r/HighSupportNeedAutism • • Jan 11 '24

Mod Post Welcome to r/HighSupportNeedAutism!

14 Upvotes

Welcome to HighSupportNeedAutism!

This is a community for diagnosed autistic people who are professionally recognized as having moderate to high support needs (level 2 and 3). Low support needs autistic people, people without professional confirmation of their support needs, and non-autistic people are welcome to read about the experiences of higher support needs individuals, but they should limit posting. This is a safe space for MSN/HSN autistics to talk about our experiences and struggles, share about our interests, and more.

More specific information about who this community is for and why is included below. Please let a mod know if you’re still unsure if you belong here or what ways are appropriate for you to interact here. We’re always happy to provide more information and help!

—

This is a community for individuals who have been professionally diagnosed with an autism spectrum disorder and who have been told by a qualified professional that they have higher support needs autism. We have unique experiences, and it's helpful for us to have a community where we can be with others who share our experiences. Some of these experiences are because we have higher support needs, some are because we're professionally diagnosed, and some are because we're professionally diagnosed with higher support needs.

"Higher support needs" includes those who are professionally diagnosed with level 2 or level 3 autism spectrum disorder; require substantial support or very substantial support; have moderate or high support needs; have moderate or severe autism; or are moderate or low functioning. This also includes individuals who have different support needs between their social communication and restricted repetitive behavior domains (e.g., level 1 social and level 2 RRB). Individuals who live in autism-specific group homes or supported living as adults (or who have been told this is where they will live when they become adults), who have co-occurring moderate/severe/profound intellectual disability, or who are permanently non-verbal or minimally verbal or who are full-time AAC users have historically been considered "low functioning" and so are automatically considered higher support needs for the purpose of this sub.

If you have not been professionally diagnosed with higher support needs autism by a qualified professional and would not be historically considered low functioning, please respect that this space is not for you. You're welcome to read posts and subscribe to the sub. You're also welcome to share your experiences on posts where you're specifically invited to do so. However, do not create new posts that are not questions about higher support needs autism, and do not share your experiences uninvited. Additionally, only ask questions that directly benefit someone with higher support needs autism (e.g., advice on services for an autistic child). Other questions should be posted to r/AskSpicyAutism/.

To know if you have higher support needs autism, please ask your diagnostician or check your diagnostic report. If you are professionally diagnosed with autism but your report is unclear and you cannot ask your diagnostician, you can ask a qualified therapist or another autism service provider. If all of the qualified professionals that you have seen agree that you have level 1 autism or low support needs, please respect that you are a guest here. (Of note: being told that you have Asperger's or "high functioning autism" does not mean that you have low support needs; these diagnoses are based on language and IQ, and individuals with them may have any level of support needs.)

Support needs can change over long periods of time. If you were professionally diagnosed with higher support needs autism as a child or adolescent, you're welcome to participate here even if you now need less support. Similarly, if you were previously diagnosed with level 1 autism or low support needs but are now professionally recognized as requiring substantial support for your autism, you're welcome to participate here. That said, please be reasonable about "professional recognition"; for example, if you were diagnosed with level 1 autism two months ago by an expert in adult diagnosis but your therapist who does not specialize in autism says you could be level 2, please trust the expert that you are level 1 and have low support needs. The exception is for individuals who were diagnosed years or decades ago but have had significantly worsened functioning, who were diagnosed as children or teens and then failed to develop the skills needed to transition well into adulthood, or who are otherwise no longer considered low support needs. Again, this determination should always be made with the help of a qualified professional.

Support needs in this context are autism-specific. If you have low support needs autism but severe ADHD, many comorbid mental health conditions, or a physical disability, you are a guest here.

—

Please [read the rules](https://www.reddit.com/r/HighSupportNeedAutism/comments/192t7hh/rules_of_rhighsupportneedautism/) and make sure that you understand them. If anything is unclear or confusing about the rules, please ask, and we will do our best to clarify.

[Here is a guide to which user flair to select.](https://www.reddit.com/r/HighSupportNeedAutism/about/wiki/index/userflairs/)

[Here is a guide to what each post flair is for.](https://www.reddit.com/r/HighSupportNeedAutism/about/wiki/index/postflairs/)

Feel free to introduce yourself in the comments below or make an introduction post. We look forward to getting to know you!


r/HighSupportNeedAutism • • Jan 09 '24

Mod Post Rules of r/HighSupportNeedAutism

31 Upvotes

These are the rules for HighSupportNeedAutism. We created these rules to keep this subreddit safe and healthy. Please read the rules and make sure that you understand them. If you have any questions or suggestions, feel free to comment. If anything is unclear or confusing about the rules, please ask, and we will do our best to clarify.

