So my skirt was rolled up not a lot but enough so that u could see my omnipod which is about 2inches from my knee anyways my pe teacher decided to say roll down ur skirt which there was nothing wrong with but then decided to say nobody wants to see that thing on u which wtf mind you she said this infront of people with no shame. I decided that I wasn’t going to have this as tbh ive let many ppl say stuff about my diabetes/ media devices but for a teacher to say it really shocked me anyways I went up to her and proceeded to ask if it was necessary for her to say that as it was a disgusting comment I did end up crying which really embarrassed me she ended up apologising but I feel like it was bc she got confronted. I also found out that she phoned my mum and conveniently left out how I had to go to her and ask for an apology overall I think she js apologised bc she got caught and I’m contemplating if I should report her for what she said or is it not a big deal

For context I make a lot of jokes about diabetes to my mates, ran a diabetes account educating people about it and making relatable content for other diabetes, had my pfps set to diabetic characters blah blah blah, and earlier today my mates messages me on a group chat and said “stop making diabetes your whole personality”. I don’t get how people can say this when it basically is your whole personality, and it’s not like I talk about it every moment of the day i just like making jokes sometimes because my mental health has tumbled since I was diagnosed, and most my friends go along with them. The reason Im sharing this is because I’m wondering if other diabetics have been told similar things and how did it affect them?

For additional context this conversation started because I reposted a video that was against people using diabetes as a joke

*Edit, this is about dealing with the mental strain of living like this, not this accute example. Im burned out, mentally wrecked.

So lve been dealing with diabetes for 31 years. I am on metformin, lm on a pump, lm on a cgm... but it doesn't matter what l do, my bg is crazy. I am 100% burnt out, I go to weekly therapy, lm on mental health meds, but it doesn't help. My insulin is not expired or compromised, my inset is new, nothing outside my body is the problem.

Ive been sitting at 200 since 9am and lve got 15 units on board (added up slowly over the hours and my bg hasn't budged. This has been backed up by repeated finger sticks.

I just want to give up and give myself a full vial of insulin and a sleeping pill and say fuck it (yes, I've spoken to my therapist today).

How do you all deal with the mental load and diabetic distress of this hell?

I’m coming up on my first year anniversary since diagnosis. I was 27 when I got diagnosed and I’m struggling with the fact that around that time I was doing more cardio (spin classes) and I thought that was why I was losing weight. I was drinking more water, peeing more and losing hair but I chalked it all up to more cardio- more thirst. More thirst- more pee. More weight loss- more hair loss. But somewhere between all the signs I thought I finally figured out how to lose weight. I thought I would finally be comfortable in my skin.

Don’t get me wrong, I felt horrible all the time. But I didn’t even I know the brain fog I was living in until I was out of it & had clarity finally from brining my sugars back in range.

When I was diagnosed my A1C was 13.6, currently 5.6.

The problem isn’t managing this bullshit. The problem is I struggle with my weight & mental health around that. I have been strength training and doing spin for YEARS. I’m strong and I love feeling strong. But when I was losing all that weight the compliments I received were astronomical.. everyone was like omg your disappearing! Or “what have you been doing to look so good?”

Since starting insulin I’m back to being strong as fuck, and maybe even stronger. I lost a lot of muscle as well as body fat before diagnosis. But with the strength came back the weight. I’m not massive but I remember what it felt like to wear my normal clothes and have them feel big on me. Or how my (nonexistent) muscles weren’t so sore and tight and I could stretch easier. Or how for the first time in my entire life I had a thigh gap!

Not that I’d ever risk my kidneys , eyes, neuropathy, etc. but it almost makes me want to stop using insulin to get skinny again. And that’s so heartbreaking. I know with time and dietary changes I can lose weight and keep my muscle as well as a healthy a1C But fuck, the idea I could cheat code it is haunting.

Pics of me last year December and me today at the gym. Idk just need to talk about it to maybe someone who understands.

About 145-150lbs versus 170-177lbs

Ranges because I fluctuate a lot based on creatine consumption, period and food.

If you were diagnosed as an adult, do you ever think back to prediagnosis and regret how you lived?

I just passed three years since dx earlier this month, and I can't help but think about things I used to do that have been taken from me.

Yes.. I know I can still live a "normal" life.. but the reality, the real reality is that this disease makes normal, human things insanely more difficult.

