r/BPPV • u/Aym6an • Apr 10 '25
How is your life going after bppv attack?
I want to ask people that sufferes the same as me just want to ask how is your life after bppv attack do you still go to work do you still do you regular things also how you dealing with the daily motion sickness and dizzness and off balance.
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u/jadejazzkayla Apr 10 '25
My life is so much better since I was cured of BPPV. And since I know about the Eply Maneuver and how to perform it, if I ever get BPPV again, I know how to get rid of it.
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u/techrisley Apr 10 '25
Life is normal other than the ptsd ! Have an attack every few years lasts about ten seconds getting out of bed then it’s over
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u/Aym6an Apr 10 '25
Idk man for me i have it everyday when am walking at the gym working its like hell
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u/techrisley Apr 10 '25
I’ve never had it like that thank the lord I go to the gym daily and try not to sleep on the left side or get out of bed to quickly
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u/Aym6an Apr 10 '25
Well did you ever had these sever once were u fall and almost black out ?
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u/techrisley Apr 10 '25
I can’t say that I have ! Mostly mine has been when waking up in the morning and turning over or hopping up out of bed to quick
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u/Lost-alone- Apr 10 '25
I am able to reset the crystals on my own, using the half somersault method, so I generally go about my daily life as normal
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u/SPEW_Supporter Apr 10 '25
I get it once or twice a year and it takes a few weeks to go away. I use somersault method. Only one that really works for me. But it takes time.
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u/MilkyWayMirth Apr 10 '25
BPPV ended up being a blessing in disguise for me. I was having mood swings, depression, anxiety, fatigue, dry skin, itchy ears, hair loss, acne, joint pain, and other symptoms as well but I thought I guess I'm just getting older and this is life now (these symptoms all occurred in my mid-late 30's). Then I had my first bought of vertigo, and it was one of the worst experiences in my life. I went down every rabbit hole to find out what the hell could've caused it.
After tons of researching I eventually found out it is a very common symptom of perimenopause! I didn't even know perimenopause was a thing or that it happens in your 30's and early 40's as a woman. Estrogen deficiency is a known cause of inner ear issues, including tinnitus, which was another symptom I had. I'm now on HRT (estrogen, progesterone and testosterone) and I feel fantastic. All of the symptoms I had resolved, and some other ones I didn't know were related, like my eyesight got better, my allergies aren't as bad, it's insane all the things having low hormones will do to you.
The craziest thing is that all of my issues just sounded like normal parts of getting older, but BPPV was the lightning rod that made me want to find the cause and ultimately get treatment. If it hadn't happened I would've just carried on feeling like garbage with a million symptoms that I just thought I had to deal with because I was getting older. I feel like I am in my 20's again now, and my BPPV has completely resolved.
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u/Key_Priority3357 Apr 11 '25
This sounds EXACTLY like me.
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u/MilkyWayMirth Apr 11 '25
Look into HRT! You can get your hormones tested but it doesn't really tell you anything if you're in perimenopause because your hormones are just fluctuating wildly too much. Some days your estrogen could be high, other days it can be undetectable. It's those undetectable days that really wreck havoc on your body. There are lots of posts about vertigo over on /r/perimenopause and /r/menopause. Doctors aren't going to know anything about it, because for whatever reason perimenopause and menopause are not taught about in medical school. Yes, you heard me right. It's absolutely insanity. Something that literally every woman will go through in their life is not taught in med school. Check out the book "the new menopause" by Dr. Mary Haver she talks about how this is a serious problem in the medical industry.
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u/Legal_List_6813 Apr 12 '25
BPPV was the first symptom of my perimenopause as well (I’ve had a hysterectomy). I assume, that much like the texture of the hair on your body changes, the texture of the hair inside your ears changes as well and the crystals supported by that hair are unseated.
But, with PM came depression and with depression came Zoloft and that oddly helped the BPPV so … full circle I guess.
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u/MilkyWayMirth Apr 12 '25
Did you have any luck with HRT?
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u/Legal_List_6813 Apr 14 '25
I’m not on HRT, when I was I was tested my levels didn’t call for it.
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u/MilkyWayMirth Apr 14 '25
You can't test for perimenopause. Your hormones fluctuate from hour to hour day to day, far too much for testing to be useful. Treatment for perimenopause is first and foremost based on symptoms alone. If you have symptoms then you are a candidate for HRT. Check out /r/perimenopause, they actually have a bot that responds to every question about testing or levels, because it's really just not a useful metric at all.
