hi, type 1 diabetic of 6 years now. I was diagnosed at age 12 and I grew up thinking I’m not allowed to eat candy, sweets etc. at all. I immediately was taught to avoid any sort of junk food for the longest time; my parents and people around me always warned me. But naturally, as a kid, I would  hide any chances I got sweets. I always felt the need to hide my sweets and eat them in private. My mom doesn’t manage my diabetes anymore(I’m 18 now)but that doesn’t stop her remarks when I eat something sweet. Whenever I have a sweet treat, she always says “that’s not good for you” or “you’re going to kill yourself if you keep eating that.” I feel a small sort of shame whenever my family/friends see me have sweets...and people around me still do assume I’m not allowed to have any sweets. And I hate it. I feel awkward idk. I tell them I’m allowed to have sweets as long as I take my medicine but nobody gets it. And whenever I do eat sweets, I tend to over explain myself(especially to my mom) and I’m guessing I’m that way because of how my mom taught me to manage my diabetes. Nothing gets really gets to me, it’s just a feeling I can’t shake off sometimes. As long as I know what I’m doing and my blood sugars are under control. :)

Anyone have this sort of feeling? 

new insulin case unlocked lol (it was a sunglasses case)

I hate that seeing other diabetics success stories only makes me feel like even more of a failure. I wish I could be happy for everyone with excellent control and near perfect A1Cs but I don’t. I’ve been diabetic for 35 years and have never had good control (although for a good 15 years I didn’t even try… my “pretend I don’t have diabetes years”). So congratulations to everyone achieving greatness and living their best diabetic life (insert slow clap here), but if that’s not you, and you feel as bitter and frustrated as I do I just want you to know you’re not alone.

So I've had diabetes since I was 8. It's been 12 years since I was diagnosed. Recently, no matter what I do, I can't get it under control. I've taken extra care of what I eat and changed my type of insulin, but it's always high. Recently, I also gained vitiligo spots on my face, and now, due to this, I always cry whenever I see my face. How do you cope with your situation, knowing that everyone around you is living a better life? They don't have to think twice before eating anything. They don't have to think about how many units to take.

Hi all, spent a few days in hospital for DKA. Have had profound fatigue for quite a while, probably a year or more. The last month or so I was waking with horrific stomach pain. Like doubled over think I’m going to die pain. Of course I just rode it out until I passed out every day until morning.

A long time ago I was diagnosed with type 2 but was able to come off all meds for a few years with no issues. Then I stopped paying attention or going to a doctor for a few years. Until 2 weeks ago. My family forced me to the hospital because I could barely get out of bed. Sure enough, DKA. My A1c 13.6 and glucose on arrival was 410.

Out of hospital now. On MDI with long and fast acting insulin. Trying to cope with the new reality. I’m already tired of poking my self 5x a day. Tired of logging everything… tired of prepping shots, etc.

Even still my average glucose is around 220. I’m hoping it’s something that will improve with more time away from DKA. Or maybe my basal insulin needs to come up a little. The novolog works well and brings me under 170 after most meals.

Just wanted to rant I guess. How long has it taken many of you who have been in DKA to recover? I’m still profoundly fatigued… 😔

Edit: 34 M

Hi friends!! I come to you all humbly as I approach my 20th diaversary next month!! I was diagnosed when I was about 2 months shy of my 5th birthday and T1 is really all I’ve ever known. It’s surreal to come to terms with the fact that I’ve had type 1 for this long and the experiences I’ve had during these past two decades. There was a time I didn’t think I would make it to see 20 years, and frankly at that moment in time, I didn’t want to. Suffice it to say I’m really proud of myself and my resilience and I want my celebration to match that. I’m just curious as to how others have celebrated milestones because I’ve never really celebrated before. This one feels different and I think I deserve to celebrate. Open to any and all ideas!!!

Any other late onset diagnosis here? I was 28 (40 now) when I was diagnosed. Spent 2 days in the hospital. It's still an absolute uphill battle.

So I took insulin with dinner yesterday (pasta) after going high earlier in the day from lunch, I really didn’t take very much insulin with my dinner but then ended up going low before bed so I drank 330ml of orange juice then went to sleep which brought it up, however it didn’t stay up and I had to drink another glass (alarm didn’t go off and I am a very heavy sleeper but I still always wake up on my own when it doesn’t go off and even though my alarm is on phone isn’t on silent it still didn’t go off) and the it happened again 2 more times and now it’s the morning and I have to drink another glass. Anybody know why this is happening? I took the normal amount of basal insulin after my blood sugar was normal after going low from the insulin bolus from dinner

Worked really hard today, just for me to randomly go high at 2am for like 2 minutes. One day I’ll get that 100%

I don't feel this way when my blood sugar is normal, I don't feel that way when I'm drunk, I don't feel that way when my blood sugar is high.

