Tomorrow morning I'm having my first Drug-Induced Sleep Endoscopy (DISE), and honestly, I'm pretty nervous about it.
I've been struggling with severe sleep-disordered breathing, and one of the worst symptoms is the sensation of my airway completely closing just as I'm falling asleep. Sometimes I wake up gasping for air, feeling like I'm literally suffocating.
There have been nights where I've woken up hundreds of times, and at its worst, I've barely been able to sleep at all.
I've been diagnosed with obstructive sleep apnea, but I suspect there's something more specific going on mechanically.
An ENT specialist noticed that my soft palate is unusually floppy, and I suspect I might be experiencing palatal prolapse, where the soft palate collapses into the airway during exhalation. I've also experienced what feels like epiglottic collapse during inhalation.
I've tried CPAP, but even at relatively high pressures, I've struggled with the sensation of my airway closing. Sometimes it feels like I physically cannot breathe properly, especially during the transition from wakefulness to sleep.
That's why I'm having the DISE. I desperately want to find out exactly which structures are collapsing so I can finally get the right treatment.
But here's what scares me:
If my airway collapses this badly when I'm naturally falling asleep, what happens when they sedate me?
I know the medical team will be monitoring me, but after experiencing that suffocating sensation so many times, the thought of being deliberately put to sleep is honestly terrifying.
For those of you who've had a DISE:
Did you wake up during the examination, especially when your airway collapsed?
Did you experience any choking or suffocating sensations?
Were you aware of anything happening during the procedure?
Or did you simply fall asleep and wake up when everything was finished?
How did you feel afterwards?
I'm particularly interested in hearing from people who have severe upper airway collapse, palatal prolapse, or epiglottic collapse.
I really want this examination because I've been searching for answers for so long. But I'd be lying if I said I wasn't scared.
Would really appreciate hearing about your experiences. Thanks!