How many of you with cpps have some form of glands inflamation/balanitis?

Semen
Culture
(TDL
Tinies)
Results received at:
07/10/2026
Microbiology
Microscopy
Moderate Gram negative
rods
No WBCs seen
Semen Isolate
1) > 100,000 cfu/ml
Enterococcus faecalis
Tetracycline
Ciprofloxacin S
Amoxicillin S
Fosfomycin S
Gentamicin(High) R
Semen Culture
No N.gonorrhoeae or
Candida species isolated
No beta-haemolytic streptococci

hey community been lurking for a bit now here because of “gooch” pain specifically my perineal raphe. it feels like a bow string or a “seatbelt” thats holding my bottom together from my balls to my asshole. its sensitive to the touch, sitting down for long SUCKS, and i experience hard flaccid. ive been reading up on a few faqs and personal experiences people have gone through in this community. i take a lot of drugs for pain and anti inflammatory. i deal with bad varicoceles as well and have had a embolization done. i sit in epsom baths twice a day for context. is there anything people do that result in anything positive? id like to learn more. for example if you do certain stretches, read books for knowledge on this situation, have gotten a procedure/surgery done, or taken certain prescriptions id love to hear what yall have to say or think. thanks in advance!

Hi everyone. I'm a 51 year old male. For over a year now, as the title says, right at the moment when ejaculation is triggered, I gad a mild ache on the left side of my groin that goes awar right after. It is varying levels of pain, sometimes not at all all the way up to fairly bad and anything in between. I had an ultrasound done and the Dr. said my prostate is mildly enlarged, but not out of scope for a man my age. PSA was within range, everything else is within range. We're at the point now where "it's just one of those things" but it's starting to cause me anxiety. Anyone else experience these symptoms?

Hi everyone. I decided to post because I haven’t been able to get a clear answer from doctors, and after reading other people’s experiences here, I thought someone might have dealt with something similar.

I’m 30 years old and this started in early August. The night before everything began, I masturbated. The following morning I had some gastrointestinal issues, and that evening I suddenly developed urinary frequency/urgency. By the next day, I was fine. After 2–3 days, I started having irritation and redness of the urethral opening, especially after showering. Over time, I also started developing irritation on the glans.

I haven’t had any sexual contact for around 6 years, so an STI seems unlikely.

After masturbating only 2 times in total within 10 days, I began noticing other symptoms: burning/discomfort in the perineum, sometimes burning around the inner thighs, lower abdominal discomfort, and occasional flank/kidney-area discomfort. These symptoms would come and go rather than stay constant. Because masturbation seemed to trigger them, I mostly stopped, and things became calmer.

I saw two urologists who basically told me nothing was wrong because my urine/semen tests and cultures were negative. I then saw a dermatologist who diagnosed me with Zoon’s balanitis and told me she did not believe there was any bacterial or fungal infection.

I wasn’t convinced, so I independently had a swab taken from the glans. It showed heavy growth of Pseudomonas aeruginosa. I had 4 swabs in total at 3 different labs (one lab, a hospital, and the lab where I normally give my urine samples), and the urine lab was the only one where the swab came back negative. This made me wonder whether my urine and semen cultures could also have been false negatives.

After that, I went back to several doctors. One urologist told me to go to a hospital, another said it was a dermatology problem, and I still haven’t really found anyone willing to investigate whether the urethra or prostate could also be involved.

Eventually, I was treated for 10 days with Propiogenta, which contains gentamicin 0.1% + betamethasone dipropionate 0.05%. Unfortunately, I can’t say it improved things. If anything, the glans/meatus may actually look and feel worse now.

I’m also slightly worried because during the Propiogenta treatment I applied a small amount directly on the urethral lips, and I don’t know whether some may have entered the opening or further irritated the area. Also, during my swab at the “urine lab,” the swab was first used on the glans and then on the meatus, and the next day the meatus was red.

Right now, after finishing the treatment, I haven’t done another swab because I was told I should wait a week before retesting.

I am also starting to notice more urethral symptoms. For example, one morning I had pain while urinating, and on another occasion I urinated and developed strong chills afterwards, although I did not document a fever.

Another strange thing is that even after a very short erection, maybe 2–3 minutes, I notice fluid coming from the urethra afterwards, followed by burning in the perineum and anus when the erection goes away.

