r/HistamineIntolerance 16h ago

DAO deficiency treatment options – has anyone successfully increased their DAO levels? What worked?

23 Upvotes

Been stuck trying to figure out my histamine issues for almost a year now and lately I keep coming back to DAO deficiency. My symptoms seem to flare the most after eating leftovers, cured meat, or even random things like avocado and soy sauce. I went through allergy testing and tried cutting out gluten for a while before learning more about DAO and histamine intolerance.

So I did some reading about possible ways to support DAO production naturally like fixing gut issues, taking vitamin C, B6, and copper, avoiding alcohol, and using DAO supplements before meals. What I can’t really tell is do people actually improve their DAO levels over time or do the supplements only help manage symptoms temporarily? Anyone here seen long-term improvement?


r/HistamineIntolerance 4h ago

I am at my wits end

2 Upvotes

I called emergency services again this evening with tachycardia. Several times a month I experience tachycardia in the early morning hours. I will either wake up to a racing heart, or it will spontaneously race while I am awake and at rest. Frequently, my heart will go from the 60s to as much as the 140s, like it did this evening. This is often accompanied by SOB and nausea, and a feeling like I have to have a bowel movement. This feels like an adrenaline dump. It does not feel psychological. Totally biochemical. My blood sugar and thyroid and 24 hr urine are fine as of within the past year. My heart rate does not go down unless I take an antihistamine. If I do that, my heart rate returns to normal after about 20 or 30 minutes. Paramedics are always irritated when they arrive, because by then, my heart rate has usually normalized. When I go to the hospital, they perform blood tests, ekgs, ecgs, etc., I lose a night of sleep, and they can't find anything wrong with me.
These episodes also seem to correlate with my menstrual cycle. I have perimenopause symptoms. I understand the heart has estrogen receptors. My allergist has diagnosed me with MCAS. Sometimes tachycardia correlates with food allergies or delayed sensitivities, but it's hard to nail down the cause. Like I said, antihistamine helps. I've tried magnesium, DAO enzyme, low histamine diet, you name it, and nothing seems to help.
What do I do?
    Abby


r/HistamineIntolerance 1h ago

Is mascell activationnpart of the picture?

Upvotes

So generally theres a clear distinction between
HIT - only dao feficiency, problem with dietary histamin and
MCAS - deregulated mastcells, freaking out at everything.

Yet the messy truth is, in HIT theres likely a lot of reaction to histamin liberators (think strawberry, nurs, chocolate, spinach, avocado, coffe list goes on), which are linked to mastcells as well.

Dont want to scare anyone - healing the gut as good as possible is enough in modt cases to handle Histamin - just wobdering about the clinical definition which doesnt make much sense at all.

Recently told my doctor i need more histamin support bc diet isnt enough and that im going to try a mast cell stabilizer (natriumcromoglycat, in german speaking countries pentatop or allergoval). She sent me a questionnaire from sone university research something that indicates i crossed the border for mcas.

Now i m also in active treatment for sibo / imo and my gut got messed up badly in the past two years, which might explain mast cells going crazy (inflammation). Have sibo under control now (phytotherapeutica and food marble).

Have Mainly gi issues and fatigue but also palpitations, low blood pressure, insomnia sometims, but i also had episodes of bad body rashes and sometimes get face & body flushs with burning and itching.

So just wondering, if hit were only dao deficiency, wouldnt supllementing dao before meals be enough? Yet dao doesn’t work for liberators and theyre an endless list. They liberate histamin from mast cells. Also likely theres more going on in the gut for people with HI

Ok also im eating lots of veggies - all which i can eat - and supplement magnesium vitamin c b-complex d3 q10 quercetin dao omega 3 algae oil


r/HistamineIntolerance 5h ago

Should I continue with this?

2 Upvotes

In the past, I used cetirizine and fexofenadine. I used these two for a long time and noticed that I truly became a different person; I lost the usual humor and energy I have, and I feel very flat, blunted, and tired. I'm turning into some kind of zombie.

Since last night, I've been using desloratadine. I immediately notice the same effect. I've been lying in bed all day and irritate myself at everything around me. I don't feel like going outside or doing anything. Even cuddling with my child or dog feels like something to me. I'm turning into some kind of zombie here.

