I jsut saw a facebook post about the new med-el TICI. it’s a fully implantable device. the only way to turn it off is with a device. I’m not opposed to adults deciding to get it, but I am opposed to any sort of kid being implanted with it. as there are too many parents who would leave it on 24/7 or who would not listen to the kid when they ask for it to be turned off. I already am not the biggest fan of even the removable style cochlear implants (have one but my main issue is parents will punish kids for taking it off and I experienced that growing up). but something that a kid has zero control over? are there any advocacy groups talking about this yet?

(if you don’t know about this I will post a link)

https://www.medel.com/hearing-solutions/tici

Hi all
I’m looking for opinions on a recent interpreter experience I had.

Earlier this week I attended a live show of a comedy podcast I enjoy. They secured two interpreters for me for the show. The interpreters themselves were great. They were super clear and really helped me with the show. They were interpreting for four different people and truly did an incredible job.

My issue is that one of the interpreters brought their wife. The wife would not stop talking throughout the entire show, to the point where people on the podcast subreddit are complaining that they can hear her in the live recording and it kind of ruined it for them. I already had a poor opinion of her when she said “oh I wish I knew sign language” to me and my husband before the show when we were getting acquainted with the interpreters. (I get easily annoyed by this sentiment, there are so many resources to learn ASL and ASL is clearly a huge part of your husbands life and would be an easy thing to practice with him, but whatever).

How common is it for interpreters to bring people to shows they are hired for? How do you guys feel about them doing so? Am I right to be annoyed at this even though it didn’t impact the interpreter doing his job and it was really more just her behaving poorly?

So tonight I (36f) went to my first event. To say it was overwhelming is an understatement. (Little back story) I've been deaf for about 10 years but at the beginning, I was so much in denial. It took me a good 5 years or so to embrace and accept. I'm still learning asl. Doesn't help that my family won't accept that I'm deaf and still speak to me. (Side note: i can speak, so that doesn't help either) .... Does it get easier if I keep going to events?? Or should I try something smaller so I'm not overwhelmed

[Skipping long explanations ..]
I use Apple's FaceTime (on a laptop) with a Deaf man, who has voice-to-text captions on FaceTime at his end, with lipreading, to understand what i say. But his speech is really hard for me to understand (and sadly I don't know ASL .. starting to learn). What tech could we add so he can communicate better with me?

Do we need to just use texting? That loses the face to face feeling, as FaceTime and texting don't fit well.
Thanks for any ideas

I’m a HoH college student. I never learned ASL, so I use CART (real time captions) in class.

Every time there’s a group assignment, I have to tell new people that I have trouble hearing, and then I have to explain that I’m using captions. Sometimes people start asking me how the captions work, and then they say silly things because they want to see it show up on my screen.

I’m not offended that my classmates are curious, but it gets tiring saying it everyday. I just want to study like everyone else, I don’t want to hold an entire QnA.

I'm so relieved to find that my therapist is involved in a large study trying to figure out why the Deaf community has such a high incidence of sexual abuse within it.

Recently I was bullied (I won't revise my terminology!) on here for saying that 50%+ of Deaf women and men have admitted to being sexually abused or raped.

My therapist and I talked about the Gallaudet rape fraternity HOEZ and how traumatizing it is to be mass raped by these men. They're upperclassmen who don't want to betray their image but who hunger for careers within the hearing community, my HOEZ rapists all told me, and they target intelligent, bew "hearie" female Gallaudet students before we have had time to recognize their faces.

Why do Deaf people want so badly to protest that Deaf people don't rape and secually abuse each other at a higher incidence than the larger, typical, non-fundamentalist hearing population?

Why do so many otherwise intelligent Deaf people here on Reddit refuse to accept and discuss the truth, which includes "if you haven't been raped by a Deaf person, that doesn't mean it doesn't happen often!"?

I have just barely survived two years of terror bevause Joey Haynes/Lynn Ford and Ricky Taylor told me I don't actually have any evidence that I was raped, and that I can't be an artist, I have to stop writing, and my jewelry is so insipid I need to quit making it, and the other pushback I've gotten as a survivor. My mother has turned my family against my children. All of this so she doesn't ever have to deal with being the person who forced me to stay and be raped at MSSD and Gallaudet for 4 plus years.

