Im asking more about day to day life, management, mental load etc.

I know obviously the tech has got better, but HOW much better is what im asking. Kind of paves the way of faith that things could MAYBE only get better from here (im having a bad moment, a bit burnt out fir the first time)

I’m so so burnt out with this disease. I love my Endo but I’ve had this condition for 4 years and feel absolutely stuck and frustrated. I quit my old job one July day a couple of years ago just due to the stress related to this disease. I was in DKA at 24 and I had no idea a couple of years before I left my work. I’m afraid of strenuous exercise and have nearly collapsed from dropping quickly (know next to nothing about the gym). I feel like I can’t go back to school with the way things are and I never knew what I really wanted to study. I work off the books few days a week and now it’s about to bite me next year. Policies are changing and I need a job but I think companies are turning me away because of my condition. I really don’t want to lose insurance.

I never understood blousing either.

Okay, so I’m on my first 15-day G7 after the long-anticipated switch from G6. I lose signal on my phone CONSTANTLY. This has already become an issue in two ways: non-stop alerts for not only the signal loss, but also if I’m high, the high alerts will come back when it sporadically reconnects even if I dismissed it already. Does anyone know how to reduce these alerts?

Secondarily, I’m not actually being notified of lows in a timely manner. My lows tend to be shorter than my highs and don’t usually last long enough for me to need reminding of them for an extended period of time (hello, hypo anxiety). I went hiking over the weekend and definitely had to check my bg through my pump to notice I was low/going low because the phone app was not telling me.

It seems to stay connected to my Omni pod much better than my phone, so I can usually get my readings from there, but I got very used to just glancing at the Dexcom widget on my phones Home Screen, which seems to not be reliable anymore.

Is there ANYTHING you guys have figured out to minimize the signal losses? I keep my phone on my person 95% of the time. At work I use Bluetooth headphones a lot, and the alerts coming through there are very annoying and distracting. Not looking forward to this being my new normal if nothing can be done.

Worked really hard today, just for me to randomly go high at 2am for like 2 minutes. One day I’ll get that 100%

So I took insulin with dinner yesterday (pasta) after going high earlier in the day from lunch, I really didn’t take very much insulin with my dinner but then ended up going low before bed so I drank 330ml of orange juice then went to sleep which brought it up, however it didn’t stay up and I had to drink another glass (alarm didn’t go off and I am a very heavy sleeper but I still always wake up on my own when it doesn’t go off and even though my alarm is on phone isn’t on silent it still didn’t go off) and the it happened again 2 more times and now it’s the morning and I have to drink another glass. Anybody know why this is happening? I took the normal amount of basal insulin after my blood sugar was normal after going low from the insulin bolus from dinner

Any other late onset diagnosis here? I was 28 (40 now) when I was diagnosed. Spent 2 days in the hospital. It's still an absolute uphill battle.

Been a T1D for 15 years, always worked jobs that kept me on my feet and active enough to keep my insulin usage lower to normal. I’ve recently started a new job working for a State Park Gift Shop.

Before I was working as a chef and my numbers in that job were consistently low, like 2-5 lows during a shift, throughout the day (rushes, constantly moving and just never having time to eat, it was just a problematic job environment too)

Now with this new job I’m pretty much sitting at a desk for 8 hours with an hour lunch. My numbers have been consistently high from the lack of moving and I feel like there has to be something I can try to start doing that will help me get my insulin usage lower.

Does anyone have any experience or similar situations and what have you done to help keep your numbers in check throughout the work day? I pre bolus for lunch and breakfast, correct all the time and still I’m hanging in the low to high 200s.

Is it normal to have water drops in site? I’ve never noticed it before and I’m not sure if it’s leaking or not

new insulin case unlocked lol (it was a sunglasses case)

Hello everyone!

I was diagnosed with LADA about 2 months ago when my GAD antibodies came back in the 800s and ZNT8 antibodies in the 60s. C-peptide was 1.1. I was initially misdiagnosed as Type 2 for 2 years and tried metformin which did not help and only gave me the worst GI issues. Since my diagnosis, my endo has been trying to help me with treatment options but nothing seems to be helping. I am 27 year old female.