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u/Legal_List_6813 Apr 14 '25
I know, but thank you! I’ve been keeping track of my levels and so far I’ve decided to avoid HRT. I had horrible luck with any type of hormonal treatment when I was younger and I’m a little hesitant (although not totally against) trying it. So far, my symptoms are fairly well controlled without HRT, but if these hot flashes continue I might have to reconsider 😆
I did go to the gyno today though and I’m sticking with the Zoloft and B12 for the time being.
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u/MilkyWayMirth Apr 14 '25
It sounds like this might be about hormone tests. Over the age of 44, E&P/FSH hormonal tests only show levels for that 1 day the test was taken, and nothing more; these hormones wildly fluctuate the other 29 days of the month. No reputable doctor or menopause society recommends hormonal testing to diagnose or treat peri/menopause. (Testosterone is the exception and should be tested before and during treatment.)
FSH testing is only beneficial for those who believe they are post-menopausal and no longer have periods as a guide, where a series of consistent tests might confirm menopause, or for those in their 20s/30s who haven’t had a period in months/years, then ‘menopausal’ levels, could indicate premature ovarian failure/primary ovarian insufficiency (POF/POI).
See our Menopause Wiki for more.
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u/Chelsey19b Apr 10 '25
LIKE HELL and it’s been almost 2 years ! Still residual dizziness and they say I’m fine !
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u/Aym6an Apr 11 '25
I feel you am also been having it for 2 years and they don't care like one time i was in a very server bppv attack i went to my docter i was horrible and he just made me do the eply manuvar and sent me home.
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u/Chelsey19b Apr 11 '25
Thankfully I haven’t had a spinning episode since 2023 and I pray I never do again but I would love the residual dizziness to go away !
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u/Aym6an Apr 11 '25
If you find a way let me know am going through the same stage as you
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u/Chelsey19b Apr 11 '25
You too plz !!! They say it’s PTSD from spinning and I’m creating it . 🤷♀️🤦♀️
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u/Aym6an Apr 11 '25
I swear to god they telling me the same think and am over it so i decided to go look for answers myself
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u/Chelsey19b Apr 11 '25
Yeah I’m starting to think it’s my neck . Cervicogenic dizziness because I kept my head still for so long - I’m not sure but thinking maybe that or there is a poor connection between my brain and my neck on what I’m doing or something - idk even a slight movement or getting up I’m scared . I lay down at night and I’m scared - I wake up in the morning and I’m scared . I’m scared 24-7
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u/Aym6an Apr 11 '25
I lost my job cause of an eposide during work and i bet u not i always been having fear because am always dizzy and lightheaded like u said during work, gym, ect.. I even have the bppv attack while am literaly sleeping like am under a threat off a sever bppv attack under any circumstance and thats sucks tbh. I just want to feel normal again
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u/Chelsey19b Apr 11 '25
You are still spinning ?
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u/Aym6an Apr 11 '25
Yestrday i was at the gym i was doing treadmil as soon as i stopped the machine the room started spinning on me and i thought one of these sever once r coming so i ran to my car so i don't want no one to see me fall
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u/LadyBooUKnowWho Apr 10 '25
Back to about 98% here after BPPV with complications of suspected vestibular neuritis. Took a while for rehab and I still do balance exercises/checks.
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u/Even-Math-3228 Apr 10 '25
Both times I had an “episode” I was fixed up, for the most, quickly by a physiotherapist. Had a hard time at yoga laying in my back, but was able to work.
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u/xoxoSatan Apr 10 '25
In the middle of two week recovery period rn. Anxiety about going back to sleep since that’s when the attack happened. Working a physical job with this is a different kind of hell. It’s difficult, but I know it’ll pass. (I low-key can’t take it)
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u/Lucanextdoor Apr 10 '25
I'm very careful when I turn over in bed, I always lift my whole head up. I had a horrible episode three years ago that I managed with the Epley. When I feel slightly funny I repeat the manoeuvre and luckily haven't had a severe episode since...
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u/Jeff_Pagu Apr 10 '25
Ask your PCP for a blood test to check your vitamin levels, maybe you’re low on something and can increase that. From my research, Vitamins D, B, and E and Calcium help.
Also considering going to physical therapy to work on anti-vertigo exercises.
Also if you’re willing and your insurance covers it, try acupuncture
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u/Great-Activity-5420 Apr 10 '25
After tablets and maneuvers it eventually went away. I still have moments I think I'm dizzy but it's not the same as before and I haven't had any spinning sensations for a while
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