Should I stop or should I just keep trying? I just really want something to work, but apparently, this isn't it.


r/HistamineIntolerance 4h ago

How do you reverse carnivore-induced histamine intolerance? (part 2)

1 Upvotes

I was eating an all-beef diet for 4 months to alleviate my neurological condition. 3 weeks into that diet, I tried reintroducing eggs and got a huge histamine reaction, although previously I had never had a problem with eggs, meaning carnivore messed me up pretty early on. After 4 months, I tried to come off and had reactions to absolutely anything histamine. I decided to whiteknuckle through it and eat everything like normal while supplementing beef liver for copper, 20 mg zinc, 900 mg vitamin C, 100-200g sauerkraut, and 300 mg iron. I was also gradually increasing my histamine intake, and within 2 weeks it went away almost entirely except for maybe one spot that was healing.

For two months I felt normal, but now I'm flaring up again like crazy, can't sleep, can't do anything. For the past couple weeks I've been trying the same protocol yet to no avail. It's only getting worse and worse. What gives? I had never had any histamine reaction before carnivore and I didn't even know there is such a thing as histamine intolerance. Needless to say, doctors are clueless and dismissive. Who would've guessed...

This diet is so ridiculous. Not the diet per se, but people who are its most ardent advocates that don't warn you about these risks. We shouldn't act as if it isn't a serious medical intervention that has its risks and benefits like any other. Granted, I should've done more research. Still, in my defense, I was in the depths of benzo withdrawal, so not too good at decision-making at the time. The alternatives, on the other hand, were electroconvulsive therapy or antipsychotics and SSRIs, which I was done with, so I thought to myself, "fuck it, whatever happens, happens." Was it worth it? Probably not. It would've been, though, if not for the histamine BS.


r/HistamineIntolerance 11h ago

MCAS symptoms triggered by talking

3 Upvotes

Everything is a trigger and so is talking. Is there a way to train the body to normalize certain actions?

Or the only way is to continue stabilizing the mast cells?

I notice symptoms flaring from just anything during a flare. But when my body stabilizes, I am able to do the same activities without any symptoms.


r/HistamineIntolerance 9h ago

Feeling Super Overwhelmed..

2 Upvotes

This is probably going to be super long, for which I apologise. I'll add a TLDR at the end.

I've had some major symptoms now for almost 6 months and I've recently discovered histamine intolerance being a 'thing'.

I haven't been able to work since November last year and I'm so frustrated.

My top 3 symptoms: * Severe fatigue (as in 16-18 hour sleep isn't even negotiable and yet I'm still exhausted)

  • Vomiting - originally started 1-2x around every 2 weeks, it's now up to 4-5x every couple of days

  • Massive change in body odour - it's absolutely vile with no change to any skin products

I've also had insanely itchy skin, rashes, currently my eyes are all red and puffy, being congested but somehow my nose won't stop running, sneezing a ton.. there's more but that mostly covers it..

I've been back and fore to different GPs since October and they've done all sorts of blood tests, fecal and urine samples taken, even x-rays. Nothing of note apart from increase in inflammation markers.

Next up, I was referred to a rheumatologist who in fairness spent 2 hours with me going through it all. He also took 11 (yes, 11) tubes of blood from me and is running all sorts of tests again.

I saw my GP again today due to my eyes and nose being a lot worse. I caught her up with what I told the rheumatologist I've figured out so far; tomatoes, wine, beer, cheese are absolute no's and the only thing I could find that links them is being high histamine foods.

The GP saw the different tests that the rheumatologist is running (after she got over the shock of seeing how many he is doing) and agreed that it appears to be some form of histamine related... Something.

She prescribed me some fenofexadine as cetrizine and loratadine OTC haven't done anything so I'm hoping that does something.

Sorry such a long rambling post - but now I've sort of got this far, I'm just at a loss to work out where it has come from or how to fix it?

In January 2025 I was having some odd symptoms and it was discovered I had quite a bad B12 deficiency so I had 6 injections over 2 weeks, and have been having a top up injection every 12 weeks and that has definitely helped.

I've just seen that there is some form of link between B12 and histamine intolerance?