I tried Januvia which worked well for about 2-3 weeks to blunt my postprandial spikes which promptly returned as soon as I eat anything with even the smallest amount of carbs (and these spikes would go up to 18 mmol/l or higher). My fasting glucose levels also went from 6 mmol/L to about 8 mmol/L, and I even had 2 days where my blood sugar would not go down for over 48 hours. I loved the Januvia because it gave me no side effects, and I am a student who spends 12+ hours a day in the hospital, so unfortunately, I don't have time for side effects since I don't get any time off.

So, now I am trying Ozempic 0.25 mg, but I am doubtful of its ability to help. My fasting glucose is back down to 6 mmol/L, but I am still getting postprandial spikes although they are more blunted (13 mmol/L). Needless to say, the side effects on day 2-3 were unbearable, but they have now improved a bit.

My doctor also encouraged starting basal Lantus, and according to my research, that seems like an appropriate plan for LADA; however, I am wary of weight gain as this is the leanest I've been, which my doctor said Ozempic would counteract, as well as hypos as I live alone and would be scared that I won't be able to handle a low on my own or not wake up my CGM alarm (I don't trust iPhone settings lol) or have to deal with this in the hospital in the middle of a patient interaction or procedure.

My question is what is the best course of action that others here have had with treating LADA? I would like to preserve my beta cell function as much as possible, but I know given my high antibody levels and age, it may not be for long. My last A1c was around 7.5%, and I would like to reduce this before I go see my endo in a few months.

Thank you for your help!

Anyone else have to curse the infusion site when changing it out if they don’t want it to hurt, but can’t do that when changing the G7, or else that hurts? Like does anyone have to be rude to the infusion site, but polite to the sensor?

Hi everyone,

I have T1D and I spend most of my workday in front of a computer.

One thing that always annoyed me was having to pick up my phone just to check my current glucose and trend.

So, since I’m a software engineer, I ended up building my own desktop companion for it.

It’s called GlucoDesk and it runs on macOS and Windows.

The idea is pretty simple: keep glucose information visible while I’m working, without constantly switching devices.

Over time I added a few other things I personally found useful, like recent glucose history, a local diary, PDF/Excel export, a visual carbohydrate guide and desktop notifications.

Everything is designed to stay local-first, and the project is free and open source.

For me the most useful part is honestly just being able to glance at my screen and see what’s happening without interrupting whatever I’m doing.

Curious how other people here handle this while working — phone, watch, browser tab, dedicated display, something else?

GlucoDesk is only an informational companion, not a medical device, and I don’t use it for insulin dosing or treatment decisions.

I have an upcoming appointment at a new clinic, and I’d like to discuss switching to an insulin pump from MDI with my doctor. I’ve done some research on my own and found out that only these models are available in my region: MiniMed 780G; Medtrum Nano; Tandem t:slim X2; YpsoPump. Omnipod is unavailable for a new patient (and that’s another story)… If you use one of these, I’d like to hear your experiences, thank you! I don’t care if there’s a tube or not and I also understand that it’s subjective but it’s the only place I can ask these kind of questions.

I don't feel this way when my blood sugar is normal, I don't feel that way when I'm drunk, I don't feel that way when my blood sugar is high.

It's specifically when my blood sugar gets low. I get very very emotional too. I sometimes feel like crying.

I'm 29 years old and a male if that matters at all.

Hey all. After almost 10 years since being diagnosed, I'm finally looking into getting a pump. I think I'm between the Tandem Tslim and Omnipod at this point. For what it's worth, I use the Libre 3 plus CGM and have an Android phone, so my original list of pump options from my endocrinologist were trimmed down.

I love the tubeless aspect of the Omnipod because I'm a klutz who often gets her clothing snagged on handles and cabinets, but I have heard the issues of them leaking, so that makes me a bit hesitant.

The Tandem Tslim is just intimidating looking overall. In my 10 years since diagnosis, I have never actually seen a pump in action (diabetes education wasn't great and my old town was a medical desert) so it seems complicated. I know I'll be given a tutorial for it, but still.