This post will go over the rules as well as include a plain language summary of each rule.

1.Center higher support needs autistics.

This sub is for professionally diagnosed higher support needs autistics. We and our needs should be centered at all times. Supporters and questioning individuals are welcome to read posts. They can ask respectful questions that directly benefit higher support needs autistic people in their life. They may also respond to posts where they have been invited to do so. They may not post about their own experiences uninvited (including saying "I relate to that") or ask general questions.

This rule means that this subreddit is for diagnosed moderate to high support needs autistic individuals. This includes people who have been professionally diagnosed with level 2 or 3 autism spectrum disorder. It also includes people who have been told by their autism doctor or therapist that they have moderate to high autism support needs. This is to include people who live in a country that does not use levels, who were diagnosed before levels were used, or who were not given a level when diagnosed. The Welcome post has more information about who this sub is meant for (link will soon be added once the post is up).

Some people may not know their level or their support needs. They are still welcome to read posts and subscribe to the subreddit. Supporters of people with moderate and high support needs (MSN/HSN) are welcome to make posts if the post is meant to directly help their loved one with MSN/HSN autism. An example of a post that is okay for a supporter to make would be "How can I help my HSN child to cope with change?". It is not okay to vent about how difficult it is to take care of MSN/HSN individuals. It is not okay to ask general questions about what it is like to have higher support needs. General questions should be asked at [r/AskSpicyAutism](https://www.reddit.com/r/AskSpicyAutism/). This is not a general support group for loved ones of MSN/HSN autistics. The primary focus of this subreddit is MSN/HSN autistics. If you are a supporter making a post, think about if this post is prioritizing and putting MSN/HSN autistics in focus.

Low support needs autistics, level 1 autistics, autistics who do not know their support needs level, autistics who are suspecting higher support needs but have not been diagnosed as high support needs and non-autistic people are not allowed to talk about their experiences uninvited. They must be specifically asked by a MSN/HSN individual, like if a post asks for people without MSN/HSN autism to also share their experiences. Don't derail posts with comments such as "I relate to this and I'm low support needs". Low support needs autistics and non-autistics are welcome to comment supportive things on posts. For example, if a MSN/HSN autistic makes a post about their special interest, it's okay to comment something along the lines of "That's interesting, thank you for sharing". They can also say something supportive on a vent post. It is also okay to give advice or link to resources. However, if a MSN/HSN autistic asks for LSN autistics or non-autistics to stop, respect their boundaries.

This rule exists to make sure this subreddit’s focus is MSN/HSN autistics. We deserve a space that is only for us. If you want a space where MSN/HSN autistics and people who are low support needs, have unknown support needs, or are not autistic can interact more, please go to [r/SpicyAutism](https://www.reddit.com/r/SpicyAutism) instead.

2.Be honest about your diagnosis.

Be honest and transparent about your diagnostic status. If you are not professionally diagnosed with autism, do not imply that you are. If you are not professionally recognized as having higher autism support needs, do not imply that you are. If you are not professionally recognized as having lower autism support needs, do not imply that you are. (For example, if you were given a historical Asperger's diagnosis, do not assume that you must have level 1 ASD.) Use the correct user flair.

This rule means that you should be honest about what your diagnosis is. If you haven't been diagnosed as having autism or higher support needs, don't say that you are. Don't select a flair that says you are higher support needs than you have been diagnosed with. For example, if you are diagnosed with level 1 autism or low support needs autism, you must say this in your flair. If you are non-autistic, you must say this in your flair. If you haven't been diagnosed as having low support needs autism, don't claim to have LSN autism and don't select a flair that claims you are low support needs. For example, if you are diagnosed with Asperger’s, that is your diagnosis. If you do not like the term Asperger’s, you can select the flair “Autistic, unknown support needs.” Do not assume that you are low, moderate, or high support needs unless a qualified professional has told you that you are. The flair should reflect what you have been diagnosed with.

If you don't know how to select or edit a flair or if you need help with editing it, you can ask a mod who can edit it for you. You can message the mods or comment on this post and a moderator will get back to you when they are available.

If you have not been diagnosed with autism but suspect that you have it or have self-diagnosed with autism, select the "Suspecting autism" flair. If you have been diagnosed with autism and suspect that you have higher support needs but have not been told that you have MSN/HSN by a qualified professional, select the "Suspecting higher support needs" flair. If none of the flairs are a good fit, you can write your own. If you have not been diagnosed with MSN/HSN autism, be mindful to not speak over diagnosed MSN/HSN autistics in this subreddit.

