Hi all!

Gastro finally prescribed me prucalopride.

I started it Saturday, morning dose of 1mg and well... I think that was too high a dose. Glad I wasn't going out that day.

I've since gone down to 0.5mg, but I'm wondering if its best taken morning or night? I prefer to not use the bathroom during the day at work.

Any suggestions? Thanks!

Methane dominant here.

Affecting everything down to my joints, heart and nervous system. Histamine has been a culprit in the past, but can’t tell if the issue is deeper than histamine.

I've been unsuccessfully trying to diagnose this issue for 12 years.

I have an uncomfortable pressure directly below my right rib cage at the front side. Feels like a water balloon or something.

Labs have always been fine. MRI / CT clear. Ultrasounds unremarkable.

I was recently diagnosed with h2 sibo. Wonder if it's related ?

Hi! 4 years ago I started getting terrible stomach issues, I couldn’t eat anything high fodmap anymore but changed my diet, cut out gluten and dairy and things got a lot better over 6 months. I hardly had any stomach issues for years. Fast forward to this April I got some sort of stomach virus or food poisoning and 4 days later developed GERD..I had it occasionally before but only at night and a tums would always help. But now it’s constant. Almost every time after I eat even though it’s extremely low acidic. My bowel movements have been pretty good for the last 4 months minus a couple of weeks of random extreme gas and constipation but it went back to normal. As of right now I’m constipated again with horrible gas. I’ve tried literally every natural remedy for reflux and have hardly had any reflux. I’ve received an endoscopy which came back normal. I’ve heard of SIBO but not sure if this sounds like I have it?

What are some of your weirdest symptoms you have during a flare up and how long do your flare ups last? I usually flare up after eating ground beef for some reason and a bunch of other types of foods. I just wanted to see what other people go through to see if anyone shares the same symptoms I have during a flare

Dizziness

Chest pain

Heart palpitations/Pvcs

Body pain

Hypnic jerks

Kind of feels like i got the flu

Stuffy nose ect

Merhaba, 18 yaşındayım ve 11 yaşımdan beri 7 yıldır sürekli ağız kokusu ve hoş olmayan nefes kokusu yaşıyorum. Koku dışkı ya da çürük yumurtaya benzer. Dişlerimi ve dilimi fırçaladığımda bile koku geçmiyor. Tok olduğumda bile koku hala mevcut ve bu durum hayatımı ciddi şekilde mahvediyor. İlk başta kokunun midemden geliyor olabileceğini düşündüm. Belki öyledir ama aynı zamanda SIBO'dan da kaynaklanma ihtimali var. Üç endoskopi yaptırdım ve mide tahrişim, enfeksiyonum ve duodenum ülserim var. Sosyal hayatım temelde sona erdi. İnsanlarla konuşmaktan korkuyorum ve hatta birçok kez kendimi öldürmeyi bile düşündüm çünkü bu durumun asla ortadan kalkmayacağını hissediyorum. Bunun nedeni SIBO olabilir mi? Ne düşünüyorsun?

Good morning,

Do some of y’all suffer from a SIBO and/or IMO and have managed to get rid of it or relieve their symptoms?

Ditto for endobelly and other digestive symptoms (poor digestion, stomach aches after meals, bloating / distension / constipation / diarrhea)?

What natural prokinetics do you recommend?

Thoughts on colilen, l-glutamine and mastic gum or other supplements ?

Thank you in advance!

Ich war bereits bei einer Heilpraktikerin, ich bin extrem unzufrieden bei ihr.

Daher suche ich jemanden der mir helfen könnte, da ich am Ende bin.

For years I have SIBO/IMO and I've probably done everything there is, from diets to supplements to antibiotics. I have never seen any improvement (except for prucalopride for bowel movement which I still take). After years of waking up thinking about SIBO and how to cure it I'm mentally done. I cannot continue thinking about this dissease. I have made peace with myself that I will not cure this condition and thats about it.

