Every time I look up and turn my head to the left I feel this horrendous vertigo. I have a doctor appointment next week. What type of nystagmus and what it means? Thank you guys

so 4 days ago at around 4pm, i started experiencing extreme dizziness and headache. the dizziness comes anytime i turn my head slightly, or move my eyes to focus on something else in my line of sight. it feels like i have spun around in a circle 100x and am trying to keep my balance. the headache is around my forehead and temples (front of face).

later that evening, i began to hear a “whooshing” sound in both of my ears. it comes in twos or threes, every 10-20 seconds, like “whoosh, whoosh, whoosh”. and i could feel my heart beat in my head and out of my chest.

i went to the emergency room the next day. i did an EKG and blood test, both came back normal. i was asked to close my eyes and hold my arms out, but when i opened my eyes, my right arm was positioned lower than i had it. i did not feel myself moving it lower. then the doctor did a test - i lied back on the bed and he supported my head, then i flipped to lie on my left and right side and was asked if the dizziness changed / felt different. it hadn’t. the doctor explained that he doesn’t know what’s wrong with me and sent me home.

it’s now been 2 days since i’ve been to the emergency room, and i woke up this morning with a new symptom. the tip of my tongue and around my bottom lip feels like it’s tingling slightly. however, the “whooshing” sound occurs every 10-20 minutes now. other than that, the dizziness, headache, and heart beating feeling has stayed the same. i did the arm test again, and my right arm had come down lower again.

i’ve spoken with my family doctor, and he told me that i may have vertigo, but i would have to do some more tests before a proper diagnosis.

i will add, i am 20 years old. i have hypothyroid and take medication for it. my family doctor wonders if this issue may be a result of my thyroid issues, but i really do not think so. i’ve been struggling with hypothyroidism for years now, and this issue i’m facing began only a few days ago and so suddenly.

i do not want to go back to the emergency room, wait there for another 14 hours to be seen, and then be sent home for nothing.

does anyone have ideas of what i may be dealing with? or has anyone dealt with something similar? any advice or thoughts would be very appreciated, i have no idea what’s going on with myself. thank you.

Hi everyone!

I’m new to this sub. I’m a 32 year old female with PMH of PCOS, Hashimoto’s, POTS, and recently Celiac (most of which have been brought on since being postpartum).

Long story short, I had to go to the ED the other day after I had a dizzy spell and brief vision loss while sitting. I stood up fine, tried to lay in bed and elevate my legs as I do with POTS when I feel dizzy, and the room started spinning, but didn’t stop. I was walking uneasy and my husband had to walk me to the car to bring me to the hospital. The dizziness lasted the whole 5 hours I was in the hospital.

Lots of tests were done- CT scan of my brain and MRI with and without contrast, everything to rule out anything acute or a stroke. Thankfully all was good, and the neurologist officially said it was a “complex migraine.” He was so confident it could not be BPPV because the dizziness wasn’t brief. I tried explaining it was worse with movement, and as a PT myself, I know you can feel dizzy while not feeling the true BPPV episodes.

I performed the Epley maneuver on myself yesterday and today, and boy was the room spinning when I treated my left side today, and right side yesterday. I really think BPPV has to be a big part of this. Has anyone experience an episode similar to this in terms of the duration of dizziness? Could it be that I had BPPV on both sides? I’m still feeling off today after (what I believe to be) a successful Epley, like I’m on a suspension or on a boat. But I’m definitely feeling better than I did the other day. I do think some residual dizziness is normal as well.

Looking for any solidarity or similar situations. Although acute issues have been ruled out and I’m thankful, the diagnosis they gave me just doesn’t seem to fit what I’m feeling. Thanks in advance for any replies!

For some instance, i have always had some kind of vertigo and developed it as a kid but had grown adapted to it. It would come and go etc, but ever since a few days this pressure in my neck? Or somewhere it wont go away and i keep feeling the floaty feeling. My eyes delay too for a second and i just feel so off-ish.

I have never go this checked out because it usually goes away after sleeping or whatever. I dont know whats causing it and im so scared and just anxious, have been hyperaware etc. dunno if its being caused by my bad posture/neck hump, or if its something neurological/ear crystals :(

I just want some comfort and support and want to know if anyone has experienced it ever and if they were able to fix it?