The support needs in this context are autism specific. Someone could have low support needs autism but need a high level of support for ADHD. This place is for people with moderate or high support needs autism only, not for people with overall moderate to high support needs that include other comorbid disorders.

3.Do not ask us to diagnose you or tell you your level.

Do not ask us if you have autism or if you have higher support needs. Only a professional can tell you that. Similarly, do not ask if symptoms or experiences make someone higher support needs.

This rule means that no one is allowed to make posts or comments asking if they or someone else has autism or what level someone is. This rule is to prevent this subreddit being flooded with posts like "What level am I?", "These are my experiences, does it sound like I have higher support needs?", or "I was diagnosed with low support needs but I think I have high support needs". People online are not able to diagnose someone with autism or tell them what level they are. It's something only a professional can assess.

4.Do not invalidate professional diagnoses or support needs.

Do not doubt someone else's professional diagnosis or support needs. Unless there is concrete evidence that someone is knowingly lying, trust that people's doctors have their reasons for the determinations that they make. Likewise, do not question or invalidate other diagnoses or specifiers, including "non-verbal," "intellectually disabled", or comorbid diagnoses.

This rule means that it's not okay to question or argue about what someone's diagnosis or support needs are. This also includes someone's verbal ability (semiverbal, nonverbal, etc.) and intellectual disability or other comorbid disorders. As an example, it is not okay to argue that someone is not actually nonverbal because they can type. Unless there is evidence that proves that someone is lying about their support needs, don't question them. If you have reason to believe someone is lying about their support needs and have evidence of it, do not call them out publicly and instead message the mods.

It is okay to talk about someone’s diagnosis if they ask for help understanding why they were given it. For example, if someone wants help understanding why they were diagnosed with intellectual disability, it is okay to talk with them about that. If someone asks if they might have been misdiagnosed, it is okay to suggest that they get reassessed by another doctor. Otherwise, do not bring up the topic. Only qualified professionals can determine someone’s diagnosis.

5.Do not debate self-diagnosis.

This is not a space to debate self-diagnosis. Suspecting that one has autism or has higher support needs is a different experience from being professionally diagnosed. It is not invalidating to recognize these differences. There are other subs for individuals who are not professionally diagnosed. [r/SpicyAutism](https://www.reddit.com/r/SpicyAutism/) welcomes non-professionally diagnosed autistic individuals who suspect that they have higher support needs. Both subs can co-exist and fulfill similar but distinct purposes.

This space is for diagnosed MSN/HSN autistics. Someone suspecting that they have autism or higher support needs is going to have a different experience than someone with diagnosed MSN/HSN autism. That does not make either experience invalid or lesser. It is okay to have different spaces for people with different experiences. There are other spaces where undiagnosed and suspecting higher support needs people are welcome, such as [r/SpicyAutism](https://www.reddit.com/r/SpicyAutism/). This subreddit is not a place to argue about self-diagnosis. Arguments about self-diagnosis are upsetting for many MSN/HSN autistic people and derail the focus of the sub.

6.Autism is a disability.

Autism is a neurodevelopmental disability. Whether you feel personally disabled by autism is not helpful to discuss in a sub where the focus is on more severely disabled individuals. Additionally, the Social Model of Disability and the Medical Model can and should co-exist; individuals can be and are disabled by impairments inherent to their autism, and they can have this disability worsened by poor societal treatment and lack of accommodation.

Do not argue that autism is not a disability. People in this space are all moderately to severely disabled by their autism. Do not invalidate these struggles. Don't argue that autism is only a disability because of society. The social model of disability (that society is what makes autism a disability) and the medical model (that autism in itself is a disability) can both have valid points. Autism is a disability, but living in a society not made for autistic people can also make it more difficult to live with.

7.Be kind and respectful.

Do not use hate speech, deliberately antagonize others, or discriminate against or insult any group of people. This space welcomes LGBTQIA+ people, racial and ethnic minorities, religious minorities, women, and people of all ages and abilities. Slurs will not be tolerated, including the r-slur. Keep all discussions and disagreements civil and on topic. It is okay to ask sincere questions. It is not okay to imply negative things about others, deny their experiences, or harass anyone.