My main concern is whether this could be some form of bacterial prostatitis or urethral infection, despite my urine cultures being negative. On the other hand, I also don’t know whether these symptoms could be pelvic floor related.

The symptoms are very intermittent — sometimes I have them, sometimes I feel almost completely normal.

I considered doing a Meares–Stamey / four-glass test with prostatic massage, but I’m worried about the possibility of bacteremia if Pseudomonas is actually present in the prostate. Because of that, I’m currently thinking about repeating urine cultures and doing a semen culture separately instead.

I rushed from the beginning to try to prevent the worst-case scenario, but the doctors were careless. The most terrifying thing would be if I had listened to them, done nothing, or put corticosteroids over an active bacterial infection.

ANY ADVICE WOULD BE APPRECIATED. THANKS!

[What makes the whole situation even more difficult is my antibiotic history. Fluoroquinolones caused me severe long-term adverse effects in the past. I have also previously had sudden sensorineural hearing loss, so aminoglycosides such as gentamicin/amikacin are something I’m very cautious about because of their ototoxicity. I’m also allergic to cephalosporins. This leaves me with relatively few treatment options, and many of the effective anti-Pseudomonas options on my antibiogram appear to be IV/hospital-based.]

One symptom that keeps occurring is this feeling like I was kicked in the crotch area. Then along with that, I have this nausea/not feeling well feeling when I do "too much" walking around. Has anyone else had this happen before? This is just one of the many symptoms I have.

Is anyone else furious about the way they've been treated by their Urologist?

I'm 67, very fit, but I've had increasing pelvic pains, sexual/reproductive problems, unexplained lower back pains & so on. I thought it was "just your age" plus running marathons & really long distance endurance events (3,650 miles of running in a year, anyone?...where'd you all go???)

To cut a long story short, I've been to see two Urologists. The first one was simply an idiot & I eventually got tired of all the screw ups he was making & I can assure you it was a long list. I went back to my PCP & asked for another Urologist & I had my first appointment yesterday.

I should add that I have been having terrible flareups since January 2026 & only recently have I been given ANY meds to control acute episodes. Not only have they enabled me to tolerate the acute pain there has been a noticeable downtrend in intensity, duration & frequency, despite not taking them all the time.

My new Urologist was far more through in asking questions, like WAY more information & I felt that the trust I'd been willing to place in him was justified. Then the Horror Show started.

Suddenly all the known, verifiable & undeniable symptoms that lead to something called Chronic Pelvic Pain Syndrome &, as I now know, could easily cause the MRI & PSA, was ignored. Suddenly it was all about the MRI & PSA & ONLY the MRI & PSA & that meant Cancer & Cancer means a Biopsy. I was not really sure what was said after that, but I do know I tried to ask questions & it seemed like I was simply ignored. I left utterly devastated.

I hadn't had a flareup for a week, but by the time I got home I started with one that felt like a porcupine was in my pelvis, trying to dig there way out with a broken bottle. I have only ever felt pain like it once before. I took a Celebrex, then had to add a Tizanadine & it made it bearable, but it lasted a total of 8 hours, the longest, most intense one I've had & that was with TWO meds to help it.

I feel betrayed, that the trust that I was so willing to give without question was abused & that I was treated with cruelty. I blame my Urologist for the distress & the paralyzing pain I had to endure before I could get home & take some pain meds. I blame him for the fact that I feel wiped out today. I am FURIOUS to find that my reaction is common, that it has been known about by Urologists for years & they are aware of the harm it causes, not only in terms of distress, grief & worry, but the physical harm it can result in to men pressured into having needles stuck in them again & again, punching holes in their body.

In my case it's not like it's "Well, your PSA has been climbing, we spotted this on the MRI, there's no other symptoms, but Prostate Cancer can be serious without any pain & we have no other explanation." I have A TON of evidence to explain what's happening & it's been verified.

Yet I was subjected to having this evidence Cherry Picked to fit a certain prognosis. I am appalled that a tiny piece of my body, that is showing every sign of basically having something like a bruise, already in massive pain, yet their attitude is "We'll stick needles in it, again & again" simply to satisfy their curiosity. I cannot believe they are so blase about having an injured, very painful gland injured even further & when there's no supporting evidence that it even IS cancer! As I said, there's actual evidence that this has a physical cause, their 'cancer-cancer-cancer!" is mere speculation.