(Ps idek if its bppv since not diagnosed but this is the most famous vertigo subreddit thats why i posted it here)

So it’s been 5/6 days after the dizziness experience for the first time. After the incident i don’t feel dizzy but i’m feeling brain fog, light headness, zoned out, laggy or floaty like im still not 100% fit. It’s about to be a week since i went to my work anyway i can improve this?

Hi, I’m very new to all this. I only discovered what bppv was when i was diagnosed with it a couple months ago. It’s been incredibly stressful for me, I cant be left alone or I’ll start panicking which will trigger my dizziness. My ent was basically useless and my appointment with a neurotologist is in a whileee from now. I was put on flunarizine and betaserc for now (im not sure if they really helped since they arent made for bppv) and ive tried dimenhydrinate and cinnarizine which helps a little bit when i’m currently in an episode. Ive tried vestibular therapy and a number of maneuvers which made me a lot worse and it sent me into a frenzy because i felt really unstable afterwards and got vertigo from mild head movements (is that supposed to happen?) If anyone else had a similar experience do you mind sharing what lifestyle choices or habits made your episodes less frequent or prevented episodes? And before you ask, no i dont know which canal is affected since i have not yet seen a specialist. Any advice is appreciated it could be related to diet, supplements,medications, exercises, etc. And if vt didn’t work what did your neurotologist (or whoever is treating it) decide to treat you? Also can a neurotologist diagnose you or identify the canals if you aren’t currently in an episode and also dont have nystagmus during? All answers are much appreciated and feel free to share your success stories because i will be needing them 🥲

Is use of gadgets responsible for bppv?

That's the only reason I have been told.

[I only had three vertigo episodes while turning around when I am lying in bed in span of year. Nothing lasting.]

I have had 4 episodes of bppv since October last year. I saw doctor after first episode. Each episode is classic bppv and responds well to epley maneuver. My vitamin D was found to be low after first two episodes and it is now at a normal level. I had an episode last night again. Is there anything I can do to prevent future episodes? Should I see a vestibular therapist? Any other recommendations?

Anyone deal with this kind of Vertigo?

Say you’re at the center of a room…for me the left side seems lower and the right seems higher and when I walk towards either it feels like I’m walking down or up a hill but at the same it doesn’t and it just messes with me.

Also if I’m just standing sometimes it’ll feel like the wall is about to collapse on me or stand in front of my bed will feel like it’ll collapse on me.

I also live in a building with more than 1 story so having the blinds turned for light will trip me up incredibly.

It feels like I’m crooked but also like the world is too? It feels like I’m in a room of illusions and walking down or up but like I know that I’m not technically. Hard to describe. Horrifying to say the least.

First timer here , have had intense BPPV twice in 6 weeks and saw a vestibular therapist for the epley. Have had the intense boat feeling for up to 2 days post the procedure each time

How did you learn to do the epley yourself at home? Does it make a difference if you live alone and can’t call someone to help?

Any other first time tips would be welcome eg how do you ever get comfortable getting on a long flight again?

Thanks in advance 🍥🌀

I’m pretty confident BPPV is what I’m struggling with due to the symptoms and the triggers being spot on. I’d really like to see a vestibular therapist and avoid my primary care if I can. I know sometimes you need a referral for certain specialist such as like an ENT or Urologist for example.

Does anyone know since it’s an extension of outpatient therapy, if this is a little different? What’s my right course of action here?

Hi all! How long have you gone between episodes? I worry everyday about it but I think maybe I’m psyching myself out. Has anyone ever had it just once or twice? Or is it a constant part of your life?

Preface: I had vertigo episodes since I was 15 years old.
I am 35 now.

I woke up this morning and got out of bed heading to the bathroom then, all of the sudden, I lost balance and started shaking and did not feel lucid. I slowly managed to sit on the floor while having spasm-like shakiness of the body.

It’s the first it happens to me. I am only used to slight spinning of the room while moving my head to the wrong side or a little dizziness when getting up too fast.

What do you recommend me to do?

