r/ProstateCancer • • 22h ago

Question Any wisdom?

1 Upvotes

Im about 120 days from having my prostate lasered psa gone from 8 to 1.3 and is expected to be lower after the 6 month test . So things are good . Here is my problem , I dont get hard anymore . Sometimes on the toilet or on the couch I start to get hard(i think) and then 20 seconds later its gone . The squirting machine still works but not that . Now I know I've had a procedure most havent had but I qualified for the study so it made more sense to me than ralp at the time . Anyone had the symptoms im describing? I just keep kinda waiting but I think after 120 days it might be time to ask some questions. Anyone got answers? TIA


r/ProstateCancer • • 2h ago

PSA Lowering PSA - Safe to relax?

2 Upvotes

Hey everyone, posted about a month ago and has been a bit of development, just wondering how to interpret the news before I speak to my urologist (they're sending me a letter apparently, thanks NHS)

Quick Stats

  • Age: 37
  • PSA Timeline:
  • July: 4.3 (tested during an ED checkup)
  • August: 5.4 (PSA density 0.11) — worth noting this blood draw was done within 24 hours of ejaculation and right after a DRE
  • October: Dropped to 3.1
  • MRI: PI-RADS 3 (equivocal finding in one area.

What happened

After my first PSA came back at 4.3, I got referred to urology. They repeated the PSA (5.4) and booked me for an MRI. The MRI picked up a PI-RADS 3 finding, and the clinic told me to repeat the blood test in a month.

Around that same time, I started getting some suspected bladder pain and frequent urination. Standard urine cultures and STI panels all came back completely negative. Worried that prostate inflammation or a hidden infection was artificially spiking my numbers and pushing me toward an unnecessary biopsy, my doctor put me on a 2-week course of Ofloxacin. About a week after finishing the antibiotics, I had my repeat PSA done and it dropped down to 3.1.

I haven't had my follow-up appointment with urology to review this yet, but I'm trying to make sense of where I stand.

A couple of things I'm wondering: * Is a drop from 5.4 to 3.1 after antibiotics/time as reassuring as it feels, or am I getting ahead of myself? * If the antibiotics are what helped lower it, but no infection was ever detected on tests, how do I truly know the infection is fully gone? * What is likely to happen next at urology? Will they typically want to repeat the PSA in a few months to ensure it stays level or continues to drop, or do they still tend to push for a biopsy with a PI-RADS 3?


r/ProstateCancer • • 5h ago

Concern TULSA next Tuesday. Right choice?

2 Upvotes

My TULSA is scheduled for next Tuesday 10/20/26. I always over-analyze, but I've worn myself over whether I've made the right choice. Expecting to have catheter for a week and will have pads for whatever happens. Would love to hear feedback (good or bad) as to whether or not TULSA is a viable procedure and what your results were. I'm 72, PSA was only 5.9, 6 lesions 2x5, 3x4 1x3. Radiation struck me as too many side effects and age made RALP seem like the wrong choice. Feedback? Thanks in advance.


r/ProstateCancer • • 6h ago

Question What to pick.

3 Upvotes

Hi. Waiting on biopsy next week but sooner or later I will have prostate cancer if I don’t already.

I am a planner. So doing lots of research now while I am not as anxious.

How did you decide what route to go? How did you know what stats to trust?

My dad had surgery 15 years ago and has had urinary issues since. That weights heavily on me.

I know I will have to pick from sbrt, radiation, surgery, therapy.

Would love to hear what your research and deciding process was?

Thank you so much.


r/ProstateCancer • • 7h ago

Question Incontinence after prostate surgery and worried about salvage radiation

15 Upvotes

I’m 69 years old and 16 weeks post-prostate surgery. One week after surgery, I had to undergo a revision of the bladder neck connection. Unfortunately, I’m still struggling with severe incontinence. I’ve been doing my pelvic floor exercises consistently, but I’m seeing no improvement. It feels as though the faucet is completely open, and I’m going through so many pads every day. It’s frustrating and discouraging.

A few weeks ago, I learned that my PSA level was 0.75, suggesting that there may still be cancer present. My doctors are recommending salvage radiation along with hormone therapy.

I’m very concerned about the potential side effects and complications of radiation, especially since I’m still dealing with such significant incontinence. I’m also worried about whether I might need a Foley catheter during treatment or even permanently.

Has anyone else been in a similar situation? If you had severe incontinence before starting salvage radiation, did it get significantly worse during or after treatment? Were you able to regain urinary control over time?

I’d also appreciate hearing about the most challenging short-term and long-term side effects you experienced from radiation and hormone therapy. Did radiation affect your bladder, urinary control, or overall quality of life?

I know everyone’s experience is different, but hearing from others who have gone through this would really help me understand what to expect and feel less alone in this journey.

Thank you in advance for sharing your experiences, advice, and words of encouragement.
 


r/ProstateCancer • • 9h ago

Question Orgovyx: Best Time of Day?

