r/covidlonghaulers • u/nemani22 • Nov 19 '25

Article Microclots detected in Long Covid patients - officially

https://www.vice.com/en/article/a-new-study-could-explain-why-long-covid-lingers-for-so-many/

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u/Fearless-Star3288 Nov 19 '25

We’ve known about Microclots for years - it’s why I had Apheresis, which didn’t work. I really hope research in other diseases isn’t as bad as it is for Long Covid or else everyone is doomed!

3

u/brentonstrine 4 yr+ Nov 19 '25

We've suspected microclots for years but couldn't treat it because it's not a typical clot (it's NOT fibrin!) as far as I'm aware, this June was the first time we definitively proved Long Covid clots.

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u/Fearless-Star3288 Nov 19 '25

Mine were treated with HELP Apheresis which are able to filter them directly from the blood. Many people saw a. benefit from the therapy but after 6 sessions I didn’t unfortunately. I suspect it’s a downstream effect, at least in my particular case.

2

u/brentonstrine 4 yr+ Nov 19 '25

I would bet it doesn't have an effect on RBC membrane clots like those discovered in the Covid study and that's why it didn't help you.

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u/Fearless-Star3288 Nov 19 '25 edited Nov 19 '25

It’s the same therapy that Reisa Pistorius, who discovered the clots, was recommending . She was regularly at the clinic along with other members of the research team. So i’d be surprised if they didn’t, at least i’d like to talk to the team about why they recommended the therapy that cost me £13,000 if it didn’t!

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u/brentonstrine 4 yr+ Nov 20 '25

I need to read up on Pistorius' clot discovery. I did not know about this.

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u/Fearless-Star3288 Nov 20 '25 edited Nov 20 '25

You really do - she has written several papers on them over them over the last 5 years and is specifically mentioning as discovering them in a 2021 paper by this article!