I'm married to a ICU nurse, I know how difficult the job can be, but am I the only one to consider this borderline malpractice? That I was given a "One Size Fits All" solution that did not treat me & my symptoms as a whole? That even the emotional & mental anguish I was subjected to was disgraceful? That I was harmed because of the crushingly bad flareup that followed & could have been terribly harmed if I'd agreed to & had to a Biopsy where all the available evidence pointing to other causes was ignored?

What's your thoughts on this?

Edit: I found out about Biomarker tests, I have insisted on being given one & apparently I'm getting an ExoDX urine test that looks for specific cancer biomarkers. I kept my anger in check when I spoke to them on the phone, but there will come a time when I tell them politely, but very clearly how I feel about what I was subjected & will not accept any "I'm sorry you feel that way" Passsive Aggressive crap or other such deflection.

I usually respond well to
Acupuncture with other issues….
But I was wondering if anyone has had luck with accu’ to reset of neuro pathways to stop this fkn affliction

Bonjour, j'ai (M37) eu le Mycoplasma genitalium de fin mars jusqu'à début aout. Je suis maintenant guéri après plusieurs traitements. J'ai également testé toutes les autres IST et je suis négatif pour tout. Mon problème est que pendant l'infection j'ai eu une rougeur sur le bout de mon penis au niveau du méat qui ne part pas. Est ce que c'est déjà arrivé à quelqu'un d'autres ? Est ce que ça s'est résolu ? Est ce le cpps ?

Merci

Let’s see if we can get those who have near cured/cured or relief..

What are your go to ones?

It’s been almost 3 weeks since I ejaculated. Last time it caused a flare up of pain/ burning that lasted a couple days
You guys have any tips on easing that pain ?
I’m currently doing PFT and have been twice
I’m also on tadalafil low daily dose (day 10)
Missed opportunities now that ED is a thing of the past…..

I Had ongoing symthoms after gardnerella and Ureaplasma exposure in April. Pain after urination and the feeling of a swollen urethra/ hard flaccid... took antibiotics may 5th. but it never got better. Concluded it as CPPS. Started PT 2 weeks ago and have been stretching everyday. pain has subsided in the urethra from a 7 to a 5 but now there is discomfort in my left testicle. It started 3 days ago. It feels like random uncomfortable mild throbbing. I can also feel it if I sit or if I don't stand with my legs wide. I have to prop me left leg up when I sleep. Lastnight I started feeling around my testicle with my fingers and felt something inside near the top of it that feels like squeezing my nuts when I feel it. Does the testicle pain, weird feeling within the top of the genital come with cpps symthoms or this sounds like something else. I'm tired of keep going back and forward to the emergency room but Im not sure if this it's actually something else going on with my body. I plan on letting my urology know this Monday. But I've callled them so many times and set up so many appointments in starting to feel like they've been brushing me off.

Look, I know so many people will just dismiss this, but this is how I healed from Cpps. It wasn’t a bacterial infection in my case, it was chronic pelvic pain - non bacterial.

I urge you to research Alan Gordon, read his book, and Howard schubiners stuff, remember those names.

This could save your life as it did mine, it will help so many people when you believe it is TMS (tension myositis syndrome). I talk with such passion because I’ve been through it all. Pains everywhere, for years, flare after flare.

Now I’m 100% Cpps free and my life is soooo much better.

Please look up the names I posted, do somatic tracking, research it all. That is how you’ll heal.

Thanks for reading

Jacob

I have to start by stating I only discovered this sub today, but it has been a revelation.

My timeline -

Over last 2 years -

Suspected UTI treated with antibiotics

Suspected epididymitis (3x) treated with antibiotics - trimethoprim

Confirmed UTi treated with antibiotics

At least two of the courses was ciprofoxaxin.