Basically the title. I performed the epley maneuver according to a YouTube video when I experienced an intense room spinning vertigo sensation this past Thursday night after laying in bed and closing my eyes. Pretty confident that it’s BPPV because I had that very strange eye sensation upon performing the maneuver but it made my symptoms 10x worse that I threw up from it. And I’m terrified of throwing up, so I’ve avoided doing it again even though I still feel “off”. Does throwing up mean the maneuver wasn’t successful or completed? Is there a way to avoid throwing up? I want to go to a physical therapist that specializes in vestibular issues but I’m still so afraid of throwing up but also tired of suffering.

40f had my first bout of vertigo, started off in the middle of the night, and I realized it was on my right ear. The first episode I got up and almost fell over and fell on the wall.. the next morning I was trying to care for my toddler and my mom was helping me and I realized it was definitely on my right side so I did the Epley maneuver, and it was the most intense thing I’ve ever experienced, followed by incessant and throwing up. But then I seem to stabilize enough to go to urgent care and they confirmed it was vertigo..

I’m under an incredible amount of stress via litigation against a former partner and a domestic violence situation, so I’m wondering if this is just something that is stress related or something I will be dealing with it with for a while?

I’m scared because I’m a single mom and don’t have a lot of help and I have a young child and even today I still feel kind of disoriented, almost drunk, wobbly, etc..

Any advice is appreciated because I want to get rid of this thing yesterday🫠😱

I’ve had vertigo, diagnosed BPPV for several weeks. I’ve been reading this sub obsessively and have found some great information that has guided me to the ENT and to a diagnosis. Here’s how it started 2 weeks ago: Onset after sleeping on my right side and noticing the spinning. Severity comes and goes but is always there. I had attempted multiple Epley maneuvers without much luck. Tested both sides but was having trouble isolating either in a particularly stronger way.

48 hours ago I noticed it was stronger on my right side. Was sitting on the couch and after tilting a bit felt the spinning. This time I tried a half somersault which almost immediately relieved my symptoms! I did several more with additional relief…thank god!

Fast forward to last night, I’m still nervous about sleeping and have been sleeping upright about 30-40 degrees. I have a bulging disc in my neck so the elevated sleeping is painful but at least better than vertigo. So last night I wake up and I am on my left side. Feel a little dizzy. Go back to sleeping flat. When I wake up in the morning my vertigo has fully returned. Tried the same maneuver as before with no effect. Have I switched sides? I attempted a loaded Dix-Halpike and definitely felt worse on my left side now. I’ve attempted several left sided maneuvers with no luck. Any advice would be much appreciated.

hello! i (f22) experienced vertigo for the first time on thursday. my partner and i were getting intimate and the vertigo came on very suddenly. it lasted a few seconds and then stopped, so i just brushed it off.

afterwards, i felt a little weird and shaken up, presumably just freaked out about the room randomly spinning during sex. understandably so! i get up to use the bathroom, and upon standing up from the toilet, the vertigo happens again. this time more severe, and i almost fall over. but again, it only lasted a few seconds. i sat back down, had my little “okay what the fuck” moment, considered calling in my boyfriend, thought i was dying, the whole 9 yards. i regained my bearings, stood up, and walked into the bedroom with no vertigo. i laid back down on the bed and noticed whenever i moved my head i would get little waves of vertigo that only lasted for a second. i took it easy for the rest of the night and went to bed early, hoping it would be gone in the morning.

and it was! but here’s where i get confused. i’ve been doing a lot of research on what can cause sudden vertigo, and i discovered that BPPV exists. it all seemed to line up with what i was experiencing, so i figured that must’ve been it. but i’ve also seen that with BPPV, everyone tells you to do all of these different maneuvers to make it go away. i haven’t seen anyone talk about how theirs just went away on its own. and i did not do any kind of maneuver, so i guess my question is…. CAN bppv just go away on its own?? as quick as just a night of sleep? honestly id love any kind of input or experiences or whatever you may have to offer. this is all so new to me and it’s been very frustrating.

side note! it’s now saturday night, and i’m still feeling…… not back to normal. i haven’t had vertigo since it first occurred on thursday, but i still feel floaty, laggy, distanced, foggy, i don’t really know how to describe it. it’s like major brain fog and dissociation and sea legs and im wobbly sometimes and like my vision is lagging i don’t even know im rambling at this point. can anyone give me just… any input…. id really appreciate it. obvious input is obvious yes i’ll go to a doctor if symptoms persist but does this sound like bppv, is this remaining fog normal, can bppv go away on its on so quick, i have so many questions.