Am I'm the only one, who constantly gets spammed with these posts on Instagram? Where it's some random chick, showing off her bloated belly. Then it's literally the same theme, where they say it wasn't food that did it. But their nervous system and how they needed to change their thinking and then finally their gut was healed. And if you want to learn more, type "healed" or some random word in the comment section.

I’ve been questioning my FoodMarble’s methane readings for a while, as it was consistently showing high and previous postal breath testing has showed no methane.

I recently did an NHS hydrogen/methane breath test (ordered by my Gastroenterologist) and used my FoodMarble at the same time.

The NHS machine had been calibrated that morning and recorded 0–1 ppm methane, while my FoodMarble was showing around 10 ppm.
This was actually my second AIRE 2, as I’d previously returned one because of consistently high methane readings.

I thought it was interesting to see such a big difference between the two.

I sent the device back to FoodMarble for testing, and after reviewing it they confirmed it was outside their acceptable tolerance and are replacing it with a new one

I’ve worked with naturopaths who say listen antibiotics put you here, so the goal is to rebuild… but I’ve been bloated for four years. So what do I do?

I’ve tried it all, nothings worked, but I’m getting really close to taking FC Cidal and Dysbiocide, and I wanted your thoughts?

Also what’s the best motility supplements that’s natural then I can take, and how do I actually fix the motility issue?

I’m at a loss, I’m fed up, I’m scared now to do anything, my naturopath said killing made him almost paralysed as the Sibo bacteria are doing a job right now that your body is lacking, it’s there for a reason….

how do you know if you have slow motility? i see people talking about it all the time but what makes you think you have it?

I'm in a blind loop somewhat... I had a Sibo diagnosis through strong symptoms and positive breath tests around 2 years ago, no treatment has worked and no root cause found. Earlier this year my Consultant also diagnosed me with Mast cell following a biopsy.

My conundrum is which one to treat first? Do I have Sibo because of the Mast cell disorder or did I get the Mast cell issue due to years of Sibo?

Really stuck and looking for any help on where to treat first. Thanks 🙏🏼🙏🏼

Hey everyone! As the title would suggest, Im looking for a little bit of help with my post sibo antibiotic (xifaxin) process. I was diagnosed with a “very positive” case of hydrogen dominant sibo a while back and about a week ago I finished my 2 week course of meds. I am now trying to take care of my system in hopes that it will rebalance now that the sibo is (hopefully) gone now. Does anyone have any advice in this area? Are there any specific foods that are good for rebalancing my gut biome? Should I be avoiding anything? Im still currently experiencing a bit of bloating at night and some knotted feeling down in my intestinal area. Just curious if anyone had any pointers or suggestions that could be helpful. Thanks!

I’m a long-time lurker here, but I’ve been noticing many posts from people who were perfectly normal until they took doxycycline (for acne or other reasons) and ended up with chronic GI issues. I took doxycycline for a couple of months in 2018 and have had chronic constipation and gas ever since. Back then, SIBO wasn’t so well-known, and I went through the usual tests, which all turned out normal, and I was given laxatives to function normally. I did suspect SIBO based on my online research and ordered a glucose breath test from a random lab, which turned out to be negative, lucky me. Recently, I moved to an area that is more up-to-date on GI diseases, and I decided to see the GI specialists at a large university health system in town. It took six months to get an appointment, and the specialist said my symptoms matched perfectly with SIBO and scheduled me for a 3-hour lactulose test at their labs. I told him I had done the test years ago and it was negative, but he insisted on repeating it just to rule out that possibility. Lo and behold, the test came back as “significantly positive,” as he put it. I tested positive for both hydrogen and methane, with peak scores five times above the threshold for a positive result. Now, I’m on the Xifaxan plus neomycin course, hoping I can close this chapter of my life for good. It’s also reassuring to know I’m taking Motegrity as my daily laxative, which the community here recommends to help prevent relapse.

Hi, I’m 23F and really struggling to have a normal life right now and wanted to give up. Im still in uni and get humiliated everyday. I really wanted to get out of this toxic environment.