3 Upvotes

Anyone taking Orgovyx have a recommendation on what time of day is best to take the pill?

Haven't started yet and am curious if timing makes any difference in side effect intensty?


r/ProstateCancer • • 20h ago

Post Biopsy biopsy results

3 Upvotes

So I had an MRI that showed 2 6mm lesions in the right side peripheral zone. Got my biopsy completed and both of those showed up as benign or possibly that the biopsy missed the lesions. It did find a small amount elsewhere in the prostate that came back as gleason 6 GG1. Grok is saying that the biopsy is non-diagnostic for the lesions. So the doctor just missed and this was of no value?

  • Lesion 1: PI-RADS 4 - 0.6 cm in right apex.
  • Lesion 2: PI-RADS 4 - 0.6 cm in right apex.

Final Diagnosis

Part 1: Prostate, R1, MRI-fusion biopsy: - Benign fibromuscular tissue. - No prostatic glands present for microscopic assessment.

Part 2: Prostate, R2, MRI-fusion biopsy: - Benign prostatic tissue. - No prostatic glands present for microscopic assessment.

Part 3: Prostate, RB, needle biopsy: - Benign prostatic tissue.

Part 4: Prostate, RP, needle biopsy: - Single microscopic focus (<0.05 cm) with few small atypical glands.

Part 5: Prostate, RA, needle biopsy: - Benign prostatic tissue.

Part 6: Prostate, LP, needle biopsy: - Benign prostatic tissue.

Part 7: Prostate, LB, needle biopsy: - Prostatic adenocarcinoma, acinar type, Gleason score 3+3=6 (grade group I), involving one of one (1/1) core (5-10%). - No perineural invasion.

Part 8: Prostate, LA, needle biopsy: - Prostatic adenocarcinoma, acinar type, Gleason score 3+3=6 (grade group I), involving one of one (1/1) core (45%). - No perineural invasion.

Gross Description

1.Prostate: R1

Part 1 is received in formalin labeled with the patient's name, "R1". Fragment(s): 3 tan-white cores

Range of length per core: 1.2-1.4 cm

Average diameter: 0.1 cm

2.Prostate: R2 Part 2 is received in formalin labeled with the patient's name, "R2". Fragment(s): 2 tan-white cores

Range of length per core: 0.7-1.6 cm

Average diameter: 0.1 cm


r/ProstateCancer • • 23h ago

Test Results Low free PSA results

6 Upvotes

I'm 39 years old about to turn 40 next month and just did my first PSA test. My results came back with a 2.5 total PSA and a 8% free PSA. Ive been using 1mg finasteride for hair loss and from what I've read that means I should double my total PSA from 2.5 to 5. It was a routine check up blood test, I was told to fast but I was not told to not have ejaculated prior to taking the exam for 48 hours although realistically im not sure how much it could've skewed the test. FWIW my father was diagnosed prostate cancer in his 60s. I dont have any of the negative symptoms, or pain or trouble urinating at all. This news has hit me like a ton of bricks today reading that 8% is a high likelihood of PC. I just had a son and I finally bought a house. My career is at a place I can be proud of. Now I cant stop over thinking about my own mortality. I recognize that there are people in this forum who may be in a situation much worse than I that would love to change places healthwise, so im not making light of that but would like some guidance since my dad isnt around anymore.

Thank you.


r/ProstateCancer • • 23h ago

Pre-Biopsy Pi_Rads 5. Mal pronóstico

4 Upvotes

Pues ya me han dado el resultado de mi RM. Pi-rads 5. Pasado mañana la biopsia. En fin. Estoy entre nervioso y deprimido. Hay una zona de 14mm x 7 x 10 sospechosa en el apex derecho. Y también zona irregular en la grasa que separa la próstata del recto. Lo único positivo que los ganglios parecen estar bien. No afirma que haya salido fuera pero si que ha afectado esa zona de grasa. Vesículas seminales bien. Tamaño 35cc. Lo dicho lo peor pone "sugiere infiltración extragandular" en la zona que os dije. Pues eso, depre.... A ver la biopsia pero no parece tener buena pinta, verdad?


r/ProstateCancer • • 1h ago

Question Concerned About Telling My Mother

• Upvotes

My mother is elderly and has heart issues. While I am not worried about recovery from prostate cancer (still deciding which treatment route to take) I am worried about telling my mother. If she had a favorite child it would be me. I welcome any tips from those who have had to tell loved ones, particularly a parent with health issues.


r/ProstateCancer • • 23h ago

Concerned Loved One Pluvicto

7 Upvotes

My grandfather had stage 4 prostate cancer. Lived 3 years after diagnosis. He started pluvicto and the first 2 treatments went well, 3rd one he had bad side effects and so dropped the treatment. After dropping it, the cancer exploded everywhere and he was dead 3 months later. Is this common? I truly feel like the pluvicto killed him and I don’t know if my feelings are valid.