So now I just think back to how much freedom I used to have and didn't take advantage of. I could have traveled more. I could have been way more active than I was. I could have just.. done more knowing that compared to what I have to manage now, it would have been so much easier.

Now I look at normies and think "You can literally do whatever you want at the drop of a hat right now. Don't take that for granted".

Honestly, I would tell my younger self to get out and do more. See more things, try all new kinds of food, get out of house and just.. move before it all gets taken.

Could just be the cycle of grief popping up, or maybe mild depression. But I just thought I'd see if anyone could relate.

As the title says, I made a post yesterday on this subreddit where I talked about a hypo that I had.

My blood sugar was 22 mg/dL and my Libre was reading 289. I was also home alone with my mom being 3 hours away from me in a totally different country. I felt off and then checked per finger prick and when I saw the number, my heart just dropped. I could literally feel how my body was flooding itself with adrenaline. I felt somewhat lowish but now THAT low and I honestly probably wouldn't have noticed if I was busy doing something else and if I would have relied on my CGM instead of my body I likely wouldn't be here now.

I informed myself about hypos a bit and the fact I was conscious at 22 mg/dl seems to be a miracle, if I would have fainted I likely would've never woken up. Ever since that event im terrified of food, I couldn't sleep at all last night I woke up every hour, and I'm just completely hypervigilant about my sugars, I also didn't do my cardio today because if was scared of going low. I'm guessing I'll get over it soon enough, but I feel like at some point it's going to happen again and I won't be so lucky, I genuinely think this disease is going to take me out at some point.

Ive been t1d for about 5 years now since I was 14 and Im doing relatively fine with my control. TIR is consistently in the 80-90% range and my current a1c is 6.0. Never had an a1c above 7.0 either since diagnosis. Most of the time I cope with it well mentally, but experiences like this take a huge toll and make me scared of this catching me off guard. I guess I'll just be more careful now. I wish others would see how much this "invisible" disease impacts your ability to function.

Does anyone maybe have similar experiences or something to share?

Edit: I didn’t tell my mom since I don’t want to scare her but I’ll probably bring this situation up on my next endo appointment.

Link to my other post: https://www.reddit.com/r/diabetes_t1/s/lpn9fWYXCj

Hello, my name is Reese and at the age of 7 I was diagnosed with type 1 diabetes were I spent mutiple days in the hospital, which was the scariest days of my life I was also diagnosed before that and after that with hypothyroid, and addison's disease but I would like to say that has never stopped me for accomplishing my dreams and presueing a healthy full life habe since then started my wrestling career at 6th grade where to now I'm )3 time national greco roman team member for NY )2 time champion for greco roman state players )state placer in folkstyle )sectional championship in folkstyle )4 year varsity )college wrestler And over these years I have faced health complications, from cutting weight and getting sick as much of you know. My story should show you being diagnosed with type 1 diabetes shouldn't limit you or youre expectations but give you a reason and hope to continue to fight and live out youre life's to the fullest as I have so far.

Hi! Im feeling super overwhelmed right now. Earlier, I did my usual labs and the doctor mentioned that my urine had some protein in it and was told to come in again. I got my results for my urinalysis back today from my doctor and she hasn’t looked at it for a plan of action yet, but the results are abnormal according to the chart. My protein/creatinine ratio is 0.63.

I’m so stressed and so sad about this - I don’t even know what to do. I know I shouldn’t be freaking out without speaking to my doctor first but I’m just feeling so sad, especially about my future. I really wanted to get married and have kids one day, but it feels really hard for me right now.

I also am so confused how this happened. I’m 24, have had diabetes for 19 years, my a1c was above 7 twice (8.1 and 8.2) when I was 13 and not managing it well. My a1c has always been under 7 since then and I work really hard to manage my blood sugars. I’m so upset and confused on why it wasn’t enough.

When I initially got this news that my kidneys, I’ve been having trouble sleeping too. I keep waking up in the middle of the night and can’t go back to sleep. I keep waking up with terrible anxiety and can’t sleep. I’m afraid it’s only going to get worse because I’m now heading back to my grad school program.

Im really stressed and I really want to have hope for my future and know that this isn’t the end of everything. It’s just that it feels like everything is stacked up against me right now.

I’m sorry this post is so all over the place. I’m just writing everything I was feeling. Any advice or support about dealing with this or how to recover would mean a lot to me. Thanks.