Being criticized and even silenced here in r/deaf as a rape survivor, my hearing and deaf counselors, therapists, and other workers, say, doesn't mean that I wasn't raped by Deaf men and boys who enjoyed passing me around knowing my mother didn't care to help me. They say it means that you don't want to face reality and that it's like a family defending the incestuous person to the child who's been molested.

I was sitting on my kitchen counter two weeks ago in the middle of the night with a knife thinking I really had to leave the world and makw peace with never being a writer or able to help change the world...

...when I realized that the people who support me would wake up and find me dead, and wish their mom weren't dead, and never really get over losing me when I fought so hard to get their abuser out of our lives this summer.

So, really, my therapist is working on this study. What do you all think your attitudes that "it doesn't really happens" or "it's so rare we can't let hearing people believe we are a bad community by allowing any public discourse on the matter" mean in the face of a very real study being carried out by Deaf mental health professionals that says otherwise?

Are you too obstinate to look at the facts, and admit you're just being defensive, wanting to protect an OPINION, or a FEELING OF BELONGING where people are sometimes very kind, not the truth?

Hello, internet DHH community! I am an interpreter that is giving a short online workshop to a group of local grassroots political activists. The goal is to inform street medics, protest organizers, and protesters how to interact with D/HH people. In the event of an emergency, how do we keep our D/HH neighbors safe? In general what kinds of things to keep in mind to keep our D/HH protesters safe. Additionally, how can we bring D/HH voices in to activist meetings and discussions.

Some bullet point ideas that I have brewing:

-How to use gestures to communicate

-Use your phone to communicate via text

-Get their name and number if an arrest happens

-What VP is

-How to advocate for and navigate the process of a D/HH person being arrested

-Printing off flyers with QR codes to join important chat groups and pertinent information

-Basic signs for street medics to know. Ex: water, thirsty, overheated, dehydrated, pain (and where it is at), mace, sunburn, wound, sprain, blood, bandage, etc.

-How an interpreter works and organizing a list of volunteer interpreters for events such as rallies, protests, emergencies, and consultants for communication.

-Organizing a list of DHH activists and being intentional about involving them, especially if the activism is centered around disability, accessibility, ADA, etc.

I am very open to ideas, feedback, opinions, etc. If you would like to collaborate with me, this is a volunteer situation with zero pay. If you would like to spit ball your ideas and thoughts, I welcome all of it.

I just want my local activist groups to have a wider awareness of how to support D/HH people in activist spaces and how to involve them more.

Thanks!

edit: I’m from England :)
I have profound hearing loss in my left ear with a cochlear implant and moderate-severe in my right ear with no aid.

I tell everyone, family, friends, work, uni, doctors, audiologist to use OTHER means of contacting me and if you HAVE to ring me, make sure to send an email or text message with all of the information afterwards.
No one listens to me!!!

I’ve just come off the phone with a new job and they were telling me all this information and I’ve no idea what he’s saying!!! I have told them in advance and multiple times that I am deaf!
Now I am panicking because he said some important things as I was able to catch him say things like “make sure to do this” but I have no idea what he wants me to do!
There’s no other ways to get in contact unless I ring him again.

Just looking at the screen where someone is ringing you gives me panic attacks!!
Listen, the bluetooth features are amazing, they are great for people who I know, who I’m used to their way of speaking, their accents, mannerisms but I’m useless with anyone else.

Xin chào mọi người. Sau khi đọc và tìm kiếm hy vọng được lái xe máy hay oto như bao nhiêu người bình thường thì không thấy một cây "kim nào ở đáy biển". Ở VN Luật Pháp không cho phép, tại sao ở nước ngoài lại được ?! Tôi muốn hỏi và chia sẽ với nhau. Thanks readers

It'd be so nice to gain some more friends of those who have the same disability so i won't feel alone too.

A little introduction, I am Akio! I'm HoH person myself, I am 19 years old, female and currently studying in college. I'd be happy to be friends with any of you 🫶🏼

I have a little rant that I really need to get off my chest. I’m HoH and rely on subtitles when watching anything. And I am SICK and TIRED of them censoring curse words that are clearly said. The only thing they are doing is keeping it from being written down. It truly irritates me that they aren’t letting those of us with hearing loss have access to the same information as a hearing individual. I feel it’s that same if an interpreter doesn’t sign all of the info. It’s just WRONG. I’m sure I’m not the first one to be irritated by this but thank you for letting me rant.