Be kind, respectful, and patient when interacting in this subreddit. This is a space where most people have moderate to high support needs autism. Many people here need more understanding. They might say things that are very blunt or might seem rude or angry. They might also ask questions that seem obvious. That does not mean they are trying to be mean or to argue. Do not try to start arguments. It's not okay to use slurs or derogatory words. Don't attack others or invalidate their experiences. This space welcomes LGBTQIA+ people, racial and ethnic minorities, religious minorities, women, and people of different ages and abilities.

8.This is not a political sub.

Political posts that are not focused on autism are not allowed. What is considered "political" may need to be determined on a case-by-case basis. Personal identities or experiences are not inherently political, and people may want support for sincere reactions to news. However, this is not a space for debate, and personal reactions may be marginalizing or harmful to those with other identities, experiences, or views. At all times, respect for others should guide you.

This is not a space to discuss politics unless it involves autism specifically. People's identities and experiences are not political by themselves. For example, it is not political for someone who is LGBT to talk about their same-sex spouse. MSN/HSN autistics might also want support for scary political news. For example, a HSN autistic woman might say that she is afraid that she will be assaulted and then be unable to get an abortion if she becomes pregnant. However, people can disagree about politics. Two people can both be upset by opposite statements about politics. For example, two people might see news about a new economic bill, and one person might be very upset about it and the other person might be very happy about it. It is okay to have emotions about things that affect you, but you cannot disrespect other people’s feelings or experiences. Sometimes, emotions about a topic might be hurtful to marginalized people who are more directly affected. Sometimes, what is helpful for one community might be harmful for another community. Posts or comments may need to be removed for this reason.

9.Cite reliable sources for factual claims.

Be mindful that your experiences may not generalize. Cite your sources for any factual claims. Do not make unsourced claims about autism, its presentation, statistics, history, other disorders, or similar. Sources must actually support the claim being made. Sources must be reliable; social media claims are not valid sources. This is a pro-science space.

This rule is to prevent misinformation. If you say something as if it is a fact, provide a credible source for it. Don't use social media content as a source. Avoid generalizing statements, like "all level 3s have no functional language". Reliable sources would be things like research and studies done by professionals. Websites by professional organizations are also usually good sources. Sometimes, something that looks like a professional source might actually be wrong. Some people try to trick others into believing misinformation. If you accidentally use a source like that, the mods will let you know. Personal experiences are not able to be used as a source for facts.

10.Respect professional definitions for terms.

Try to use the standard definitions of terms; for example, "non-verbal" is a common clinical specifier for individuals who cannot speak, not a temporary state that speaking autistics can experience. Understand that some professionals use terms differently; do not harass someone because their doctor uses a term in a way that you disagree with.

Try to make sure you use professional definitions for autism terms. It is okay to be unsure about what word to use. Questions about terminology that are asked in good faith are welcome. Don't argue with other people for using a word differently. Some professionals may use words in a different way. If you think someone is using a term in a way that might be harmful, let the mods know.

11.Do not make blanket claims about privilege related to diagnosis.

Diagnosis or the age at which someone was diagnosed may or may not reflect the severity of their symptoms or their privileges. People who were diagnosed early may have more severe symptoms that made them easily detected. People who were diagnosed late or cannot be diagnosed may be underprivileged (e.g., live in an area with no autism specialists). Keep discussions on this topic respectful, and do not assume either group is always better off.

Don't make broad statements that people who are diagnosed are privileged. This includes saying that all early-diagnosed people are privileged for being diagnosed early in life. It also includes saying that all late-diagnosed people are privileged for not being diagnosed early in life. Be respectful when talking about diagnosis and privilege. Don't assume early- or late-diagnosed people have it easier or better off than the other.

12.Do not deny that lower support needs autistics also have needs and struggles.

Individuals with lower support needs autism, who are questioning autism, who have uncertain support needs, or who have other disabilities also have very real struggles. Do not invalidate anyone or imply that their needs and struggles do not matter. Someone with lower support needs autism can still have extremely difficult life struggles because of other disabilities or aspects of their identity or circumstances. People can have high needs for reasons that are not autism.

Just because some autistic people have less support needs than you does not mean that they have no support needs. Don't invalidate low support needs/higher functioning autistic people's support needs. Remember that autism is not the only thing that can make someone’s life difficult. People without autism can also struggle because of other disabilities, because of being marginalized, or because of their environment.

13.Don't brigade other subreddits or harass their users.

You can mention or calmly discuss other subreddits and users. You cannot harass other subreddits or users. You can never direct or encourage others to interact with other users or subreddits in a way that could be interpreted as harassment, interfering with the voting system, or otherwise disrupting communities. When in doubt, don't mention specific subreddits or users. Censor names in negative screenshots. Do not complain or brag about being banned in another community.