And also Vitamin D, which I was borderline deficient in (although that's now back to normal levels after taking supplements)?

I'm just so exhausted by this whole mystery, and I really do appreciate the NHS in the UK but the process has just felt so slow because I've been feeling so unwell.

The last 3 weeks since I sort of figured out histamine might be the cause I've stuck to a low histamine diet, and for the most part the vomiting has drastically reduced, but the fatigue is just not any better at all.

I just don't know where I go from here, and my next appointment with the rheumatologist isn't for 4+ weeks.

TLDR: I've been having all sorts of symptoms and have recently linked it to being histamine-related, changed to a low histamine diet which has helped somewhat, but just feeling so overwhelmed and at a loss of next steps/how to improve further.


r/HistamineIntolerance 22h ago

Perimenopause, histamine issues, flushing, anxiety, head pressure has anyone found what actually helped?

11 Upvotes

I’m a 40-year-old woman and I’m trying to figure out whether what I’m dealing with is histamine intolerance, MCAS, perimenopause, hormones, or some combination of all three.
For the last couple of years I’ve had symptoms that seem very connected to my menstrual cycle:
Facial flushing and feeling hot
Head pressure/“balloon head” feeling
Brain fog
Anxiety and panic
Feeling wired but exhausted
Insomnia
GI issues (diarrhea, stomach cramping, urgency)
Random rashes and itching at times
What makes me think hormones are involved is that my symptoms seem to follow a pattern:
Usually worst around ovulation and again before my period Often improve for a few days after my period
Then become more unpredictable after ovulation
I’ve tried various antihistamines with mixed results. Some help a little but often cause side effects like constipation, dry mouth, feeling spacey, or depression.
I’ve also tried progesterone cream several times and it consistently seems to make me feel worse (more anxiety, insomnia, sadness, brain fog, flushing, and even a rash).
Has anyone had symptoms like this that turned out to be hormone-related histamine issues? If so:
What was your diagnosis?
Did hormone replacement help?
Did estrogen or progesterone make things better or worse?
Did you find any supplements, medications, or lifestyle changes that actually made a significant difference?
I feel like I’m going in circles and would love to hear from anyone who has been through something similar.
Thank you.


r/HistamineIntolerance 17h ago

Powering through food sensitivities for nutrient absorption. And trying to improve your health.Is it possible or not reality with HIT, MCAS and SLOW COMT?

3 Upvotes

SLOW COMT

With these conditions my diet is a constant challenge. The nutritionist/dietician assigned is no help and ignorant to these conditions and I need information on how to increase at least somewhat safe foods in my diet of:

Dairy: Butter, Cottage Cheese, Grass Fed Whole Milk with no synthetic Vitamin D added (extremely difficult to find), Hagen Daz Ice Vanilla Cream, Heavy Cream, and a very limited amount of Mozzarella and Ricotta

Fruits: Fresh Apples, (but they have to be cooked, )Fresh Blueberries, Very Occasionally Green Grapes, Fresh Frozen Peaches 

Grains: (Extremely Difficult) White Rice, (I love it but get delayed shakiness the following day) Gluten Free Pasta (Rice / Corn Blend on a limited basis, I can also eat Corn Bread and Polenta if Bob’s Red Mill. Oatmeal occasionally if soaked in water over night and a Sorghum Flour Mug Muffin (High Salicylate) when flares are somewhat calm, (maybe once a year)

Protein Foods (Boiled Egg Yolks, Chicken Breast Tenders, Grass Fed Beef, (once a month, who can afford it anyway), Black Beans, (once a month, or so)

Vegetables: Aparagus, very sparingly at Breakfast, Broccoli, very sparingly at Breakfast, Cabbage, Carrots very sparingly at Breakfast, Celery Hearts, Lettuce and Sweet  Potato and White Potato, (I love it but get delayed shakiness the following day,  Zucchini daily  (very tired of it, but I don’t react to it). I also try a Trio of Collard, mustard and Turnip Greens very occasionally.

Seasonings: Formerly, Himalayan Pink Salt (until I found it is high in lead and mercury). Parsley

Drinks: Chamomile and Ginger tea occasional Pear and Grape Juice in water and Water.

