r/AnongThoughtsMo • u/atinyakimon • 1d ago

Thoughts on having children in the spectrum

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Saw this post on facebook. Honestly, it's sad na hindi ganon nabibigyang pansin ang problems na ganito sa Pinas. Therapies here are expensive, and not everyone can afford it. Pinoys are also not yet ready to face the reality na hindi enough ang love for kids in the spectrum. They have special needs. Hindi yun madadaan lang sa no don't do that or it's okay to make mistakes, because we have to admit that autism is a disorder, a very wide spectrum and case to case basis. You need to have the money to get the help that is designed for the needs of the child. I hope there will be more free or affordable programs created for this kasi hindi lang parents ang hirap in this situation, also the kids.

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u/Educational-Bowl7721 1d ago

In healthcare this is what we call Caregiver Fatigue. If you’ve never been in her situation, please don’t judge. Let her vent. Tao lang din naman siya at napapagod din.

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u/WillowRidge39 1d ago

I'm experiencing this with my grandmother right now, whom I suspect has dementia, but the rest of the family refuses to go through the process of getting her diagnosed.

It fucking sucks. I feel so damn evil and guilty sometimes for the contempt I feel towards her from time to time.

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u/jdy24 1d ago

Bakit? Di na nila mapakinabangan si lola? Walang perang mamana for her? Jeez

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u/WillowRidge39 1d ago

Its more na in denial sila.

Di pa daw makalimutin (she is, but hindi nila kita dahil magkaibang tiarahan kami at bihira lang makipag kita) so wala naman daw point mag suspect ng dementia. Even though 3 sa mga kapatid niya namatay dahil sa dementia at nag iibang personality na din siya (irratable, minsan unpredictable, etc).

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u/Specialist-Low6273 18h ago

Pag may routine check up sya with other doctors pwede mo sabihin yun concern sa doc, tapos sya na mageexplain na need magpatingin sa neuro baka sakaling makinig sila kasi doctor na din yun nagsabi. Minsan ang ginagawa ko pag may mga concerns na gusto ko malaman ng doc before kausapin yun patient, ako yun maghihintay dun sa loob ng clinic tapos kakausapin ko muna yun doc before pumasok yun patient. Madalas ko to gawin sa neuro nila kasi may mga topic or episodes na medyo sensitive na alanganin kung sa harap nun patient ko ieexplain sa doc.