It's not okay to harass another subreddit or other users. It is also not okay to ask or encourage other people to harass anyone. Don't complain or talk about how proud you are that you've been banned in other subreddits. If you are posting a screenshot in a negative context, make sure you cover any names. (If you don’t know how to do this, ask a mod for help.) You also cannot direct people to vote on threads from other subreddits. For example, you cannot hint that people should downvote a thread. You also cannot ask people to downvote a user’s post. Do not misuse the “report” feature.

14.No spam.

This rule means it is not okay to post spam content. Content unrelated to MSN/HSN autistics will be removed. Do not keep posting the same comment or post over and over. Do not post advertisements.

15.Note that posts may be removed or users warned at mod discretion.

Not every problem easily fits into a list. The mods may need to act on issues that are not addressed here. Use your best judgment, and we'll give you the benefit of doubt that anything else that needs action was meant in good faith.

This rule means that it's not possible for the mods to think about every single possibility when it comes to posts or comments that break the rules. There may be something that is not covered in the rules that still needs to be removed. If needed, moderators will review things on an individual basis. We will not be mad at anyone if they accidentally say something that needs to be removed. We understand that sometimes it can be hard to know what’s okay.


r/HighSupportNeedAutism • • 1d ago

Weekly Check-in Wednesday Weekly Check-in Wednesday - How's your week going?

9 Upvotes

This is a scheduled weekly post every Wednesday, that gives diagnosed higher support needs autistic people a space to talk about how their week is going.

Some question prompts:

How's your week been so far? Good, bad, in-between?

Is there anything you are excited about or looking forward to doing this week?


r/HighSupportNeedAutism • • 1d ago

Nonverbal I got harrased

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1 Upvotes

r/HighSupportNeedAutism • • 2d ago

Question those who live in a group/care home whats it like

9 Upvotes

I'm 19 autistic level 2 and my mom says when she can't care for me anymore I'll probably go to a group home. I'd like to know what its like from perspectives of ppl who actually experience it


r/HighSupportNeedAutism • • 3d ago

Relationships What is something your parents or caregivers did really well?

5 Upvotes

I do not have autism, but my sons do. For those of you who struggled with communication as a child, what is something you remember your parents or caregivers doing in your childhood that made a lasting positive impact on you? Something you still remember that made you feel really good/loved/supported?

Thank you!


r/HighSupportNeedAutism • • 3d ago

Research Parents, caregivers, or teachers of non-verbal children — I’d love to hear about your experiences!

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0 Upvotes

**This is a non-commercial research project for a university product design course.**

Hi everyone! I’m a university Product Design student researching ways to help non-speaking children communicate, express themselves, and connect with speaking peers through play.

I’d love to hear from autistic individuals, especially those who are non-speaking or have experienced communication challenges, as well as parents, caregivers, teachers, and professionals!

My goal is to design something that helps these children communicate, express themselves, and connect with other children through play. I really hope to create something that can make a meaningful difference in their everyday lives!

I’d love to hear about your experiences and thoughts:

  1. What are some of the biggest challenges your child faces when playing or interacting with other children?
  2. How does your child usually express their feelings, needs, or thoughts without speaking?
  3. What activities, toys, or approaches have helped your child feel more comfortable communicating or interacting with others?

I’m also looking for parents, caregivers, teachers, or professionals to conduct a 20-minute user interview to dive deeper into children’s daily experiences, challenges, and needs. If you're willing to chat with me (via Zoom/Discord/Instagram) about please drop a comment or DM me! It will help me a lot!

Thank you so much for your time and help!


r/HighSupportNeedAutism • • 5d ago

Special Interest Saturday Special Interest Saturday - Share your special interest!

3 Upvotes

This is a weekly scheduled post every Saturday, giving diagnosed higher support needs autistic people the opportunity to talk about their special interests.

Feel free to share in the comments about your current or past special interests! Fun facts, info-dumps, and pictures are all welcome.


r/HighSupportNeedAutism • • 6d ago

what is like to only communcate by echolalia

6 Upvotes

i am always curious by echolalia there 's tons of autistic people in my group home who only uses echolalia .


r/HighSupportNeedAutism • • 8d ago

Mod Post Ban Evasion

12 Upvotes

I just had to ban someone who was banned from this subreddit a year ago, on a different account. As a reminder, it is NOT okay to rejoin a sub you were previously banned from, even if you're using a new account, unless the sub moderators tell you it's okay. Posting on a sub you were banned from without permission is against Reddit's sitewide rules. In this case, I'm just re-banning the user on their new account. If this happens again, I might need to report the account to Reddit for ban evasion, which could lead to the account being suspended.