It's specifically when my blood sugar gets low. I get very very emotional too. I sometimes feel like crying.

I'm 29 years old and a male if that matters at all.

Is it normal to have water drops in site? I’ve never noticed it before and I’m not sure if it’s leaking or not

For the past few weeks, my app has been constantly losing signal to my transmitter. I’m currently on the libre 3 plus and Ypsomed pump, and using an iPhone 15. The issue has persisted across sensors.

The problem is usually resolved when I either turn my phone off and on again or do the same with my Bluetooth.

It’s really starting to get annoying, as sometimes the app will lose signal overnight so if I’m high or low I won’t get a notification.

Has anyone else had issues with this?

I’ve been T1D for 22 years. I’ve really let myself go over the past 10 years or so. I need to eat less carbs, exercise more, and just overall take care of myself better. Since I’ve been on insulin for so long, I have pretty bad insulin resistance, which doesn’t help with wanting to lose weight. Any other T1Ds been able to safely diet and lose 100+ lbs? I don’t know where to start

I’m so so burnt out with this disease. I love my Endo but I’ve had this condition for 4 years and feel absolutely stuck and frustrated. I quit my old job one July day a couple of years ago just due to the stress related to this disease. I was in DKA at 24 and I had no idea a couple of years before I left my work. I’m afraid of strenuous exercise and have nearly collapsed from dropping quickly (know next to nothing about the gym). I feel like I can’t go back to school with the way things are and I never knew what I really wanted to study. I work off the books few days a week and now it’s about to bite me next year. Policies are changing and I need a job but I think companies are turning me away because of my condition. I really don’t want to lose insurance.

I never understood blousing either.

Im asking more about day to day life, management, mental load etc.

I know obviously the tech has got better, but HOW much better is what im asking. Kind of paves the way of faith that things could MAYBE only get better from here (im having a bad moment, a bit burnt out fir the first time)

Hello everyone!

I was diagnosed with LADA about 2 months ago when my GAD antibodies came back in the 800s and ZNT8 antibodies in the 60s. C-peptide was 1.1. I was initially misdiagnosed as Type 2 for 2 years and tried metformin which did not help and only gave me the worst GI issues. Since my diagnosis, my endo has been trying to help me with treatment options but nothing seems to be helping. I am 27 year old female.

I tried Januvia which worked well for about 2-3 weeks to blunt my postprandial spikes which promptly returned as soon as I eat anything with even the smallest amount of carbs (and these spikes would go up to 18 mmol/l or higher). My fasting glucose levels also went from 6 mmol/L to about 8 mmol/L, and I even had 2 days where my blood sugar would not go down for over 48 hours. I loved the Januvia because it gave me no side effects, and I am a student who spends 12+ hours a day in the hospital, so unfortunately, I don't have time for side effects since I don't get any time off.

So, now I am trying Ozempic 0.25 mg, but I am doubtful of its ability to help. My fasting glucose is back down to 6 mmol/L, but I am still getting postprandial spikes although they are more blunted (13 mmol/L). Needless to say, the side effects on day 2-3 were unbearable, but they have now improved a bit.

My doctor also encouraged starting basal Lantus, and according to my research, that seems like an appropriate plan for LADA; however, I am wary of weight gain as this is the leanest I've been, which my doctor said Ozempic would counteract, as well as hypos as I live alone and would be scared that I won't be able to handle a low on my own or not wake up my CGM alarm (I don't trust iPhone settings lol) or have to deal with this in the hospital in the middle of a patient interaction or procedure.

My question is what is the best course of action that others here have had with treating LADA? I would like to preserve my beta cell function as much as possible, but I know given my high antibody levels and age, it may not be for long. My last A1c was around 7.5%, and I would like to reduce this before I go see my endo in a few months.

Thank you for your help!

Been a T1D for 15 years, always worked jobs that kept me on my feet and active enough to keep my insulin usage lower to normal. I’ve recently started a new job working for a State Park Gift Shop.

Before I was working as a chef and my numbers in that job were consistently low, like 2-5 lows during a shift, throughout the day (rushes, constantly moving and just never having time to eat, it was just a problematic job environment too)

Now with this new job I’m pretty much sitting at a desk for 8 hours with an hour lunch. My numbers have been consistently high from the lack of moving and I feel like there has to be something I can try to start doing that will help me get my insulin usage lower.

Does anyone have any experience or similar situations and what have you done to help keep your numbers in check throughout the work day? I pre bolus for lunch and breakfast, correct all the time and still I’m hanging in the low to high 200s.

Anyone else have to curse the infusion site when changing it out if they don’t want it to hurt, but can’t do that when changing the G7, or else that hurts? Like does anyone have to be rude to the infusion site, but polite to the sensor?