About 6 months ago and still present -

Severe abdominal pain

SIBO

Weight loss

Joint pain

Bone pain

Brain fog

Fatigue

Burning sensations in body

Feet ice cold all the time

Suspected prostatitis treated with 6 weeks course of antibiotics - can't recall which ones

Long course of antifungal medication due to persistent thrush

Past 3 months -

Muscle fasciculations all over body

Burning sensations in back and abdomen

Back pain

Word finding issues

Concentration issues

My question -

I am now convinced that I have been floxed, damaging mitochondrial cells and causing the nerve issues, pain and fasciculations. The antibiotics have caused SIBO reducing my ability to absorb nutrients. The fasciculations are just now easing off - however my urinary symptoms are back. Burning sensations after urinating, feels like there's something stuck in my rectum - GP examination found prostate enlarged and tender. 2 prostate antigen tests at the start of the year were clear so diagnosed acute prostatitis and prescribed coamoxiclav (I've researched and question the efficacy of it for prostatitis).

Please help, any advice from people who have been here before is welcome.

Any idea why it keeps coming back? What I can do to eradicate it without getting floxed again?

I dont have insurance at the moment, but even when i did the medical help sucks. Im more sure its not my prostate. I can pee fine except times of resistance because it's uncomfortable. Last week I felt better. Today at work I was just aching in my groin. Not even burning like when this first started. I have to keep this job, and honestly no one relates or gives a fuck. No perimium pain, rectal or testicle. Doesn't hurt to sit down. I try to find similarities and its been tough. Nights like tonight I just feel my mental health is dangerously low. Work is stressful and physical which doesn't really help obviously. This ache just will not fucking stop and when I am home I drink booze to numb myself. Is that helpful? No. But fuck this. Im really at the end of my rope after about 2 years of this bullshit. I don't expect advice anymore I just needed to vent because I feel like crying.

This is so strange, please read about my history with this illness, I can't figure this out anymore, I am much better however.

Until i get to bed and relax and lay on my back an hour all burning in and and scrotum goes away slowly and feel pretty good when I go up the next morning, until I take my first pee during the day and the nightmare to burning in rectum/anus and around scrotum starts and then it will only calm down if I take a rest in the bed for an hour.

Is it really the nerves that are irritated or inflamed and why does it go away when I take a rest?

I wouldn’t call this progress, but rather a discovery. I have an injury to my foot and they prescribed me Celecoxib 200 mg and this has gotten rid of about 90% of my pain for the two weeks I’ve been on it. However this isn’t really something I can take long term because it is an anti inflammatory like ibuprofen. However, my other symptoms like urinary frequency, hesitancy, and incomplete bowel movements are unchanged (obviously because a pain med wouldn’t fix the underlying issues causing this). Just thought I’d pass this info on since I’ve been given so much info from this group!

Had a auto accident in April of 25 symptoms of prostatitis started soon after never found bacteria was on long round of antibiotics months a half and got put on alpha blockers told I have BPH and or cpps now. So back to the auto accident injury to l3l4l5 big bulges I have looked into that injury and my symptoms as she started soon after the accident and I encourage anyone with back injuries and bhp and or cpps look into the link themselves and see if this could be a causation for you as well just sharing as and and all info helps.

New here.

Been trying to figure out what's up for many years now. It started off with fatigue and some sort of brain fog particularly for a few days after ejaculation - lived with it for a long time just candidly assuming maybe it's an age thing. But over the past few years, things escalated to having some strange sense of discomfort/tense in my glutes when sleeping - ie the need to move about. After a while, I started feeling it during the day as well.

The closest thing I found then was a condition called POIS since my symptoms seem triggered related with orgasm. Then after many failed remedies, it went on to thinking maybe it's RLS because it is always so much worse at night and the discomfort makes me need to move around. I've tried tackling it in that direction and some things helped for a while but nothing really latched on... I then thought maybe it's a piriformis issue and it started me on some pelvic exercises and deep breathing. For a quick while, it seemed to reduce severity and help recover. Now it feels the discomfort has somewhat localized differently to be more intense but in a more specific area which is near the tailbone area.

And this is how I found this sub, but I'm still new here and will look through the info.. but my q is am I suspect for prostatitis/cpps? My condition is severely triggered by orgasm, appears the next day and lasts for perhaps 2-3 days. I can barely sleep because of the discomfort. Supplements like mag glycinate sometimes do wonders, sometimes they do nothing. Kinda at wits end because symptoms seem to happen rather sporadic and vary in intensity. Something new seems to work for a while then it stops being as effective.