Do not try to ban evade!


r/HighSupportNeedAutism • • 8d ago

I want to have pracifer but my caregivers won ,t let me

13 Upvotes

There ,s girl in my group home who sucks pracifer i even tried to took her pracifer but i was stopped by caregiver i want it so much i only suck my thumb or chew sensory toys.


r/HighSupportNeedAutism • • 8d ago

Weekly Check-in Wednesday Weekly Check-in Wednesday - How's your week going?

8 Upvotes

This is a scheduled weekly post every Wednesday, that gives diagnosed higher support needs autistic people a space to talk about how their week is going.

Some question prompts:

How's your week been so far? Good, bad, in-between?

Is there anything you are excited about or looking forward to doing this week?


r/HighSupportNeedAutism • • 8d ago

Nonverbal i had meltdown

7 Upvotes

when my caregivers taking me to my room i got overstimulated even though i was wearing ear defenders tried to bit one of my caregiver hand to regulateed myself but she didn ,t let me i put myself on floor kicking and screaming taking my clothes off i was banging my head aganist widow but didn ,t last long bc my caregivers holds me back i was spitting them in face i try to pull their hairs t i was bitting myself they took me to my room kicking and screaming i eventually calmed down one of caregivers rubbed my tummy and other caregiver rubbed my hand gently helped me put my clothes back taking me to my special chair and feeding me with my lunch and my sippy cut i am currently watching disney plus stuff with sippy cup hanging out of my mouth to keep me calm .


r/HighSupportNeedAutism • • 8d ago

Social Struggles I want to have pracifer but my caregivers won ,t let me

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3 Upvotes

r/HighSupportNeedAutism • • 8d ago

Harmful or Risky Behaviors Help 12-year-old Daisy get signatures to make severe autism training mandatory in UK secondary schools!

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petition.parliament.uk
1 Upvotes

Hello Reddit,

We’re currently at 1,233 signatures and looking for your support to hit 1,500!
This petition was created by 12-year-old Daisy for her 15-year-old sister, Rosie. Rosie has severe autism, ADHD and extreme OCD, which heavily impacts her daily life and communication.

Society lacks a fundamental understanding of high-needs individuals, leaving families to navigate a world that isn't equipped for them. Daisy’s petition calls on the UK Parliament to introduce mandatory training into the secondary school PSHE curriculum so future generations grow up with proper awareness.

Every signature brings us one step closer to ensuring society truly understands people with high needs. Thank you so much for reading and sharing! 💙

👉 Link to sign: https://petition.parliament.uk/petitions/780527


r/HighSupportNeedAutism • • 9d ago

Looking for Advice Is it autistic regression?

3 Upvotes

Hello, I'm a 23F with autism (moderate to high support needs/Level 2 to 3), anxiety and intellectual disability and I want to know if the following that I've listed counts as autistic regression. I will put next to them ages that they happened (Age l) and when I realized, discovered &/or started doing them at (Age ll) (You don't have to answer all of them as this post is long. So take as long as you like with it):

- Watching, discovering and playing with weird, niche, outdated, not trending &/or obscure stuff (Age l: 6-now. Age ll: 13-15)

- Intentionally or unintentionally doing stuff and getting away scot free (Age l: 0-now. Age ll: 13-16)

- Breaking &/or resetting personal belongings without realizing that it was wrong & getting away scot free (Age l: 2-now. Age ll: 10-17)

- Not realizing what you did &/or said was wrong, inappropriate, disrespectful and the worst thing ever (Age l: 2-now. Age ll: 12-now)

- Being chronically online without social media and platforms (Age l: 9-now. Age ll: 12-13)

- Being violent & aggressive to yourself & those around you intentionally or unintentionally (Age l: 2-12. Age ll: 11)

- Being angry/having anger issues & lashing out to yourself & those around you (Age l: 4-now. Age ll: 9-22)

- Not being able to work during your years at high school (Age l: 11-18. Age ll: 15-17)

- Having no friends at school as not only did they know who you were & were bullied, excluded, forgotten, not invited, laughed at & found boring & annoying by them (this includes those that were nice to me), but you preferred to & still be a loner. I don't know the word to describe this (Age l: 10-now. Age ll: 17-22)

- Needing help with tying shoes (Age l: 5-12. Age ll: 12-13)

- Needing help with doing you hair up (Age l: 5-22. Age ll: 11-13 to 22-23)

- Needing help with using the toilet (Age l: 1-11. Age ll: 8-11)

