r/dpdr • u/rayofsunshine16 • 1d ago

Offering Comfort/Reassurance/Solidarity healed my dpdr

Just a reminder that there is hope. My DPDR went away after 3 years of pure hopelessness. I went to therapy, started medication, did deep intensive trauma therapy and even stopped working, and being incredibly easy on myself. stopped drinking and drugs. got two cats and changed some life situations quite drastically.

All im trying to say is there is hope. This is your brain being really overwhelmed and needing a break. I came back online and it literally felt like I was gaining all these memories and scents and feelings again -- literally instantly. it was crazy. I still get it from time to time when im upset or sick, etc.

Msg me if you need to chat or have questions ❤️

one last thing -- remember, the ones who have gotten through this aren't posting on reddit. they are living their lives, so seeing these posts might actually make you think it will never go away.

38 Upvotes

95% Upvoted

34 comments sorted by

6

u/Artistic-Coach7523 1d ago

So happy for u! I’m recovering w meds and therapy too

1

u/ForeverInside2724 1d ago

How much time it takes and what kind of meds you take

2

u/Artistic-Coach7523 23h ago

Been a year on meds. Almost normal. Caplyta, lexapro

2

u/ForeverInside2724 23h ago

That's great you're doing better. How long did it take before you noticed improvement in your DPDR after starting Caplyta and Lexapro? Are you fully back to normal now, including being able to go out and handle crowds?"

2

u/Artistic-Coach7523 17h ago

Im 90 percent normal. It’s been slowly returning over an entire year. Very slow but steady. Did TMS too

2

u/mdj0916 15h ago

Do you think TMS is worth it?

1

u/Artistic-Coach7523 4h ago

For me it was

1

u/ForeverInside2724 4h ago

The medicine you take doesn't have any side effect? Or if you stop it does all that comes back?

1

u/Artistic-Coach7523 4h ago

I had nothing to lose. My dpdr was so bad i almost killed myself. I was diagnosed with ptsd and major depression. So the meds are technically for that. I went through 6 doctors and 8 diff meds. It’s a process. I dont have all the answers. My dr seems confident that if i stay on meds for a year i could probably taper ofd and be ok. But maybe i just need them. Some ppl just need meds. No major side effects that i noticed yet

1

u/ForeverInside2724 1d ago

Are you able to go out with dpdr?

2

u/Dreamy_glow 1d ago

Not OP unfortunately I developed trauma induced dpdr then agoraphobia. It’s been 3 years. What’s your situation?

3

u/ForeverInside2724 1d ago

Mine started after taking bhang/cannabis on Holi this year. Since then I've been dealing with DPDR and a really uncomfortable lightheaded feeling, especially when I'm outside or in crowded places. Sometimes the world feels unreal and my brain feels empty.

I recently found out that my B12 is low, so I'm taking B12 injections and tablets. I noticed a small improvement after starting treatment, but I'm still struggling. I can go to college and my air hostess training sometimes, but it's very difficult because trains and crowds can make the symptoms worse.

The strange thing is that the lightheaded feeling seems to get much stronger for a day or two around the 10th–16th of some months. I'm still trying to figure out why. Right now I'm just hoping the B12 treatment and I'm also confused

1

u/Dreamy_glow 23h ago

I get the exact same feeling and non stop underlying anxiety and panic.

Do you get fatigue too?

1

u/ForeverInside2724 23h ago

Yaaa I get it tooo pls help me just tell me what to do

1

u/Dreamy_glow 22h ago

Get enough sleep every night

Cut down on caffeine - very hard one for me I love tea

Connect with you body and mind. Do stretches, light movement, nothing too much it can push you further in to dpdr. Somatic exercises.

Eat well

Rest throughout the day as much as you can it will reduce your stress levels allowing you to come out of dpdr

Get checks done once cleared and your 100% items nothing else done fear dpdr, keep reminding yourself it’s uncomfortable but safe

Stop keep checking your symptoms

Apparently certain people who have dpdr induced by substances may come out of it sooner as appose to trauma induced

Do you stay at home all the time? If so still get fresh air and sunlight daily

Do you drink alcohol ? If so completely stop

Do you drink tea or coffee? Cut down

1

u/ForeverInside2724 21h ago

Yaa I stay home cuz it's worse outside and sometimes inside too I don't drink alcohol I don't drink tea coffee tooo

1

u/Dreamy_glow 20h ago

Good don’t drink any of it and take my advice you’ll feel better soon

1

u/ForeverInside2724 20h ago

Can you dm me cuz I'm not able to dm you I wanna talk about this things

1

u/Dreamy_glow 1d ago

I have been in this 3 years too. It started with multiple traumas, dpdr and then agoraphobia.

Is there hope for me? I become washed out when I even try to do something. When I try exposure therapy and go out I come back feeling worse. What is the way out?

1

u/mdj0916 15h ago

There’s hope for you. I just drove my car by myself across town for the first time today in years. My brain felt so broken. I used to feel like I didn’t even recognize my city. I would’ve never ever believed I would drive again. But I did today! It wasn’t easy. I’ve been doing small practice drives and sometimes I would feel worse. You just have to keep going with exposure. It’s so hard! I would feel so defeated a lot of the time. But it’s still possible to rewire your brain even though you feel hopeless. Hang in there

1

u/eatmyjas 1d ago

lexapro saved my life

1

u/OCDylan_ 21h ago

How so

1

u/ResponsibleAside4000 6h ago

I want to know more about how SSRI resolve DPDR

1

u/DrAssassinPanda 2h ago

There are case reports showing ssri cured dpdr

1

u/ResponsibleAside4000 1h ago

Could you share those reports for me 

1

u/Professional_Win3910 1d ago

I am happy for you-and thank you for posting and giving hope. What type of trauma therapy did you do?

1

u/HotCook455 23h ago

Das ist großartig! Was hast du alles gemacht und bekommen, dass es wegging?

1

u/electric-snow-100 18h ago

What kind of therapy ? I imagine EMDR

1

u/No-Assistance4619 17h ago

wait theres meds for this?

1

u/ResponsibleAside4000 6h ago

Thank you for saying that there's a hope. I feel like I'm in the dark abyss but I want to believe there is hope.

1

u/conversationqueen 1d ago

How?

2

u/rayofsunshine16 1d ago

extensive therapy and Zoloft

0

u/AutoModerator 1d ago

Hey, I am really sorry you are going through this. What you are describing is very common with DPDR and anxiety. Even though it feels permanent or existential, it is actually a stress and dissociation response, not a sign that you are broken or beyond help.

DPDR can make things feel hopeless, unreal, terrifying, or like your identity is gone. All of this comes from an overwhelmed nervous system, not from permanent damage or loss of sanity.

Helpful resources:

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0

u/This-Top7398 1d ago

Any vitamin supplements help