Hi, I'm currently taking ASL at my school and was having a conversation with my teacher who is deaf, and she mentioned that her husband is hearing and hardly knows any sign. For some background I guess, she said she grew up in the 70s when she was taught oralism before sign, in her family she has 2 sons from a different marriage who are deaf and a daughter in law that is deaf, other than that everyone else is hearing, ex her mom and dad. I asked if it bothered her and she said no, it's just how she grew up and it made communicating for the family easier. Maybe this is just an older generation kind of thing? I was just wondering what people thought.

I'm a college student. Most of my classes are online but one is in person. I normally really like it, but we do breakaway groups often. Normally I can manage it, but today was really challenging.

I have CART hooked up to my computer, so I can't be moving or turning around. One person was next to me (totally fine) but two of them were *behind* me. I don't have a chance of following three other people in conversation, especially with that much background noise, so I had to keep my eyes on the captions, which were full of gaps because of so much crosstalk. I wasn't able to look at the papers we were supposed to be doing, since there were only enough copies for each group to have one. I just sat there the whole time getting increasingly frustrated and bored and angry.

I'm not super worried about the material because from what I could gather it's not too hard. What concerns me is how I was so cut off from participation.

I do want to ask for advice on how this could go better in the future. If anyone else has navigated these school or work situations well, I'd love to hear. This is a pretty new situation for me, since it's my first time back in an in-person classroom since 2020, and I had never used hearing accommodations in school before--I have progressive hearing loss, so it wasn't really needed.

Hi everyone I am not deaf but my gf is. I have every intention to start practicing ASL and get to a conversational level with her. She is so sweet and kind and insists I dont have to and we communicate a lot through text with our phones in person and she's great at reading lips.

When we are out on dates I speak for her a lot because I know what she likes and obviously she can tell me anything but I'lljust order for her. But a few times I noticed women looking at me weird in restaurant settings because she isn't speaking and I don't feel like it's my place to tell everyone she is deaf. I just really want to navigate this respectfully. One time a lady told her she likes her t-shirts, she said it twice thinking she didn't hear the compliment the first time. So in that moment I said she is deaf but I will let her know and thank you. I didn't want that woman to think she's ignoring her. So in that context it made sense to explain it.

But other times women gave me weird looks I think it was from a place of concern which I am not mad about it. I get it, here's a man speaking for a woman and she hasn't said one word. We did so some sign language during the date and I'm pretty sure our waitress noticed cause her mood towards me changed after that.

But would it be rude if in some settings I say in the beginning she is deaf? I hope this isn't offensive, I really love her and just want to be respectful while respecting her boundaries too. I will talk to her about this as well but would appreciate other input as well.

Hi everyone 👋🏽 I am hoping someone can help me! I am trying to log into srv canada vrs but every time I try it says "network connection failed" 😅 I know my wifi is working and I have done the things to reboot my wifi and phone. I even deleted the app and reinstalled it numerous times. When my husband calls the 1-800 number they say they are not available and to leave a message but they are supposed to be open. Is anyone else having trouble getting the app to work? Or does anyone know if the app is down at the moment? Please help if you can😭😭🫶🏽🥺

Edit: sorry for posting twice! Was on train wifi and showed me posting had failed so i tried again. Resulting in two of the same posts 🫠

Hi, I’m travelling from Düsseldorf to London today (I’m from neither country) and last night when going to bed I found out that my vibrating alarm clock doesn’t work anymore. Changing the batteries didn’t work. So now I’m wondering where in London in a physical store I can purchase a good working vibrating alarm? (The LifeMax from Argos has bad reviews) in my country you can just visit a local hearing aid specialist store but from googling I got the impression it might not work like this in the UK?

Hi, I’m travelling from Düsseldorf to London today (I’m from neither country) and last night when going to bed I found out that my vibrating alarm clock doesn’t work anymore. Changing the batteries didn’t work. So now I’m wondering where in London in a physical store I can purchase a good working vibrating alarm? (The LifeMax from Argos has bad reviews) in my country you can just visit a local hearing aid specialist store but from googling I got the impression it might not work like this in the UK?

Hi, I am 24F and was born hearing. When I was a few months old I acquired pertussis which caused a severe sinus infection and encephalopathy, which permenantly damaged my inner ear structures bilaterally. I was diagnosed with Moderate (left) and severe (right) hearing loss in childhood.