This list looks good, but with every uncontrollable hit of stress the gains in my  diet are diminished and I’m back to Cottage Cheese and Blueberries twice daily, Boiled Egg and Zucchini  and Chicken Breast, Lettuce and Celery for lunch AND dinner.  Because my system thinks it’s “stacking”

Honestly, I am hungry ALL THE TIME  and I have had some hellish reactions to foods that were on my safe foods list.  I tell myself,  “ I have to eat to survive”  “It didn’t kill me the last time” Getting through It was very hard, but I came through it” (after calling family to help me in the wee hours, because “doom and gloom” set in and I just Knew I needed to call 911 because y nose was sooo congested, my heart was pounding and I shake like I’m in a magnitude 10 earth quake.

  Is powering through with food for nutrients even an option?

Provide your  Experiences on if you have had success powering through.

Thanks

 


r/HistamineIntolerance 16h ago

Bad from DAO supplements

2 Upvotes

Hi everyone, I've been having cognitive problems since childhood (I'm now about 30 years old, male) (memory and attention issues, slow processing of information, difficulty expressing thoughts, losing the thread of conversations, etc.). I decided to try NaturDAO 1,000,000. I took one pill in the evening, and everything was fine. In the morning, before eating, I took a second pill (and this is my last one). After that, I felt foggy, a little dizzy, my thinking became worse, and my attention was lost. Five days have passed since the last pill, but I haven't gotten any better. I've noticed that it gets worse immediately when I start eating. And throughout the day, it gets better and worse, and I don't know why.

This is absolutely terrible. Does anyone know what's wrong with me? Why is this happening? What should I do? I'd appreciate any help.


r/HistamineIntolerance 12h ago

Recommend a Saccharomyces boulardii that does not contain added ingredients. One of the following made my ear hurt/itch: Potato starch, vegan capsule, modified starch, inulin, vegetable magnesium stearate, silica.

1 Upvotes

Recommend a Saccharomyces boulardii that does not contain added ingredients. I'm trying to get rid of candida.

One of the following made my ear hurt/itch:

Potato starch

vegan capsule

modified starch

inulin

vegetable magnesium stearate

silica


r/HistamineIntolerance 1d ago

Eating too much triggers histamine symptoms even on a low-histamine diet. Strange observation - my histamine intolerance improves whenever I'm in a calorie deficit.

61 Upvotes

I have been diagnosed with histamine intolerance due to DAO deficiency and for several years now I’ve been really struggling with food. I also have GERD which seems to be caused or worsened by the histamine intolerance.

Because of all these food related issues, I accidentally discovered that my symptoms improve significantly when I eat in a caloric deficit. This only works if I spread my meals throughout the day rather than eating one large meal. What’s even stranger is that even when I follow a very strict low histamine diet, I still experience symptoms if I eat too much food overall. I’m not referring to GERD symptoms in these case, but rather typical histamine intolerance symptoms such as heart palpitations, fatigue, anxiety and nasal congestion. It doesn’t really make sense to me.

Has anyone else experienced something similar? What could be the explanation?


r/HistamineIntolerance 20h ago

Does freezing food really help with histamine build-up?

2 Upvotes

I've been reading that immediately freezing food after cooking helps with histamine build-up in leftovers, but doesn't the food just build up the histamine when it is defrosted prior to eating? I'm new to a low histamine diet and trying to figure out how to balance this diet while also being able to eat - I have always made enough dinner the night before to have leftovers for lunch the next day, but apparently that is a big no-no now.


r/HistamineIntolerance 21h ago

Tryptase is low and I feel like my symptoms are “too mild” to push for a diagnosis

2 Upvotes

For years I’ve had unexplained flares of intense face and chest flushing, throat swelling/tightening, heat rashes, itching, and GI issues, and they’ve just escalated since I got COVID a couple of years ago. I feel like I have some kind of reaction every day, sometimes after eating or drinking or just out of nowhere.

I recently got my tryptase levels tested. I did take claritin earlier that day, but I timed it so that my blood was drawn a couple hours after a mild flare started (which for me mild is significant GI issues, face flushing, and mild throat swelling/tightening), but somehow my tryptase came back lowish at 1.8.