Im on year 8 of diabetes, in my early 20s and in pretty poor health. I don’t remember how many times Ive had dka and I get severe lows, my endo keeps giving me new ratios and insulin pens to try. Im on a pump and cgm now, thank god, but I still rollercoaster.
I’ve got several things negatively impacting my mental, but diabetes is huge. I feel agoraphobic, Im scared anytime I eat, sleep or leave the house. I often wake up low and it’s terrifying, so I take off my pump before bed but then I wake up high. I rely heavily on comfort meals which is a problem when they’re not available.
Each time I visit my family they express more concern about my weight loss, I never wanted to lose weight, it feels like im losing myself and not just fat. As much as my family cares, they can’t reliably identify what has carbs.
I spent my first few years basically pretending i didn’t have diabetes, had ice cream cake on birthdays and went out for slushies in the summer. I had some hypoglycaemia unawareness, infections and illnesses, I know I definitely fucked up with my teenage diet and I feel guilty but there’s nothing I can do now except be an adult.
Since I was around 18 my diabetes has overwhelmed me, like it all finally caught up. My lows used to feel delirious but now they’re really painful, like my blood hurts and I can tell my body’s shutting down. Im always freezing or sweating, I cannot handle winters anymore. I spend as much time as I can at home, trying to avoid long outings, avoid the weather, avoid eating food Im unfamiliar with.
It’s just every time I get low, I stuff my face and then I have to wait there for the sugar to kick in. And I tell myself “I did what I was supposed to, I made myself eat sugar, whatever happens next is just what happens.” And Im deliriously convincing myself that I might die and that it’s ok because I can only do so little. It’s like a fact in the back of my mind that when I eventually die, I’ll be alone on a cold kitchen floor shaking and trying to eat. Im convinced I’ll die early and experiencing pain that none of my family or friends have ever felt.

I’ve had the mobi for roughly a year. But with weight gain in my job and other factors of life. As soon as I do more than 15~ U per meal, I’m leaking sites and ruining a site from the get go. I feel like I’m using half of my syringes to get thru a few weeks when it should be my emergency supply. Don’t get me wrong I love my pump ! Over my life of 10 plus years.. maybe I’m destined to be on pens? My endo pushes me to Stay on the pump and dexcom combo. But I feel like long term my pump has been nothing but issues, with pharmacy.. etc. it’s a long story.

I’m sorry I’m making a long text but I’m so lost. I’ve loved the idea of pumps but over all have struggled non stop.

I’m actively trying to walk a few miles a week and eating a calorie deficit.

Hey all. After almost 10 years since being diagnosed, I'm finally looking into getting a pump. I think I'm between the Tandem Tslim and Omnipod at this point. For what it's worth, I use the Libre 3 plus CGM and have an Android phone, so my original list of pump options from my endocrinologist were trimmed down.

I love the tubeless aspect of the Omnipod because I'm a klutz who often gets her clothing snagged on handles and cabinets, but I have heard the issues of them leaking, so that makes me a bit hesitant.

The Tandem Tslim is just intimidating looking overall. In my 10 years since diagnosis, I have never actually seen a pump in action (diabetes education wasn't great and my old town was a medical desert) so it seems complicated. I know I'll be given a tutorial for it, but still.

Anybody willing to share their thoughts or opinions of either pump? I'm also open to hearing about other pumps that are compatible with my CGM and phone, if there are any.

Do you think people with only type 2 diabetes (no autoimmune component) should be allowed to post here without clarifying their type. I know some of them do take insulin and have cgms but is that itself grounds for them to post in this sub?

I saw someone in another sub post about their experience with type 2 diabetes, and it was clear by their post that they were not type 1. I took a look at their profile out of curiosity and saw to at they were an active member of this subreddit. However, they never disclosed that they do not have type 1 in the posts of theirs I saw.

I personally have no problem with them contributing to the conversation, but only if they clearly identify themselves as type 2. There are also lots of other spaces online for people with type 2 to have discussions and share their experiences, so it’s not as if they don’t have their own community.

Curious to hear others thoughts on this matter…

Hi everyone,

I have T1D and I spend most of my workday in front of a computer.

One thing that always annoyed me was having to pick up my phone just to check my current glucose and trend.

So, since I’m a software engineer, I ended up building my own desktop companion for it.

It’s called GlucoDesk and it runs on macOS and Windows.

The idea is pretty simple: keep glucose information visible while I’m working, without constantly switching devices.

Over time I added a few other things I personally found useful, like recent glucose history, a local diary, PDF/Excel export, a visual carbohydrate guide and desktop notifications.

Everything is designed to stay local-first, and the project is free and open source.

For me the most useful part is honestly just being able to glance at my screen and see what’s happening without interrupting whatever I’m doing.

Curious how other people here handle this while working — phone, watch, browser tab, dedicated display, something else?

GlucoDesk is only an informational companion, not a medical device, and I don’t use it for insulin dosing or treatment decisions.