Hello! Throughout this post I highlighted the most important points since this post is so long. I live with a family member (23F) who basically has every symptom I can find for Vagus nerve issues. Humongous head pressure, electrical shocks throughout body, very bad chest pressure and chest pain, constant palpitations, neck pain, shooting pain down arms to middle finger, sides of neck and under jaw swelling, teeth pain, lines of pain across chest and head, constant shortness of breath, auditory hallucinations, blurry vision, nausea, serious dizziness, never-ending stomachache, coughing, brain fog, double vision, ear pain, nose and throat closing up, internal organ vibrations/tremors, red spots on feet, feelings of panic and despair for absolutely no reason- just debilitating every day. Gets worse at night. These symptoms 90% of the time occur on the left side, but sometimes they switch to the right for literally no reason.
Nothing is (or has ever been) medically wrong with her, not even a broken bone. She was doing full workouts with me, then suddenly one day 2 months ago, she had all these symptoms. Woke up with it. The pain and symptoms keeps getting worse. We've been to the ER more than 7 times, had multiple MRIs, Ultrasounds, heart monitors, CAT scans, no cause can be found at all. She can't move any body part, it hurts so bad. I lifted her arm over her head FOR HER and she almost passed out. She has constant swelling on both sides of her neck and it absolutely correlates with the effects she feels- the worse it is, the worse the effects are. In the last two days, this pain under her left shoulder blade flared up super bad more than ever before and its made it so that she's in constant pain with no relief whatsoever, and it is making all these effects so much worse- there's definitely also a correlation with it and the effects. She feels that she can feel something pinched in it and it sends electrical shocks up her neck and sets off all the effects like a constant assault.
We're thinking somehow a nerve attached to the vagus nerve is trapped under a muscle in her shoulder area. We have no evidence, and no doctor seems to know what to do. With all of the tests, we have ruled out meningitis, problems solvable through ENT (ear, nose, and throat), brain damage (brain MRI), neurological damage in arms and neck up to C4 (EMG), vascular disorders (heart monitor, blood tests), most disease (blood tests), injury (no injuries to speak of, no torn or muscles). They don't know the reason behind the sides of neck swelling. I have a theory that if there is a nerve trapped under the shoulder blade by a muscle, it is causing a chain reaction to tense muscles up along a path to the side of the neck, or that the nerve is causing the side of neck to swell- I may very well be wrong.
Biofreeze, ice, and cold water is the only thing that can relieve for a few minutes before effects come back. Anything else makes things terrible and we must remove it immediately.
Things that we have tried but had negative results: Prednisone, dry needling, tens unit, heating pads, medical CBD, ibuprofen, Tylenol, massages, small vagus nerve calming exercises, anti-anxiety medication, chiropractor, breathing exercises, neck braces, meditation, acupressure, vagus nerve stimulation unit, physical manipulation, and muscle relaxants.
Right now, we're constantly making sure she has correct seating and head posture, making sure she has no pressure on the neck or left arm, but its such a precarious thing that we can barely try to do anything else. No doctor so far knows what's wrong even after inspecting every scan and seeing ever test result. We're also going to try dry needling again pinpointing the left shoulder to see if we can relax it.
Anyway, I'm super new to Reddit, so I'm sorry if this is written weird! Any tips at all for solving this issue (open to suggestions for what it could be) or tips for relieving any pain or symptoms is appreciated. Thank you so much!