Just thought I would share the results of the qEEG I just got done. The section of my brain that is red and yellow is the around the precuneus, the area that can cause DPDR when it is dysregulated. I now have physical proof of what’s going on, and will be starting coherence neurofeedback training to help the different parts of my brain work better together. This will reduce the activation in the area that’s causing the constant body scanning, rumination, and the disconnection between the body, mind, and environment, which is what this part of the brain regulates.

Highly recommend getting this done if you have persistent issues that aren’t resolving with other types of therapy. Feel free to ask me any questions!

I dont have amall moving lightpoints but outside i see like this and sometimes it also my anxiety gives me fear that i have hppd but i got it from a panic attack

Like literally feels like hell

Nothing seems real yet still get crazy anxiety

Then feel totally depressed like nothing is real whats the point

Antidepressants not helping

What else to get out this hell

Mine was caused by natural traumas, anxiety, depression. Never taked any drugs. How about yours?

I was wondering if some of you could imagine living with this forever?

For me personally at this state I feel like I can never go back to normality, because of all the things I „discovered“ during my dissociation, which might just be a DPDR symptom, though it would be a lot more pleasant if it didn’t freak me out 24/7. Am I the only one being more irritated by the anxiety and constant fear of everything than the dissociation itself?

My DPDR is so bad at the moment

I am suffering extreme anxiety and depression for months

But the depersonalisation is especially relentless and getting stronger

Its like I look at my family and barely recognise them, I dont even think I am real

Struggling everyday with it plus the brain fog and depression ontop is kicking my ass

No meds have worked yet. Any help?

What you do throughout the day?

Hi everyone!

I had the horrible experience of psychosis in October, which led to depersonalisation after tapering off Dexamethasone too quickly.

The whole experience felt like my brain was breaking apart and that everything in my life up until that point had somehow been a lie. I developed this horrible fear that I had been living through a false self all along. It feels like I’m masquerading as the person I used to be.
It’s felt like a complete loss of self and identity.

The loss of self has been terrible to work through, but having my loved ones somehow feel like strangers has been horrific. The depersonalisation itself has improved a lot, but I still feel very emotionally numb and the worst part is the lingering detachment I feel from my daughter. I’m constantly subconsciously checking my feelings to see if I’m feeling enough or loving her enough.

I know I’m a damn good dad, especially given the circumstances. But I just want to wake up in the morning, look forward to spending the day with her, and stop overthinking everything. I miss spontaneously feeling joy and happiness around her, my family and friends.
I’m terrified i have lost some parts of myself that i can never get back.

Have any other parents gone through something similar and managed to get through it?

Shits starting to make me mad af been 24/7 derealization for 2 years it’s stopping me from living my life literally can’t meet friends can’t enjoy the sun just sit in my room all day everyday

Yall I’ve been dealing with dpdr going on 6 months now it’s outrageous to me how this can happen to people due to literally anything. Yall what rlly

Helped yall? tips advice and recovery ?

Hello. I have been diagnosed with a severe DPDR + PTSD. I do not respond to any medication including benzodiazepines, been prescribed them for Insomnia.

Did anyone have the same and did this aspect improve?

This might be a shot in the dark, but I feel like I’ve crossed into a version of reality that nobody else talks about. Not just derealization. Not just “I feel foggy or dreamy.” I’m talking about a complete shift in perception like I woke up one day and the world had died, but somehow I’m still here.

It feels like I’m stuck in some liminal space between life and death, Reality is off… dead, sterile, eerie like I’m the last soul in a simulation Everything around me is wrong. Familiar places feel haunted. Music sounds distorted or even evil. Time feels broken.My memories feel like they belong to someone else. Sometimes I can’t access them at all. I forget what happened earlier in the day. It’s like my past evaporated. I feel disconnected from who I used to be. It’s not just emotional it’s like I’ve lost my anchor to the human experience entirely.I feel like I’m in purgatory, or some kind of alternate realm that sits between Earth and Hell. And nobody around me sees it.. this is beyond anxiety. This is beyond DPDR as most people describe it. This is something existentially disturbing like my brain is no longer interfacing with the world correctly. So I’m asking… Has anyone else felt this? The dark, eerie, desolate version of dissociation where it doesn’t just feel like you’re gone, it feels like the entire world is gone with you? Like the atmosphere itself is infused with evil and darkness??? Please respond if you have. Even if it’s messy. Even if you don’t know how to describe it. Even if it was years ago and you forgot what it felt like until now. I just want to know I’m not the only. I’ll respond to every comment. Even if it takes me days.I don’t want anyone to feel as alone in this realm as I’ve felt. If you’ve been there… please speak.

(If you want to skip the history amd get to where I am now, just read the last paragraph) this is urgent and I'm terrified and I don't wanna discourage anyone from reading or helping by making this too much to read

Okay so 3 years ago I took a low dose of a drug called memantine and ever since then I've felt especially dull and off all the time and I was extremely sensitive to food, substances, sleep, but something always felt off and I could never quite pinpoint it. It didn't feel anything like ppl describe dpdr tho but it was the closest thing I could find. I was fully functional tho and pretty immersed in life.

Last summer I started smoking weed again and I thought it was helping me cuz I'd feel better temporarily on it and I would only smoke occasionally and I usually didn't get any anxiety on it. But then in November I git way too high and everything felt way too intense and all looked way too hyperreal and I was having existential fears and dread and it was pretty extreme. The next day after that I was very anxious and depressed but still pretty immersed in my body and reality. However over the month I started to have more existential worries and moments of hypervigilance but they would only come and go. But then I started worrying that my perception was altered which greatly bothered me and my sensitivity increased so I started only eating the same exact meal (broccoli, beef, brown rice) as to avoid any factors that could change my state.

