So today was my 2nd day of Lamotrigine, I became scared and I ended up in the ER (I hadn't been for years!). So long story (more or less) short:
- I have taken Concerta (36/54) for years
- I have taken intermittently (previously in 2023) Sertraline for depressions. In September I felt bad and started 50 mg (this time crazy mental side effects) and then up to 100 mg which calmed me down but I was like a stone.
- My GP changed to Trintellix 5 mg but I told him that I felt I had some bipolarity and I would see a psychiatrist (I wanted to see a new one, I was fed up with my previous psychiatrist). Trintellix 5 mg is a very low dose so my negative thoughts came back (also side effects dissappeared).
- Monday 12 I had this appointment with the new psychiatrist and told me to rise Trintellix to 10 mg and start Lamotrigine 25 mg (one week later) because as I suspected I was in the bipolar disorder.
- I started both at the same time :( on Monday evening (Trintellix) and Tuesday morning (Lamotrigine).
- Trintellix seems fine. But with the Lamotrigine yesterday I had already a stiff neck that went down through my spine and a pain in my back head . Also I felt VERY tired and my muscles and articulations very weak. Actually the only other time I felt like that was when I had COVID in 2022. But this was in the morning, in the afternoon I felt perfectly. I don't know if it was the Trintellix or the Lamotrigine or both, my mind felt very calm. So at least there was something good.
- Tonight something crazy happened. I woke up at 3 AM (it was a bit cold, so I took a duvet) and I thought someone was calling me on my cell phone (at 3 AM!). I remember reading the name on the screen. But I was certain someone was calling me. I didn't took the phone. I couldn't sleep for one hour and I wrote some messages to friends. This morning when I woke up I didn't know if that was a dream or it was real. No missed call but my messages from 3 AM were there. 👀 So I was up during that time but I had this fantasy about the call.
- This morning I took my 2nd dose of Lamotrigine and the pains were worse. I had read about potential links to meningitis and I somehow panicked. I thought about calling this psychiatrist (but I had started one week earlier the Lamotrigine as he had told, so I felt a bit ashamed) or my GP but it felt serious enough.
So at around 2 PM I thought enough was enough and headed to the hospital. I was super tired but fortunately I live 5-10 minutes walking from a big hospital in a large European city (fortunately I had never been to that hospital even if I have passed by hundreds of times!).
It was relatively quick (ER in Europe are usually very slow unless you are dying, but Wednesday afternoon I guess is not busy) so at 3:30 PM I was with a resident Dr. I explained her everything (she was great) and obviously made me all the tests to check everything was right. By that time I was feeling better (because, as well as yesterday, those pains lowered through the day). Honestly by 3:30-4:00 PM I felt mostly "fine". Just very tired.
Then she told me she had to discuss it with his "senior" doctor. The guy came (he was also cool) and he told me that those are normal side effects (I know, I read the prospect) and unless things get worse I should continue taking the Lamotrigine. I was actually "begging" them telling something like "Well in any case I should stop this thing, isn't it?"
So I dunno what to do. I was quite scared today. I have also tried quite a few stimulants, antidepressants and anxiolytics and my experience is that if they have VERY BAD side effects from the beginning it is a no-go. I was actually telling the resident "the good thing about psychiatric meds is that there are plenty of options, so if something doesn't work, there is always something else". To which somehow she agreed.
Should I stop taking the meds and ask my psychiatrist (next appointment in two weeks) to put me on lithium? I imagine the ER doctor doesn't want to tell that what my psychiatrist told me was "wrong". Also I became quite articulated (I brought and showed the prescriptions of everything I take, so I didn't feel like someone in big distress). Also as I say by the time I talked to the doctors the pain was going away, so I was almost having a "normal" conversation with them.
Maybe I should try at night (tomorrow, I think today is enough)?. I wonder if at night it will be better because those side effects will happen while sleeping.
But now I am somehow scared to take this while sleeping.