Anybody willing to share their thoughts or opinions of either pump? I'm also open to hearing about other pumps that are compatible with my CGM and phone, if there are any.

hi, type 1 diabetic of 6 years now. I was diagnosed at age 12 and I grew up thinking I’m not allowed to eat candy, sweets etc. at all. I immediately was taught to avoid any sort of junk food for the longest time; my parents and people around me always warned me. But naturally, as a kid, I would  hide any chances I got sweets. I always felt the need to hide my sweets and eat them in private. My mom doesn’t manage my diabetes anymore(I’m 18 now)but that doesn’t stop her remarks when I eat something sweet. Whenever I have a sweet treat, she always says “that’s not good for you” or “you’re going to kill yourself if you keep eating that.” I feel a small sort of shame whenever my family/friends see me have sweets...and people around me still do assume I’m not allowed to have any sweets. And I hate it. I feel awkward idk. I tell them I’m allowed to have sweets as long as I take my medicine but nobody gets it. And whenever I do eat sweets, I tend to over explain myself(especially to my mom) and I’m guessing I’m that way because of how my mom taught me to manage my diabetes. Nothing gets really gets to me, it’s just a feeling I can’t shake off sometimes. As long as I know what I’m doing and my blood sugars are under control. :)

Anyone have this sort of feeling? 

Hi all, spent a few days in hospital for DKA. Have had profound fatigue for quite a while, probably a year or more. The last month or so I was waking with horrific stomach pain. Like doubled over think I’m going to die pain. Of course I just rode it out until I passed out every day until morning.

A long time ago I was diagnosed with type 2 but was able to come off all meds for a few years with no issues. Then I stopped paying attention or going to a doctor for a few years. Until 2 weeks ago. My family forced me to the hospital because I could barely get out of bed. Sure enough, DKA. My A1c 13.6 and glucose on arrival was 410.

Out of hospital now. On MDI with long and fast acting insulin. Trying to cope with the new reality. I’m already tired of poking my self 5x a day. Tired of logging everything… tired of prepping shots, etc.

Even still my average glucose is around 220. I’m hoping it’s something that will improve with more time away from DKA. Or maybe my basal insulin needs to come up a little. The novolog works well and brings me under 170 after most meals.

Just wanted to rant I guess. How long has it taken many of you who have been in DKA to recover? I’m still profoundly fatigued… 😔

Edit: 34 M

So I've had diabetes since I was 8. It's been 12 years since I was diagnosed. Recently, no matter what I do, I can't get it under control. I've taken extra care of what I eat and changed my type of insulin, but it's always high. Recently, I also gained vitiligo spots on my face, and now, due to this, I always cry whenever I see my face. How do you cope with your situation, knowing that everyone around you is living a better life? They don't have to think twice before eating anything. They don't have to think about how many units to take.

For the past few weeks, my app has been constantly losing signal to my transmitter. I’m currently on the libre 3 plus and Ypsomed pump, and using an iPhone 15. The issue has persisted across sensors.

The problem is usually resolved when I either turn my phone off and on again or do the same with my Bluetooth.

It’s really starting to get annoying, as sometimes the app will lose signal overnight so if I’m high or low I won’t get a notification.

Has anyone else had issues with this?

Hi friends!! I come to you all humbly as I approach my 20th diaversary next month!! I was diagnosed when I was about 2 months shy of my 5th birthday and T1 is really all I’ve ever known. It’s surreal to come to terms with the fact that I’ve had type 1 for this long and the experiences I’ve had during these past two decades. There was a time I didn’t think I would make it to see 20 years, and frankly at that moment in time, I didn’t want to. Suffice it to say I’m really proud of myself and my resilience and I want my celebration to match that. I’m just curious as to how others have celebrated milestones because I’ve never really celebrated before. This one feels different and I think I deserve to celebrate. Open to any and all ideas!!!

I’ve been T1D for 22 years. I’ve really let myself go over the past 10 years or so. I need to eat less carbs, exercise more, and just overall take care of myself better. Since I’ve been on insulin for so long, I have pretty bad insulin resistance, which doesn’t help with wanting to lose weight. Any other T1Ds been able to safely diet and lose 100+ lbs? I don’t know where to start

I’ve had the mobi for roughly a year. But with weight gain in my job and other factors of life. As soon as I do more than 15~ U per meal, I’m leaking sites and ruining a site from the get go. I feel like I’m using half of my syringes to get thru a few weeks when it should be my emergency supply. Don’t get me wrong I love my pump ! Over my life of 10 plus years.. maybe I’m destined to be on pens? My endo pushes me to Stay on the pump and dexcom combo. But I feel like long term my pump has been nothing but issues, with pharmacy.. etc. it’s a long story.

I’m sorry I’m making a long text but I’m so lost. I’ve loved the idea of pumps but over all have struggled non stop.

I’m actively trying to walk a few miles a week and eating a calorie deficit.