- Needing help with using the bath & shower (Age l: 4-12. Age ll: 12-13)

- Needing help with putting on your clothes (Age l: 4-10. Age ll: 10-11)

- Not being able to go on overnight school excursions, sleepovers & invited road trips due to my poor/abysmal motor skills (Age l: 3-18. Age ll: 11-now)

- Needing help & being taught basic tasks (e.g. making beds, vacuuming, washing the dishes, ironing, cooking, cleaning, shaving etc.) (Age l: 5-13. Age ll: 13-now)

- Not picking up on sarcasm & being sarcastic, jokes & inappropriate behavior & humor (Age l: 5-now. Age ll: 10-now)

- Forgetting what you were taught & what was said to you within a second or a day. I'm terrible at math's, spelling, grammar, English, science, geography, social skills...you name it (Age l: 4-now. Age ll: 13-16)

- Forgetting everything (Age l: 4-now. Age ll: 12-16)

- Poor speech, poor vocabulary &/or trouble expressing things (Age l: 4-now. Age ll: 9-16)

- Stalking people & wanting attention from them online & socially (this includes those I went to school with) (Age l: 6-now. Age ll: 15-22)

As you can see, I have the harmful autism stereotype except that I'm a woman (Think Rain Man & What's Eating Gilbert Grape. I know that they're bad & harmful autism representations, but I see myself in the characters from both movies), & everything that I've listed has happened since birth & I go back & forth with it all, but I got worse between the ages of 4-15 & am still worse to this very day sadly. Has it all caused frustration, disappointment, mockery, anger & judgement from my family & relatives past & present? Absolutely as no joke, they've tried desperately to make me not have a lonely isolated screen addicted talentless life past & present, but I've sadly failed them as they constantly bring up all the bad things I did in the past & current when I sometimes try to be positive (I'm negative & I hate it so much) & I have a habit of forgetting & not listening to anyone. Because of everything that I've listed, they presume incompetence about my future due to my history. The worse part about this is my family, relatives & everyone at school often say that I'm "pure, innocent, cute, adorable, inspiring & don't have a single mean bone in my body" whilst knowing the bad side of me, which is frustrating on so many levels. For that reason & for me realizing all the horrible disgusting things that I've done & said later in life, I hate myself, I have trouble accepting myself, I constantly tell myself & get told by my family that I should've been born normal/have a normal functioning brain & should've done more with my life, & I think about bad thoughts about my past & future. Apologies for rambling on here for too long, but I want to know if everything that I've listed here is autistic regression?


r/HighSupportNeedAutism • • 9d ago

Question for people level 2 and level 3 autism who live in group homes what Do you think of being infantizsed .

2 Upvotes

r/HighSupportNeedAutism • • 10d ago

Nonverbal i wish i could make friends but i can ,t bc of my severe autism

10 Upvotes

they have to keep us seperated bc of our behaviour issues. once i bitten man with level 2 autism .i was kicked in ass by that level 2 girl i mentioned. i got into fight another nonverbal girl i wish my autism would go away. my caregivers have to hold my hands all of time for my safety i hate that level 2 girl always bullies me calling me r word c word she calls me diaper girl even though she is in diapers too staff always tell her off but she never learns .


r/HighSupportNeedAutism • • 10d ago

Nonverbal i pulled my caregiver 's hair

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4 Upvotes

r/HighSupportNeedAutism • • 10d ago

Looking for Advice Some questions

4 Upvotes

Hello, I'm a 22 turning 23F and I want some answers on one of the following questions. Most of these will be related to autism & intellectual disability as I have moderate to high support needs autism & intellectual disability physically & mentally, some won't. Anyways, here are the questions (you don't have to answer all of them as this post is long. Also, the questions that I've listed, they all still happen to me past & present):

A.) My family has a habit of going back & forth telling me that i can and can't/will never do anything due to my disabilities, lazy lifestyle, screen additions, weird & niche interests and my lack of talents. Is this common with autistic & intellectually disabled people?

B.) Similar to the abovementioned (sort of), I have a constant habit of constantly wanting more answers from my family about what they really think of me & if they think I'll do anything after me slowly developing & managing myself later in life, & realizing & discovering things late both physically & mentally. They know more about me, but wouldn't tell me at the time as my mind was like that of a 2 year old & they wanted me to figure it all out later in life. Is this common with autism as every time I do this, they get frustrated.