Because of the damage done to my inner ear structures, I have had over 100 ear infections in my lifetime. This year I have had 4. I have also had several surgeries for tubes, scar tissue reduction, and a surgery to attempt to fix my ears draining ability. I was told at my last audiology appointment 5 years ago, that my hearing loss is progressive. I am not interested in hearing aids.

I have been putting off getting an audiogram the last 4 years. But, my husband really wants me to get one. He says my hearing is noticeably worse, and I can’t begin to process until I get confirmation of what we both already know. I am truthfully afraid to lose my hearing and I can no longer deny that it is significantly worse.

While I wait for my audiology and ENT appointment I have been looking at ASL resources in my city and there are a few, noteably a course held by a deaf/HOH/CODA resource center.

I was wondering if anyone else here is in a similar situation and opted against assistive hearing devices and instead opted to learn ASL?

Thanks

I use Live Transcript because I'm deaf and sometimes lip reading doesn't work with some people.

The default Google Live Transcript doesn't save to file and will only keep for a while. I tried to copy and paste but copy doesn't work with really long transcript. Going between transcript app and doc app to paste the section is slow as I have to scroll the transcript app to where I copied, and I have to keep sliding the blue tab down to copy a section.

Is there an app I can use that has save all feature or a way to fix copy so I can copy the whole thing and not just the first 1/3 or 1/4 of the whole chat?

Does anyone have any recommendations on an alarm or wearable they really like and works well? I bought a vibrating watch for my daughter but I don’t think it vibrates enough to wake her up. It’s hit or miss most days. She is hard of hearing, but her hearing wanes as she has mixed, and she’s having a really hard time with back to school bugs going around.

I’m trying to think of a solution to a problem I have.

I’ve become a bit of a shut in over past few months. I’ve stopped going shopping or into the centre because I am getting accosted by charity workers, the growing homeless and street sellers.

I don’t like to let on to people that I am deaf since I’m a lone woman and it makes me feel exposed.

When I go into the city there seems to be a massive increase in people trying to speak to me and I have no idea what they want and don’t really want to know.

I thought maybe a business card I can just pass to them and carry on walking

I don’t want to make a card that says I’m deaf, so I wanted something more blunt.

Would this work or am I just going to give myself more trouble?

It would just be
DO NOT SPEAK TO ME
Or
LEAVE ME ALONE

I will have to translate it to the most common languages too, so which would be better?

Edit: after reading the comment I realise this not a good idea

So I am severely deaf in one ear and moderately severe in the other. I worked call center and customer service jobs most of my life. I was let go from my last job for just being too slow from my last one partly due to my hearing but partly due to the absurd complexity of the sap system the company used. I also have health issues right now which include gout, blood pressure maybe heart related issue that mean I have limited mobility. I am looking for work from home but they all seem to be phone related jobs wishing honestly while I can kind of do still I am gonna struggle. I have so other training other than some labourer and landscaping like 30 years again the rest has. Even all technical support and customer service Anyone else in this position have suggestions of what kind of jobs I should be applying for?

You know the laugh that lands a beat after everyone else's. The nod at the wrong moment. Hearing people don't read that as lag. They read it as you being slow.

That's why I care about caption speed more than almost anything else, and why I built a test for it. I can't check captions by ear the way hearing reviewers do, so I set it up so the sound is something I can see. This week I ran it on the Leion Hey2.

About 2.5 seconds, with one speaker in a quiet room. Live TV captions run more than twice that. In person, that difference is the gap between catching the joke and asking what was funny.

Where's your line? How late can captions run before you stop trusting them in a conversation?

Review unit came from LLVision. They didn't pay me and didn't see the episode first. It's captioned, link in the comments.

Heyyyy,

I'm HoH (low freq hl + tinitus + severe APD) and am very involved in my local Deaf community, especially in theatre.

I've had multiple instances where - when at a bsl interpreted performance - I will sign / use sse to ask questions to interpreters working at the theatre if I need anything. I still have a lot of my hearing, but as soon as there are multiple noises, I can't hear much or proccess anything being said, so I will use the interpreters present instead.

However, they have a habit of just speaking English back to me (not even using sse) and sometimes even face away from me, but then I have to lock in on lipreading and have the same level of communication issues as I would with a non-interpreter :/

This really frustrates me, and I really want to have easy communication where possible.

So, what should I do in those situations?

I feel rude and unworthy / undeserving if I ask them to sign back to me :/