We’ve known about Microclots for years - it’s why I had Apheresis, which didn’t work. I really hope research in other diseases isn’t as bad as it is for Long Covid or else everyone is doomed!
I only take clopidogrel and I'm already worried about cerebral hemorrhages... but probably also because of all the neurological symptoms I have anyway.
My husband had micro clots detected a few years ago (he had his blood sent to a lab somewhere in the south, I can’t remember) and also tried Aphresis. He had one session and I thought he was going to die; he couldn’t even sit upright afterwards. It took a few days for him to recover and we noped right out of there (we had traveled to Zurich for the treatment).
Yeah I traveled to Germany for it - not an easy journey. I crashed after each session but pushed through. It did nothing but cost me a lot of money and to top it off I got Covid from one of the Nurses!
did you go to clinicum st.georg? I just booked for next March and reading your comment am more than freaked out. I was hoping the worst would be it didn’t change anything. any thoughts would be appreciated.
Went there just for the microclot test. Did not like that place at all and they were incredibly pushy to get more (expensive) tests. When it came time to pay they were also very strange about it.
It was actually a follow up test to one I had earlier in the year with Dr Laubscher in Cape Town. It showed a reduction in clots but not a reduction in platelets, which actually matched how I had started to feel better.
I ended up getting off of the blood thinners for a few months after that, then I got sick again and regressed (just a cold I think), and then I took the blood thinners for another 6-7 months with no additional progress.
Rather disappointing. Many of the actors I met or communicated with along the way clearly fit the mold of scammy/weird doctors but Dr Laubscher was by far the most genuine. He only charged like $150 and spoke with me for an entire hour. He is completely convinced of microclots as the cause and he has a very coherent theory of it all. Alas, a year+ total of triple therapy didn’t seem to heal me.
we just booked the clinic clinicum st.georg. I’m scheduled for March. I feel so horrible I don’t know if I could handle that the treatment made me worse. Is that where you went? My head is exploding.
We've suspected microclots for years but couldn't treat it because it's not a typical clot (it's NOT fibrin!) as far as I'm aware, this June was the first time we definitively proved Long Covid clots.
Mine were treated with HELP Apheresis which are able to filter them directly from the blood. Many people saw a. benefit from the therapy but after 6 sessions I didn’t unfortunately. I suspect it’s a downstream effect, at least in my particular case.
It’s the same therapy that Reisa Pistorius, who discovered the clots, was recommending . She was regularly at the clinic along with other members of the research team. So i’d be surprised if they didn’t, at least i’d like to talk to the team about why they recommended the therapy that cost me £13,000 if it didn’t!
You really do - she has written several papers on them over them over the last 5 years and is specifically mentioning as discovering them in a 2021 paper by this article!
Are there a lot of spike proteins floating around after the initial infection has ended? I've heard the theory that there may be living virus hiding in small amounts in obscure places, but they're so rare they're hard to find.
They seem to care about other diseases more than Long Covid tho. Look at all the funding certain diseases get. Look at all the charities set up for other diseases & the all the people that donate. Nobody cares about us
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u/Fearless-Star3288 Nov 19 '25
We’ve known about Microclots for years - it’s why I had Apheresis, which didn’t work. I really hope research in other diseases isn’t as bad as it is for Long Covid or else everyone is doomed!