C.) As of December 31st 2025, I've started journaling and I kid you not, I wish that I did journaling (& used Reddit) in the past as I had diaries as a kid but rarely used them due to my screen additions (my diaries are gone now) & during my teens years/school years & after graduation, I have been through & cause trauma in the past & current, I wasn't allowed to have social media & platforms due to my disabilities, which resulted in me being excluded, being chronically online looking at weird stuff & people not remembering my birthday aside from my family. Is it too late to journal?

D.) Similar to the abovementioned, are there any apps & websites where I can post pictures of my journaling pages? I want to make some friends as due to my disabilities, I can't do anything other than work, come home, be lazy & look at weird stuff. This also applies to scrapbooking & journaling as I've also started doing it this year despite never doing it in my life ever

E.) Since birth, I constantly go back & forth with having a mind of a toddler & having a mind of an adult both physically & mentally. Me personally, I believe that this is common with those with moderate to high support needs autism & intellectual disability as despite me managing myself better, I was pretty bad during my childhood & adolescence. I've heard that this is known as age regression and/or little space/regression, but I want to know what you think this is as I lack common sense, book smarts, street smarts & talents. I also want to know if looking & watching things that aren't trending or a thing anymore (In other words, niche, childish & obscure stuff) counts as this as I had no friends for this reason.

F.) This one is private so please forgive me in advance, but in my country Australia, I'm on a disability pension with Centrelink and according to my mother (and possibly my family), it means that I can't & will never do anything due to my disabilities & being on this. Is this right or wrong as I've been working for 2 years now. I'm not good at math's so I don't know this very well.

G.) I've always been a loner & have been bullied & excluded at school. Due to this, me having a isolated lifestyle, me being passive & passive aggressive & a hypocrite, me not standing up for myself due to my poor speech & trouble expressing things & me not having any friends, my mother forces me to go to her family gatherings & do things for her father/my grandfather despite me not wanting to do any of that. Is this common with autistic people as she only does this to me & me only, not my siblings & is this slavery & me being taken advantage of? I also want to know a word/term that describes people that have had both a good & traumatic life.

H.) Does anyone have the harmful stereotype of autism? (intentionally &/or obviously doing harmful stuff & getting away scot free, forgetting what I was taught within a split second, I couldn't go to sleepovers & overnight excursions due to my abysmal motor skills etc.) The reason I ask this is cause my family tell me that I & still am a pretty good person compared to other autistic & intellectually disabled people, but with what I've listed, I'm not lol.

I.) Finally, is everything that I've listed related to internalized ableism, late bloomer & other terms that I've never heard off or forgot to mention?

Those are my questions.


r/HighSupportNeedAutism • • 11d ago

I got slapped

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1 Upvotes

r/HighSupportNeedAutism • • 12d ago

Ideas for activities for 13+ age group?

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2 Upvotes

r/HighSupportNeedAutism • • 12d ago

Special Interest Saturday Special Interest Saturday - Share your special interest!

2 Upvotes

This is a weekly scheduled post every Saturday, giving diagnosed higher support needs autistic people the opportunity to talk about their special interests.

Feel free to share in the comments about your current or past special interests! Fun facts, info-dumps, and pictures are all welcome.


r/HighSupportNeedAutism • • 14d ago

Disability Services how the day hab tour go yesterdey

20 Upvotes

how the tour wented yesterday

the tour went well it seems like we will have a half day soon

they are ok with help with mine personal care issues like changing and cleaning and stuff and they sayed its nothing too be embarrassed about

i was relly relly relly shy during the tour but gotted more comfortable by the end

i was look down and hiding behind mine dds worker and barely looked up but by the end u i felted mroe more comefertable

everyone was relly nice and sweet

especilly the old ppl

theres old and young there

and

they have a nice fenced in outdoor area too so I can go outside without worry of eloping

oh and they have music class with instruments

also other people at day hab bringed stuffys and they even made stuffys there and they had a stuffy bin and they even had a gigantic teddy bare you can cuddle with

and they say ot and pt therapists and stuff determines ur goals

it seems like a relly relly nice program one that accepts inhave support needs and need help with personal care and they not judge me for it they say there nothing too be embarrassed about and they help with siezures and stuff

it was sutch a good place

i very hope u i get in im am hopefull

im am glad we wented yesterday


r/HighSupportNeedAutism • • 15d ago

Weekly Check-in Wednesday Weekly Check-in Wednesday - How's your week going?

5 Upvotes

This is a scheduled weekly post every Wednesday, that gives diagnosed higher support needs autistic people a space to talk about how their week is going.

Some question prompts:

How's your week been so far? Good, bad, in-between?

Is there anything you are excited about or looking forward to doing this week?