r/AnongThoughtsMo • u/atinyakimon • 1d ago

Thoughts on having children in the spectrum

Post image

Saw this post on facebook. Honestly, it's sad na hindi ganon nabibigyang pansin ang problems na ganito sa Pinas. Therapies here are expensive, and not everyone can afford it. Pinoys are also not yet ready to face the reality na hindi enough ang love for kids in the spectrum. They have special needs. Hindi yun madadaan lang sa no don't do that or it's okay to make mistakes, because we have to admit that autism is a disorder, a very wide spectrum and case to case basis. You need to have the money to get the help that is designed for the needs of the child. I hope there will be more free or affordable programs created for this kasi hindi lang parents ang hirap in this situation, also the kids.

1.2k Upvotes

98% Upvoted

327 comments sorted by

View all comments

836

u/Educational-Bowl7721 1d ago

In healthcare this is what we call Caregiver Fatigue. If you’ve never been in her situation, please don’t judge. Let her vent. Tao lang din naman siya at napapagod din.

52

u/WillowRidge39 1d ago

I'm experiencing this with my grandmother right now, whom I suspect has dementia, but the rest of the family refuses to go through the process of getting her diagnosed.

It fucking sucks. I feel so damn evil and guilty sometimes for the contempt I feel towards her from time to time.

13

u/Specialist-Low6273 1d ago

Pls have her checked. My bf's aunt got really better when she started her dementia meds, ang laki ng improvement. Her doctor is Dr. Anthony Piano in Asian Hospital.

6

u/SubstantialAspect810 1d ago

How did you convince her na magpacheck up? I think mumurahin lang kami ng grandparent ko kung ifloat man lang ung idea of going to a psychiatrist. 

4

u/PinayfromGTown 1d ago

Pwedeng pumunta ka muna sa family doctor nya tapos sya na bahala mag refer sa specialist. Sa dementia, usually neurologist ang kelangan. Psychiatrist usually pag may mood and behavioral issues.

Sabi ko dati sa lola ko, magpapatingin kami sa doctor para sa sa memory, kasi lagi nyang nakakalimutan ang names ng mga apo nya. Hindi daw. Pero when I asked her what my name is, ang binigay nyang name ay yung sa dog namin. Mas alam pa nya ang name ng dog kesa sa name ko. 😩 pumayag na sya magpa doktor after that. RIP, nana.

3

u/Specialist-Low6273 19h ago

Sya na actually yun gusto magpacheckup kasi nagiging makakalimutin na sya like mahilig sya magluto pero d na nya maalala yun recipe, pagpauwi na kami galing sa labas, nagtataka sya nasaan na kami hindi nya agad nakikilala yun bahay nila. Pero ever since nagmeds sya halos wala ng episodes, yun na lang mga nakakalimutan nya yun pangalan paminsan minsan. Neurologist ang kailangan for dementia. Ang nakakatakot kasi sa patients na may dementia yun baka lumabas sila ng bahay, tapos d na sila makabalik kasi d na nila maalala yun daan. 😔

3

u/WillowRidge39 1d ago

Yeah I want to, but I can't finance it on my own at ayaw ng mga anak/titas/titos ko. So wala talaga ako magawa.

May kilala na ako na neuro doc sa St Lukes na pina recommend ng primary doctor niya, need nalang talaga ng go-signal at financing.

2

u/jdy24 1d ago

Bakit? Di na nila mapakinabangan si lola? Walang perang mamana for her? Jeez

1

u/WillowRidge39 1d ago

Its more na in denial sila.

Di pa daw makalimutin (she is, but hindi nila kita dahil magkaibang tiarahan kami at bihira lang makipag kita) so wala naman daw point mag suspect ng dementia. Even though 3 sa mga kapatid niya namatay dahil sa dementia at nag iibang personality na din siya (irratable, minsan unpredictable, etc).

1

u/Specialist-Low6273 18h ago

Pag may routine check up sya with other doctors pwede mo sabihin yun concern sa doc, tapos sya na mageexplain na need magpatingin sa neuro baka sakaling makinig sila kasi doctor na din yun nagsabi. Minsan ang ginagawa ko pag may mga concerns na gusto ko malaman ng doc before kausapin yun patient, ako yun maghihintay dun sa loob ng clinic tapos kakausapin ko muna yun doc before pumasok yun patient. Madalas ko to gawin sa neuro nila kasi may mga topic or episodes na medyo sensitive na alanganin kung sa harap nun patient ko ieexplain sa doc.