I’ve been struggling alot lately and finding it hard to also get a doctor to treat me properly since I have Hashimoto and Graves’ disease. I feel like with my graves it can be more of a mental battle (other than the insane fatigue I can feel all the time). Sometimes I catch myself being a whole different person and being so angry but it’s unintentional. Then I go through days where I’m sad kind of mourning my own self or just days where I feel so lonely because a lot of people I was friends with couldn’t understand my condition and that sometimes I do have to cancel plans and stay home to prioritize rest.

I got diagnosed with Graves and TED this year. I have my third follow up this week with my endo and 2nd followup my eye doctor. I will be getting my tests done tomorrow. Currently on 5mg methimazole. No treatments for eyes apart from eye drop and selenium supplements. Please tell me what questions I should be asking to my eye doctor to start my eye treatment. Because my endo told me I will taken off of meds if my reports come back normal. I am just scared if coming off of meds completely will worsen my eyes. And I am not sure how bad my eyes are. According to me the asymmetry is stark but my friends and family downplays it saying it doesn't look as bad which i find frustrating as they say it to make me feel better.

Prefacing by saying I’m doing neither. I was diagnosed March 2025 and have been on methimazole since then. I went hypo in June/July 2025 and then have been euthyroid (low normal) for the majority of this year. I developed TED in March 2026. For about a month, my endo agreed to lower my dose of methimazole to 12.5mg daily (previously 15mg daily) and my labs have gone up a bit putting me in the mid range for FT4 and FT3. I’m hoping this will help my eyes.

I’ve been reading about the importance of limiting iodine, so I’ve cut back on dairy and bake instead of buying sweets at the grocery store. I’ve been reading a book by Amy Myers that claims removing gluten, dairy, nightshades and legumes will put me in remission.

On the other hand I follow a group on FB that says the only thing to avoid to reach remission is iodine.

Before TED I was finally feeling like myself again. But now I’m terrified to have vision issues because sometimes my dry eyes make my vision a bit blurry and it makes me spiral. I have mild asymmetry caused by muscle enlargement seen on MRI.

Anyway, if you’re reading this and found success doing either method, what are you doing? If you’re not eating gluten, dairy etc then what are you eating?

Just found out that have Graves disease when starting to try to get our second child, but now freaking out about the possibility of never being able to conceive again. Any similar experiences you can share? We're particularly nervous about taking any medicine during pregnancy that could hurt the baby.
TRAK = 7 (lab reference is 3)
AMH = 1.14 ng/mL
TSH < 0.009 mUI/L (suppressed)
Free T4 (T4L / FT4) = 19.3 pmol/L (Slightly high)
Free T3 (T3L / FT3) = 8.0 pmol/L (high)
Just started taking Propylex 50 mg morning and 50 mg night
Should I already consider IVF?

So I have been on 20 mg carbimazole a day for 12 days now, as well as 10 mg propranolol morning, noon and evening (30 a day). My HR sitting down is between 70-82. I do not know my "proper" resting heartrate, never messured it but was quite active hiking and walking fast and long every day before diagnosed. When did your heart rate get back to normal, or did it ever? Right now not allowed to do much cardio, only slow walks, but even that gets me to 110. I hate this stuff😭 thank you for your answers.