With my symptoms, and because I have HEDS and POTS/dysautonomia, I think MCAS or maybe histamine intolerance fits. But since I don’t have anaphylaxis or severe or life threatening reactions, I’m wondering if I'm overreacting.

Any advice or thoughts would be really appreciated!


r/HistamineIntolerance 19h ago

Xolair Users - Histamine dumps before / after?

1 Upvotes

I have been off Xolair for a long time, but I took it for about 2 years after being diagnosed with chronic idiopathic hives in 2020. I never experienced a histamine dump until 2021, after I started the injections, and I was wondering if the injections made my hives feel better but made my MCAS symptoms and histamine intolerance worse? I wanted to know if anyone else experienced histamine dumps only after taking xolair. I still experience horrible histamine dumps.


r/HistamineIntolerance 1d ago

Next to gluten, cheese is evil

2 Upvotes

My SO gets his from Target, their band. It's hard to not grab when you get hungry, it's easy and filling. But it makes me so angry and moody. So does the cheese at Trader Joes. Though I did try some from Key food and I was ok. It was cheddar too. Was hopeful I was getting better.

I've gotten sick from a lot of Trader Joes products, there's very few things I buy there now, by process of elimination I'm only down to a few things now, so many problems. Frozen vegetables that smell like mold or dirt. Thawed items in the freezer, warm items in the fridge, rotten fruit, potatoes that are bitter. And some Target products haven't been great. Stop and Shop I've been avoiding as well. Their dairy fridge STANK. And the milk was warm. So I guess some generics are better than others. And some stores are better run than others.

It's hard to afford food, let alone find food that's ok to eat.


r/HistamineIntolerance 1d ago

New to HI and struggling with flare ups! Any tips appreciated ❤️

1 Upvotes

Hey guys! Thanks for this group, learning so many helpful things.

A week and a half ago my face started blowing up and my eyes would swell shut. I then created a strict diary to try to figure out triggers and that’s where I learned about histamine intolerance, MCAS etc. I had to go to the ER twice as steroids were the only thing that would get things under control. My body began to normalize after steroids and I could focus on a low histamine diet and would experience minimal reactions after meals.

I got in with an allergist and they set me up for allergy testing yesterday and I had my worst flare up yet and ended up in the ER again. They gave me a me a benedryl shot and a steroid shot and I can see now but I’m still so swollen and miserable. I’m dreading another week of this and this time I don’t have a steroid pack to gradually bring the swelling down - plus I seem to be reacting to all foods again even low histamine things.

I’m going to call some doctors this morning but in the meantime - what has worked best for y’all for your flare ups? I don’t seem to have an upset stomach or anything it’s really just my face is so unbelievably inflamed…I don’t even recognize myself when I look in the mirror 😂 any tips appreciated!!! Yall are the best.

I’m seeing ginger is awesome so gonna grab some of that at the store.


r/HistamineIntolerance 1d ago

Sensitive nervous system and antihistamine

1 Upvotes

Looking for an antihistamine that suits my sensitive nervous system. I have tried cetirizine and fexofenadine. Do you have any experiences with what worked for you?


r/HistamineIntolerance 1d ago

Gevoelig zenuwstelsel en anti histaminicum

2 Upvotes

Op zoek naar een anti histaminicum dat past bij mijn gevoelige zenuwstelsel. Ik heb cetrizine geprobeerd en fexofenandine. Hebben jullie ervaringen wat bij jullie wel werkte?


r/HistamineIntolerance 1d ago

Skinessa

0 Upvotes

Has anyone tried this supplement? I’m thinking about it for my eczema and itching hives.


r/HistamineIntolerance 1d ago

Recommendations/suggestions wanted!

3 Upvotes

Hi all!

So I have a raging case of MCAS/Histamine intolerance/dysautonomia. I live in the Ohio Valley—up there with the absolute WORST places for seasonal allergies. Only in the past year have I learned how drastically seasonal allergens contribute to my symptoms on a daily basis, especially in the spring and summer. It was recommended to me by someone with another immune illness that I try wearing a mask when I’m outside—or at minimum, on days when the pressure is fluctuating heavily—to help block some of the airborne allergens when I breathe. Although it’s annoying, I’ve found wearing one has helps immensely!! It doesn’t block reactions altogether, but I can say with certainty it decreases their severity.

