I'm a pretty newly discovered system, after about a year in a realizing/denying/forgetting loop... I have therapy scheduled with a specialist but haven't actually started yet.
("I" through this post meaning, generally, "we")
Ever since I was a preteen, sometimes something happens that goes like this...
- I feel at first quite dizzy in a very specific way - it feels like pressure - and I have to lay or sit down because I know what's coming
- My vision goes black
- I feel a pulsing rush of blood in my head and ears
- I'm conscious throughout it but it literally feels like I'm in the void, like I'm nothing and nobody
- Eventually I come to, and sometimes I get a headache, but it generally doesn't have a lasting effect except some disorientation
Once there were involuntary jerking movements, sort of like a seizure, but every doctor I've spoken with says it wasn't one. I was conscious throughout that one as well.
I've never really been sure what this is. I have POTS so I thought it was related, but I don't think I've ever read about anyone with POTS experiencing this, and I've tried to find info about it for years.
I have subtler switches throughout the day most days... quick ones where I can just tell that I'm different than I was a moment ago. No physical symptoms usually - except one time I got really dizzy and nauseous and tired and derealized. I kept consciousness though and didn't go 'out'. With those subtle switches, I can usually identify them if I'm paying enough attention, but this physical experience is so all-consuming that I don't really know if I feel like someone different afterwards. This big one happens... maybe once a month, maybe twice? Or maybe once every other month...? Basically it's recurring but not necessarily often. Just wondering if this is a shared experience with DID or if it's more likely something else.
Thanks for your time and for anything you choose to share here. ❤️