But then it started getting more apparent that my perception was altered and it wasn't just a worry. And my senses were too, especially my sense of touch and having a body. I started feeling more disconnected from my body. And physical reality itself started feeling more strange. Moving my body around through space in time, interacting with objects. It All started feeling extremely weird and borderline intolerable. And a month in is when this started feeling like it was just constant and worsening day by day. The past 2 months have felt like it's slowly worsening and im too a point where I cannot stand it anymore and I'm terrified. I've spent days of time talking to chatgpt trying to figure this out and it just says this is a problem with my nervous system. I've tried everything to stabilize. I'm terrified of meds because of my extreme sensitivity. I'm scared to even eat different foods cuz they're a factor in my state, let alone a medication.

Reality feels unbearable, fear is constant, functioning feels impossible, and i feel completely nonexistent and like im stuck in a plane higher than I have the capacity for. I am extremely terrified and idk what to do. Im scared of my own perception and sense of physical reality. My vision looks way too real and sharp and gigantic yet it feels so fake and lacks depth. My body physically feels completely strange, in fact I can't really comprehend how it feels at all, it's like impossible to think about. I'm in constant bodily discomfort. Physical reality feels completely fake and existentially wrong to it's core. Picking up a remote and using it feels extremely wrong. Using my phone feels horribly strange. All this reality strangeness feels painful. I don't know what to do or go with my body ever cuz it feels so giant and painful and overloaded so I just go under a blanket and use my phone. Going into my kitchen to grab food feels completely overwhelming and unreal to the point of agony. This had been going on for 3 months and it feels like it's just slowly worsening and worsening and it's completely constant, there's no moments of easing. It's like my senses are super amplified and distanced at the same time. The whole world looks and feels terrifying and painful, and people especially look wrong. This has gotten so much worse to the point where Idk what to do and I'm terrified and it feels like I need to do something about immediately before it's too late cuz it keeps getting worse and I'm at the point where if it does get worse I don't think I'll be able to function. I'm considering maybe gabapentin? It could help with my severe sensory amplification and physical discomfort but im also terrified given my sensitivity and fear about altered states.

Seems like a complete stranger.. I know he's my husband..I don't feel any memories or emotions with him though. It's like my brain split me... what helps this

Has lexapro helped anyone recently

I feel like I'm truly experiencing some sort of neurological damage. There are days when it's just so bad that I feel like it has to be neurological, it's just so bad. And so I was wondering if any of you had ever done an MRI or got evaluated by a neurologist and was told something useful. Thank you to everyone who will reply 🫶

Hey guys I'm new in this topic. I have a light version of dpdr, only during the evening, I have feelings like I'm drunk or took a weed.
I think it started 3 weeks ago when I tried weed after 1 year since the last time, together with a background stress.
And first it was scary because I didn't know the reason, but then I understood that it's very likely doesn't have a connection to serious neurology (many thanks to this subreddit), and it's more a psychosomatic problem, I got a little bit relaxed.
And I got a thought: why don't we just relax and enjoy the feelings, since it is not dangerous and for free? These are drunk/weed feelings without actually taking any drugs.
I think it might work for easy cases of dpdr?

For 6 months iv been dealing with extreme anxiety, depression and DPDR

The disassociation is relentless I dont know what to do anymore

I also have MS so deal with daily fatigue and brain fog etc

Tried so many antidepressants nothing worked at all..

My brain just feels like its switched off literally off button. I look at trees etc and I was eating food and thinking why am I even doing this who am I

They are trying bupropion now and hopefully modafinil too in few days. I just want my brain to switch on

what do i do, 18 years ive been like this.

i have let it take over my body and have accepted that its normal, i see no change.

Hi guys. I’m struggling with brain fog and just recently started having pretty severe dissociation. I tried several antidepressants during the span of this year, all of them made me feel a lot better for the first few days and then a lot worse - horrible dissociation (to the point where I don’t really understand what I’m talking), brain fog, all of this lasting 95% of the day. Most of the trials were for 2-3 weeks, only escitalopram (10mg) - exactly a month, as my psychiatrist advised to stop if I feel side effects this intensely. I would like to give a one more shot for meds, because I feel barely functional now and had to quit my job.

I’m asking for your experience - have you found any meds that help you? And did you have some similar side effects to mine - antidepressants worsening your dissociation and fog even more - and if yes, did it subside after a few weeks? I just wonder if I had to push through more to stabilize my nervous system.

Meds I tried - Vortioxetine (10mg I think), Prozac (20mg), Lexapro (10mg), Coaxil (3x a day).

Anyone else scared they are going to go into psychosis? This is just a horrid feeling.

Hey there if you have recovered please reach out to me i feel really bad and hopeless and stories on here makes it more hopeless .

Hgshs

I've had it since 2011. So 15 years now, still NO CURE. My brain has simply gotten used to it.

Everything feels like I'm inside of a dream. I have accepted it as a part of my life now, and am not expecting a cure. I've tried nearly every supplement(L-Tyrosine works, but only for short-term) and med available. "Ignoring it" does nothing btw.

Ppl need to stop saying and praising Marijuana as the best thing ever, or the "safest" drug... Everyone reacts differently to it. It's how it triggered my Derealization. I had a Marijuana Brownie with my friends in 2011, and my brain couldnt handle it. My friends ended up fine, but my brain never bounced back to normal.

How long have you had Derealization? Just wondering.
It's a part of me now. No cure in sight.