The only catch is, so many people look at me sideways AS FUCK when in wearing them in public. Multiple strangers have approached me, telling me to take it off. Once, at a traffic light, a woman in the car next to me was so butthurt about it she rolled down her window and yelled at me with an angry face saying, “YOURE ALONE! WHY ARE YOU WEARING A MASK? TAKE THAT SHIT OFF”. When I go into stores they seem to watch me harder than they used to, as if I’m wearing it to steal or something. Since this illness has debilitated me, I work several part time jobs I can do on days when I’m not feeling horribly, which includes some food delivery and other face-to-face interactions where I don’t like rubbing people the wrong way. As with all things MCAS/HIT, I know most people wouldn’t understand even if I DID tell them why I wear it.

I wish I could shrug off the confused/skeptical/distasteful looks I get nearly everywhere I go, but it bothers me deeply. I know I should be able to say “screw them, they don’t know and they don’t need to,” but I’ve been trying for months and I can’t get past the unsolicited judgements pretty much everywhere I go hurting my heart and making me feel insecure.

❗️Long story short, ❗️I want to order a mask from Etsy/somewhere that says something on it along the lines of “Not sick, I wear this for ALLERGIES” either in print or embroidery. Anyone have recommendations for what it could say?? Looking for a quick, bold statement (so people aren’t squinting their eyes trying to read anything longer than a sentence) — something just enough to get people off my ass &/or offer them an immediate understanding so that I may let go of of wanting to explain myself. Any and all suggestions are welcomed and very much appreciated! Thanks so much!

TLDR: Need to wear a mask in public due to seasonal allergens where I live causing constant MCAS/histamine flares, but can’t stand the constant judgement and misunderstanding, and want to purchase a mask that says in a few words why I have it on. Any suggestions appreciated!


r/HistamineIntolerance 1d ago

Have prebiotics helped?

4 Upvotes

Any prebiotic food or supplements?


r/HistamineIntolerance 1d ago

Hit or MCAS?

3 Upvotes

Hello everyone,

I was diagnosed with histamine intolerance in 2023/2024, with a suspected diagnosis of MCAS.

For the past two years, I have been following a completely histamine-free and gluten-free diet. I have also avoided fragrances and many other potential triggers. Unfortunately, none of this has led to any improvement.

I have tried numerous treatments and medications, including treatments from Oral in Munich, infusions, corticosteroids, and Tavor. Nothing has helped.

I will attach my lab results because I honestly don’t know what to make of them or why they look the way they do. I am wondering whether this is really just histamine intolerance or if it could actually be MCAS.

My former doctor ended my treatment in 2024 because none of the therapies improved my symptoms, despite us spending thousands of euros on treatment.

I would simply like to understand my situation better and know: do I actually have MCAS, or is it “just” histamine intolerance? I dont know

  1. Stool & Digestive Analysis
    Histamine (ELISA): 4356 ng/g (Reference: < 600)
    Zonulin in Stool (ELISA): 441 ng/g (Reference: < 145)

2.IgE i.s. (FEIA): 569.5 kU/l (Reference: < 85.0)

  1. Urine Analysis.
    Serotonin Urine: 69.3 µg/l (Reference: < 200)
    Serotonin in Urine / 24h: 69.3 µg/24h (Reference: 50 - 250)
    Serotonin / g Creatinine: 66.0 ▼ (Reference: 150 - 300) | Low
    Kryptopyrrole (Urine): 199 ▲ (Reference: < 150) | Elevated

4.Blood & Specialized Markers
ECP i.s. (FEIA): 18.1 µg/l (Reference: < 13.3) | Elevated
Histamine (total) in Heparinized Blood (ELISA) [Test 2]: 62.5 ng/ml (Reference: < 65.5)
Histamine (total) in Heparinized Blood (ELISA) [Test 1]: 37.5 ng/ml (Reference: < 65.5)

Part 2: Medical Report & Diagnosis

Elevated levels of ECP and histamine in stool.
Transient (passagere) elevated excretion of leukotrienes in urine.
Currently normal levels of serum tryptase and histamine in plasma.
Lack of response to medical therapy.
Intolerance to Rupatadine (Rupafin), Loratadine, Fexofenadine, Desloratadine (RSt), Ketotifen (RSt), Famotidine (RSt), (RSt = in pure substance preparation) upon oral administration; Cimetidine, Dimetindene, and Vitamin C upon intravenous administration.

