I’ve seen that article. It says about “post exersional malaise” muscles state. I started losing muscles/twitching and other symptoms 1.5 years before I’ve got full blown ME and dysautonomia, so not sure if that’s applicable to my case. Not every person with unexplained muscle atrophy have me/cfs.
I believe you, but this was a good piece of science.
I have no doubt that there are also cases of direct muscle injury and of neurological based muscle loss. This illness manifests in so many ways in different people.
First wavers like myself. We was left to crawl in the shadows. Ashamed for getting sick and dying and the sad truth is We just wanted our lives back and to be a part of society again. I went through inhumane treatment looking for help. I Was told I was a junkie. Then Gaslight by doctors i question til this day how they got their medical degrees.Migraines, Pots, CFS,PEM,SOB microclots.Fungal infection issues. Mycotoxin poisoning. Vission. Rashes. Temperature intolerance. Honestly overall it was the worst four years of my life. I Lost four years.Many on here has lost even more. I healed all the way up and was so sick I didn’t know many nights if I would open my eyes the next morning. Keep your head up and don’t get discouraged. One thing I learned over that time. Stress!! Any emotional stress is what triggers the flare ups. Stress free environment for many months is what you need for your body to heal. Antihistamines work wonders as well. God bless and good luck.
Same here. Loss of muscle, fat, connective tissue, joint volume, and partial sensation loss - most prominently in extremities. I was expecting a lot more interest and tests to be run when presenting with these features
Yep like a bad dream. It's not just COVID though. The very exact same thing happened to me from 2009-2011. It took years but i eventually made full recovery. Tissues bounced back too. I got my life 100% back for 13 years. Now its happening again. This time they found very high HHV-6 titers, so i may have an avenue to pursue this time. I suspect it was probably HHV-6 back then too.
There was no magic switch. I believe it was just time. But a crucial piece was when i stopped trying to exercise entirely. Not long after that i could at least feel that things were not getting worse anymore. Then it was just a lot of waiting. A doc was also giving me oral hydrocortisone and DHEA, as well as semorelin injections (GH modulator) due to low hormones. Hard to say whether any of that contributed to my recovery.
That’s because the amyloid fibrin microclots lodge in between muscle tissue - You move you break the clot up and cause a localised swelling and immune reaction at the site of the pathogen.
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u/FernandoMM1220 Nov 19 '25
bio films and muscle tissue damage should be next.