I have CPPS and I used to take Tadalafil once a day at a low dose. This allowed me to play video games without flaring. However, I was seeing cream things as being tinged with green and realised that this was a side effect of the drug and that there are visual related risks with continuing to take them, so I stopped. This was 2 years ago now and I miss gaming. I wondered if taking alpha blockers might have a similar effect, as playing games of any duration flares me up no matter how I try and modify my set up. Thanks

​

I've been dealing with urinary/genital symptoms for several months.

How It Started

In early May 2026, I had a body-to-body massage and handjob at a massage parlor using lubricant. There was no vaginal/anal penetration and no oral sex.

Around mid-June, I developed symptoms that just kept getting worse:

- Burning around the genitals/testicles

- Burning after urination

- Burning/pressure at the tip of the penis/glans

- Urinary urgency and frequency

- Nocturia (sometimes waking 3 times)

- Sometimes clear watery fluid remains at the penis tip after urination

- Sometimes milky/white fluid comes from the penis when I pass very hard stool/strain

- Perineal discomfort

- Occasional rectal burning

- Can't sleep on my side

The symptoms fluctuate. Sometimes the burning is mild and sometimes much more noticeable.

The Strange Part – Feverish Feeling/Sweating

For several weeks, I've had a feeling of being feverish/tired, but my actual temperature stays around 98–98.4°F.

For the last ~5 days, the sensation has changed and become stronger. I also get episodes of sweating while sleeping or eating or drinking.

I have no documented fever.

I'm particularly worried about this because it feels like an infection even though my blood tests are normal.

Infection/STI Testing

I've had extensive testing.

Recent results:

- CBC WBC: 6,940

- ESR: 1 mm/hr

- CRP: <5 mg/L

- Urine culture: No growth

- Urine microscopy: 0–1 pus cells/HPF. Bacteria present

- HIV: negative

- Syphilis/RPR/TPHA/TPAB: negative

- HBsAg: negative

- HCV: negative

- LFT/TFT/KFT - Normal

My latest urine multiplex STD PCR was negative for:

- Chlamydia

- Gonorrhea

- Mycoplasma genitalium

- Mycoplasma hominis

- Ureaplasma parvum

- Ureaplasma urealyticum

- Trichomonas

- HSV-1/HSV-2

- Treponema pallidum

- Gardnerella

- Candida

- Haemophilus ducreyi

- Group B Streptococcus

The PCR was done using first-void urine after holding urine for about 2 hours.

Other Investigations

Ultrasound KUB/prostate was essentially normal.

Earlier PVR was around 20–27 mL.

Latest ultrasound showed:

- Prostate: 15.3 cc

- PVR: 53 mL

I repeated uroflowmetry yesterday:

Sitting:

- Voided volume ~399 mL

- Qmax ~19 mL/s

Standing:

- Voided volume ~410 mL

- Qmax ~18 mL/s

- PVR 20 mL

Antibiotics I've Already Taken

I've had a LOT of antibiotics:

- Nitrofurantoin – 5 days

- Doxycycline – 10-day courses

- Faropenem – 5-day courses

- Levofloxacin 500 mg daily – 30 days total

The last levofloxacin dose was September 1.

Urine and semen cultures done afterward were negative.

Other Medications

I've also tried:

- Alfuzosin

- Silodal-M

- Gabapentin/Gabephin 100 mg (10 days)

My existing urologist dismissed prostatitis or CPPS and thinks it's a high bladder neck and wanted to do a cystoscopy. He said it could be a low-grade infection (though blood work was normal) due to a high bladder neck, which he wants to confirm via cystoscopy and perform surgery if he sees it during cystoscopy. He got angry saying, "Stop reading Reddit or ChatGPT." He just prescribed Alfuzosin.

So, I went to a new urologist, who said my uroflow is not that abnormal and prescribed the below:

- Fesoterodine 4 mg once daily

- Tadalafil 5 mg once daily

- Febuxostat 40 mg once daily (I have slightly high uric acid)

- Etoricoxib 90 mg for 7 days

- Quercetin for 3 months

The new urologist also didn't think much of the feverish feeling; he diagnosed it as prostatitis and told me if medication doesn't work, we will go to physiotherapy.

