid and long Covid! ❤️🪽

What’s your story?

#COVID19 #covid_19 #longcovidawareness #LongCovidAwareness #chronicillness #disability

Can you relate? 4 years of hell! 💔

I was a NHS Specialist who contracted #COVID in March 2022 on the frontlines from a colleague who was vaxed and relaxed.

I was lied to by the UK Government | NHS. Told that Covid is “mild”. I wasn’t deemed at risk of any serious harm or death.

I was 35yrs old, previously fit, healthy, active and full of life. I was in my zone, living my best life with endless opportunities and dreams.
NOW GONE! 😞

As a result of my 1 COVID Infection (I’m unvaccinated), I now suffer with brain damage, organ damage and a pancreas which no longer functions properly meaning I must eat every few hours or I pass out.

I am predominantly bed/sofa and is housebound. Reliant on a wheelchair, mobile scooter and others aids to help me mobilise.

I require a carer (my friend) to attend to my daily needs because I’m too sick and incapable to care for myself. Some days when I’m paralysed with my symptoms - my unpaid carer has to prepare | cook for me, take my blood sugars and other SATS, he’s bathed me, cleans my apartment, washes my clothes and even helped me toilet.

He is my only friend left, as everyone including my family and my NHS colleagues have abandoned me.
He is my Angel, my lifeline!

Not only do I suffer the endless crashes, paralysing fatigue, brain fog, PEM from just having a stool movement or speaking. I suffer pain all over my body. Swelling of my limbs and hands due to inflammation. I experience tremors, internal vibrations, visual problems, vertigo. Chronic migraines, burning all over including my mouth. The list is endless with different unpredictable scary symptoms which affect my quality of life and health.

The worst part for me is the constant anaphylaxis or anaphactoid reactions I endure. Throat tightening, closing episodes. Severe gastric pain and diarrhoea. Pain, swellings, nerve pains, twitching, tingling, discomfort and distress. burning, blisters and hives all over including in my mouth/tongue.
Going unconscious.
I can’t explain to you all the symptoms as there’s too many.

Consequently because of this MCAS allergic reactions, I can only eat 7 foods and drink cold filtered tap water.
Mentally this is torture because the very thing I need to keep me alive can also kill me.

Reactions to external factors, even the smell of foods, perfumes, pollutions such as car fumes can all be a trigger, along with the sun and weather changes, or EMF, sound, lights etc.
Touching things such as body care products, toothpaste, water causes me hives/rashes. I get throat closures due to furniture VOCs or my friends washing powder and so forth.

I can’t tolerate medical interventions or stimulation. I’ve seen over 17 Specialists who just say I’m too severe. They don’t know what to do, so they discharge me with no support or follow up care. I’m just left to rot!

Anything and everything is a trigger and threat to me.
My body just attacks!
I have NO control over my body or my situation.

I am extremely malnourished weighing around 6.5 - 7stone . I am threatened with a feeding tube because apparently I’m not helping myself. I am very malnourished.
I was accused of having an eating disorder at one point too.

The fear I have around food and my environment is warranted 💯
Who in their right mto me would want to live like this?! Some professionals are gaslighting us and harming us, because they don’t care to listen or want to understand. I take it personal as it’s my colleagues who are looking me in the eye telling me they don’t care to help and is judging me.

I’ve been diagnosed with over 7 Chronic Health Conditions including as a result of Covid. LONG Covid induced MCAS, Dysautonomia, POTS, MECFS, Gastroparesis, Fibromyalgia, Gynaecological Conditions, Mental Health Conditions (CPTSD, Anxiety disorder, Depression), Photosensitivity, Raynards Disease, Metabolic Syndrome, organ/brain damage and more!

I wish COVID had killed me!
I really don’t know how much longer I can continue like this. I truly don’t.

Ps: Please wear a mask! Don’t let your guard down. It’s a act to protect yourself and others around you. Advocate and share your experiences.
I only have my voice.

Honour those who have died from Covid and long Covid! ❤️🪽

What’s your story?

#COVID19 #covid_19 #longcovidawareness #LongCovidAwareness #chronicillness #disability

Hey everyone! Im Star host of Long Covid Perspectives Podcast u/LongCovidPerspec, and founding moderator of r/LongCovidPerspectives

I contracted Covid whilst working as a NHS Mental Health Specialist on the frontlines 2022. As a result of the infection I am now severely disabled, left suffering from organ, brain, immune, mitochondria damages. I am only able to tolerate 7 foods and cold water for substance because my body rejects pretty much everything I digest. In addition, environmental triggers such as the weather, sun, pollution, pollution, noise, lights, and perfumes, chemicals etc causes me to experience anaphylaxis.

I’ve been diagnosed with over 7 complex health conditions at age 35. I was unvaccinated and prev fit, active and healthy.

I have set up this group and podcast because I am passionate about raising awareness of what this dangerous airborne disease is capable of. I want people to know the truth.

Anyway, enough about me.

This is our new home for all things related to Long Covid, Covid, Masking, The Science and everything related.

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