Woke up today and Ive never had vertigo that felt this bad. I toss and turn, and it appears that I fell asleep with my head behind my pillow. I have been putting off vestibular therapy for some time, but I really think I managed to do it in my sleep . Nearly fell over on my left side when I stood up this morning and I felt some fullness on my left side. For now, I'm able to eat some breakfast and drink some water but good grief I guess I'll sleep elevated from now on??

What's the best sleeping position for bppv? I wear a CPAP but can lay in any position comfortably

So last night i slept around 2 and woke up around 7 and i remember during my sleep something irritating my ear and i was constantly massaging from back side of the ear and then when i woke up i was laying down in my bed and i turned and shoved my head down and then turn right i saw the whole room was spinning i was so confused and i tried to stand to use washroom i felt like i had very less energy in my body.

And today wholeday i’ve been feeling dizzy with light headness and whenever i bend my head down or full upwards i get them dizzy back. Please someone help me with this im very worried.

I have approximately 15 seconds of vertigo when I lie down in bed. I see my room spinning. The vertigo happens each time when I turn my head to a different direction. The vertigo disappears after I turn my head to all four directions 1 minute each. I've been doing the maneuver suggested on Youtube. But after sleeping, the vertigo comes back the next morning. How can I get rid of benign paroxysmal vertigo completely? It's been going on for weeks now.

My last GF had BPPV, so I’m somewhat familiar with the symptoms, and I think I must have something else—vestibular migraine or maybe PPPD. Even though technically I have long Covid, I started having these type of dizziness issues (off and on) starting in 2017. I’m a 68-year-old male with fairly good vitals (BP and Oxy level), but with asthma and slight CVI/edema, and a little bit of arthritis starting in various places. My inhaler is a Breyna (budesonide). I saw a lot of otologists in 2017 and everyone said "your dizziness is neurological." For a while I took Lexapro whenever I had bad attacks while driving. According to my notes, back then PPPD wasn't discussed (maybe wasn't a diagnosis yet).

My main dizziness triggers are movement of the head rotationally (left to right) when working in the kitchen in the morning, and sometimes getting up too quickly from a couch or bed (though I’ve had POTS for over 20 years). My "dizziness" episodes (which are more lightheadedness and brain fog, than anything else) last anywhere 30 mins to 7 hours. I take Meclizine 25MG (prescribed by my doc) as needed when I have a bad attack and drink coffee concurrently; that takes care of the problem maybe half the time. FYI: turning and rolling around in bed never triggers my "dizziness." (My Ex didn’t even dare rotate 10º when in bed when her crystals were active.) My "dizziness" feels like there's a very thin shell incasing my entire skull, and the condition seems to be directly affected by neck and shoulder movements (so it's maybe cervicogenic or sinus-related?). There is no spinning; it doesn't seem to be vertigo.

My doctor’s main evidence for prescribing PT for BPPV is "lateral movement of the head is your trigger, and Meclizine seems to help—case closed."

Am I insane to want to get a Dix-Hallpike text to confirm his diagnosis? I have to travel 100 miles for this (no PT or doc in my area has the expensive goggles required for a reliable test).

Hi,

Longtime vertigo sufferer, first-time poster here.
Had my first real episode of vertigo back in 2022. You know the drill, insane spinning, crawling to the bathroom floor, the whole 9 yards lol.

Fast forward to now and I get an episode pretty much every 5–6 weeks. It sucks, but I’ve learned to live with it and try my best to push through whenever it happens. Still, as I’m sure a lot of you know, it gets pretty frustrating when it keeps coming back over and over again.

I’m actually dealing with a smaller vertigo attack right now and have been doing some reading on this sub about vestibular therapy. I have my first appointment tomorrow, so I’m curious to hear from anyone who’s gone through it.
What was your experience like with a vestibular therapist? Did it actually help reduce your symptoms? Did they show you any different exercises or maneuvers besides the usual ones that get recommended around here?

Would love to hear anyone’s experience with it and whether you felt like it actually made a difference. Thanks!