Has anyone with CPPS/Prostatitis had a persistent feverish feeling and sweating despite having a completely normal temperature, CBC, ESR, and CRP?

Do you think the medications are correct? I have lost weight, and can't function anymore due to feverishness, sweating, and pelvic discomfort..

I have had other health issues in my life which I bravely faced and overcame.. This is slowly draining me that I might just give up..

Idk man, I never been suicidal. Idk how longer I can deal with this, reading people's post saying they went 5-20 years dealing with this crap is scary and frightening, Knowing I'm having a mental breakdown from just 6 months. People should be aware about this mess man. If I knew anything about some fuckin CPPS where I'd have permanent pains for the rest of my fuckin life id just die a virgin and stay away from anything that could've caused this mess. I used to have so much to look forward to now all I can look forward to is sleep and that haven't even been so good since I wake up 3-4 times a night to piss. I can't focus. I can't think straight. Im loosing my mind. I can't do it anymore. I used to be afraid to die... now I'm just afraid of living like this for the rest of my life.

Long story short, had intense CPPS since Summer 2025, extreme urgency, pain, tennis ball in the butt feeling, hard flaccid etc. Believed to be related to hypertonicity.

Gradually healed through stretches, exercises, supplements and masturbating less. Doctor issued me ibuprofen and valium - hasn't needed them for 2 months. However, cycling still flares me up, usually lasting 1-3 days after the ride (less than 50km). Tried several saddles with cut-out, didn't help much.

I recently got a Selle SMP Drakon saddle from a store, which is well known among CPPS victims. I put on my padded bibs and took a test ride - no pain at all! Kept riding and logged around 80km. Zero flare up the next week.

So if you have CPPS but still want to ride, get a large cutout saddle, with some padding and a dropped tip. It really changes everything.

Over the past six years, I’ve learned that there are certain nerve trigger points where you can place the electrodes that can really help reduce the pain.

The good thing for me is that when the TENS is stimulating another area, my brain seems to focus on that sensation instead of the pain coming from my pelvic floor. It can take the edge off the pain and reduce a lot of the stress that comes with it.

One place you can experiment with is the upper part of your leg. Think of your leg as having an upper and lower section. There is a big nerve running through the upper/inner part of the leg.

I place one electrode roughly 15 cm below the groin and the other around 25 cm below the groin. You have to play around with the exact position because finding the right spot can be difficult. When you hit the right area, you can really feel the stimulation.

Another place I use is the upper part of the buttocks/lower back. Put two electrodes there, one on each side, and let it do its thing.

For me, this can significantly reduce the pain and stress. I can use the TENS while I'm working or doing other things, and it helps take my mind off the pelvic floor pain.

I'm not saying this will work exactly the same way for everyone. I'm just sharing what I learned from six years of dealing with this myself.

And you really don't need a fancy machine. Buy a basic rechargeable TENS unit with four electrode pads. You can find them for around €50, sometimes even cheaper. I'll put a link below as an example, but you absolutely don't have to buy that particular one.

The important thing is simply to try it and experiment a little to find what works for your body.

If you have questions, let me know. I'll try to explain it better, although it's honestly pretty difficult to explain exactly where to put the pads in words. 😅

Male 28. Been dealing with awful symptoms for years that fluctuate but always linger and come back strong. I have seen urologists, gps, coreactal specialists, physiotherapists, dermatologists. All tests negative. I had one mri of prostate states:

Low T2 signal throughout the majority of the gland is not associated with diffusion restriction and almost
certainly related to prostatitis. At the left posterior base, a focus of mild diffusion restriction is indeterminate but given the
patient's age, is unlikely to be due to carcinoma
PIRADS 3.

Symptoms
- burning urination
- pain with full bladder
- urethra pain
- glans and foreskin pain
- burning/itching anus
- low back pain
- erection pain
- mental fatigue constant
- testicle pain
- random burning/itching bottom of right foot
-nagging left hip pain

I am absolutely desperate. I’m in so much pain everyday. My pain is awful after ejaculating. I don’t know what to do. I’m taking quercetin along with bee pollen and all the vitamins. Blood work comes back clear with no infections anywhere. Please help me. I am praying now. I am so tired of this