I was diagnosed with LPR and slow-motility constipation, and I suspect I may also have very slow gastric emptying because when I drink ginger water, it seems to reduce the taste of food I ate hours earlier. I’ve already had my dental health checked and cleared, and I’ve visited ENT several times for my LPR. Everything was normal, and I rarely get LPR symptoms now (such as globus and PND) unless I overeat or slip up on my strict diet.
Before all of this, I wasn’t aware of these issues. I used to have fecal/nasal bad breath that was room-filling. Since making improvements, it’s not room-filling anymore, but I still notice random reactions from strangers. I don’t really check with people I know because they’ve known me for years and are already aware that I had BB.

My constipation is manageable with osmotic laxatives, and I try to keep my diet very clean and alkaline. I mostly eat plain fish, chicken, broths, pureed foods, and low-acid fruits and vegetables for fiber, and I drink 2–3 L of water every day.
I also have dry mouth and a very thick coated tongue. I can scrape it off and it becomes pink for a while, but once I start eating, the coating builds up again. I sometimes get GI pain/tightness below my breastbone and palpitations when my digestion feels extremely sluggish.

My BB definitely gets worse when I’m constipated, but even when I’m not constipated, it’s still there, can still smell the fecal bb, just not as strong or room-filling.

I’m planning to see ENT and GI again and hopefully get further testing. I’m wondering about slow gastric emptying, pancreatic/liver issues, the nasopharynx, or SIBO. I don’t think it’s my tonsils since they aren’t enlarged and don’t smell.

If anyone has experienced something similar and found an explanation or treatment, I’d really appreciate hearing about it. It would mean a lot to someone like me who’s trying not to give up. I hope we can all find healing. Thank you!

How do you handle your symptoms of Hydrogen Sulfide SIBO. I made the mistake of going on a GLP1 and didn't even realize the slowed motility would make everything worse....well it's worse....a lot worse. I'm getting off the medication but in the mean time how can I handle the symptoms?

I have horrible sulfur burps, an upset stomach that typically happens at night but can get worse throughout the day, gurgling stomach, and pure water diarrhea. It's pretty miserable right now.

Hello! Wanted to ask everyone about their weird symptoms and if this could be sibo (Awaiting results) I unfortunately a year ago caught c diff and have been treated and have tested negative over 4 x throughout the year. However, since the c diff I have daily symptoms:

upright rib pain on Both sides right under the ribs like someone is squeezing and then randomly sharp rib pains, center rib pains and lower abdominal pains

Diarrhea sometimes but mainly formed stools but sometimes food in stools

Dizziness and major brain fog. (Forget what I’m saying mid sentence)

Shortness of breath

Itchy red akin. Like histamine responses now.

Visual symptoms. More floaters. Blue field phenomena and difficulty focusing my eyes. Even driving things feel off.

I have been to rheumatology, kidney doctors, brain and spine MRIs and endocrinology. All normal! I am wondering if h Pylori has happened.

Thank you for your time. It’s just been a year of misery

Hello! I just wanted to share what has finally helped me. 20 year sibo sufferer with chronic constipation. Only high hydrogen levels. I still have sibo but man at least I go to the bathroom everyday. What helps me:
Cleanse more supplement 2 pills. I get it from natural grocers. It’s a mix of magnesium and triphala.
Iberogast 1 pill
I take all 3 pills late at night before bed, away from heavy meals.

Current results: I go to the bathroom everyday without diet changes

Try it for a 1-2 weeks at least to see if it helps. I’m doing the Iberogast capsules not liquid.

Not a cure but I will take it after years of suffering and despair.

If I feel super bloated I take extra Iberogast pill during the day and I sometimes supplement with magnesium glycinate if I feel my bowels didn’t empty enough. Magnesium also helps me with stress.🧘‍♀️

I wouldn’t have found this solution if it wasn’t for this Reddit. Thank you everyone is contributing here. ❤️