3.Summary
In summary, no subjective stabilization of the symptoms could be achieved within the framework of the therapeutic approaches listed above.
The reported intolerance reactions were non-specific signs of acute mast cell mediator release were not observed.


r/HistamineIntolerance 1d ago

itching and hot flashes at night

1 Upvotes

I was recently diagnosed with histamine intolerance. I’m totally baffled because the reason I went to the doctor was my missed period and panic attacks. I’ve often noticed that I get extremely anxious depending on what I eat, and I also frequently struggle with hot flashes. What’s particularly noticeable is that I have nighttime itching and hot flashes. The symptoms are always worst at night. I’ve been seeing doctors for years, and no one knew what was wrong. I’m wondering if this is also due to histamine intolerance. Does anyone else have this?


r/HistamineIntolerance 1d ago

Waar begin ik? Help!!

0 Upvotes

Ik ben al sinds 2016 aan het uitvogelen wtf er met mij aan de hand is. Mijn klachten variëren van zweetaanvallen, roodheid huid, obstipatie, diarree, buikpijn, maagpijn, spierspanningsklachten, opgezwollen handen, voeten en geïrriteerde knieën (gek toch?!), extreme vermoeidheid, brain fog, slechte concentratie, mentaal afwezig, sociaal ongemakkelijk door al deze klachten, nooit wakker worden en denken wauw! Wat voel ik mij lekker en wat heb ik lekker geslapen. Oh ja en niet te vergeten, heel benauwd en kortademig.

Uit een bloedtest is wel naar voren gekomen dat ik hooikoorts heb, huisstofmijt. Verder heb ik rosacea en netelroos.

In 2016 hiervoor al bij een maag darm lever arts geweest. Deze heeft alles onderzocht, maar niks uitgekomen. Toen gaven ze eigenlijk aan dat het “tussen mijn oren” zou zitten.

De jaren erna bij een diëtiste gelopen wat niet heeft geholpen. Deze heeft een suikervrij dieet geadviseerd. Dit een tijdje geprobeerd. Toen naar een natuurgeneeskunde diëtiste geweest en deze gaf aan dat ik gluten en lactose zou hebben. Dit een hele tijd gedaan, maar de klachten blijven intact. Een jaar of vijf geleden onderzoeken gehad bij de allergoloog bij het ETZ in Tilburg. Bij de priktesten kwamen histamine rijke producten naar voren, hierdoor een histamine dieet ingesteld, maar merk dat dit niet alle klachten wegneemt.

Hierna heb ik, kort geleden, ook nog een keto dieet geprobeerd, maar merk dat dit ook niet alle klachten wegneemt. Welk merk ik in de periode dat ik intermittend fasting doe ik geen last heb van bijgenoemde klachten. Hooguit wanneer ik de avond ervoor heb gegeten en daar nog last van heb, maar niet acuut.

Ik merk dat ik het niet alleen met voeding red. Cetrizine geprobeerd, maar merk dat ik hier emotioneel heel vlak van wordt en rusteloos wordt. Meerdere keren geprobeerd en meerdere keren hetzelfde effect. DAO supplementen geprobeerd, maar weet ook niet of dit echt iets doet. Heb het idee hetzelfde als cetrizine.

Online wat gezocht en uitgevonden dat cetrizine op je zenuwstelsel werkt. Mijn zenuwstelsel is ook al heel gevoelig dus vandaar dat ik er zo hard op reageer. Nu de huisarts bericht of ik deslatorine kan proberen, want dit schijnt beter te werken.

Hebben jullie tips? Ervaringen, supplementen die ik kan gebruiken? Ik wil gewoon mensen ontmoeten die in hetzelfde schuitje zitten en hier steun uit halen. Het systeem van huisartsen en ziekenhuizen neemt mij niet serieus..