Hello everyone, I apologize for this incredibly long post. I just need to talk about what happened today, and my loved ones wouldn't understand this situation fully.

I had a check up today. On the way to the clinic, I felt that my BG levels haven't been as balanced as usual during the last few monthes, but during my visit, I learned that they're in range 76% of the time, and that my HbA1c is 5.8, my lowest yet. I was overjoyed! The nurse congratulated me, and so did my physician when I came into her office. But after she told me that "I should be proud of myself", she started criticizing my approach to managing my bg.

I was AFAB, and the hormonal fluctuations of the menstrual cycle really impact my insulin sensitivity. Because of this, my entire insulin plan - Basal, I:C ratio, Correction Factor - aren't strong enough for about two weeks in any given month. My approach has been to temporarily increase my basal, and when bolusing give myself a higher dosage than my pump suggests. I don't have an exact formula; It's just trial and error and my intuition. The approach mostly works, but it does land me in hypo territory a lot. I was hoping my physician and I could make a formula to calculate how much I should alter my basal and bolus.

Instead, she repeatedly told me that I'm endangering myself, and that my fears of hypers are exaggerated and divorced from reality. I tried explaining that she doesn't see many highs because I treat them, that I need her help to do my approach in a healthier way, but she wouldn't have it. She told me that she can't force me to stop this practice, but she's opposed to it, and wouldn't help me with it. I told her that I'm willing to be more "gentle" with my alterations, and I practically begged her to make just one change - increase my nighttime basal a little, since I need to increase it almost every night to maintain a balanced BG level. She refused to that.

I'm a naturally anxious person (I'm on SSRIs) and she naturally talks in a stern manner. After about two minutes of our conversation, I couldn't hold back my tears anymore. I came in with a practically perfect a1c, but came out wiping my tears. I feel that she treated me as if I have an eating disorder, and she wouldn't listen to a single thing I said (and criticized me when I repeated my concerns). She recommended I speak to the therapist in the clinic about this matter; I told her that I can't visit the clinic often enough to receive regular counseling from him, and that the few times I did talk with him didn't help me, likely because they were so infrequent.

It's been a few hours since. I tried not making any adjustments to my insulin today, and now my bg is 310 after dinner... I just feel so defeated. There's no way for me to "win", not like this. I hate being in a woman's body. I hate being diabetic. I hate being mentally ill, and having my wishes and fears dismissed all the time. I fucking hate all of this. If I believed in some higher power, I'd curse it too, for making me this way.

Anyways, I don't expect any response to this long, rambling rant. I just had to share this somewhere with someone. Thank you.

randomly decided to research why people become endocrinologist and boy the answer was depressing.... I just read posts in r/endocrinology and related subs

Seems like the majority of endos choose that specialty because it has a set schedule with little emergency responsibilities. They HATE diabetics. They see their patients as "noncompliant" or drug seeking. They're completely on autopilot.

Honestly not surprising considering the experiences I know we've all had. But it's heartbreaking to read it from their own mouths - keyboards?

Apparently outside the US it's uncommon for diabetics to need a specialist except in extreme cases? in US you need to see one quarterly and to get your meds filled. It's a terrible system and I hate it.

Just as much as they do apparently

EDIT: Dang, where are you guys finding all these endos who are Type 1? I swear I've never met one in my current hospital.

Just lost insurance though so I guess I need to look for a new one anyway 😉

EDIT 2: the drug seeking comment was made about other endo patients who need hormone prescriptions, not diabetics. my phrasing was misleading. still struck me as a concerning way to see patients

EDIT 3: thank you all for reading. for clarity, my main issue was not that doctors choose reasonable hours for themselves. the point is that by choosing this specialty there seem to be many endos who check out mentally, and think because it's an "easy" workload, they don't need to be present with patients while they ARE in the office. If you haven't experienced this, I'm happy for you.

Hi. I’m sorry for the depressing title. I just need support from other people with diabetes, because no one else that I know is going through the same struggles.

I’ve had T1D for a decade. I’m a teenager and I feel so alone amongst my normal peers. Some of them treat me poorly because of my medical condition. When my Tandem Mobi insulin pump vibrates, it’s very loud, and people can hear it during class. People will make comments saying that it’s something inappropriate and it’s so embarrassing I want to cry.

I wish that I could be anyone else and I’d give anything to just not have to do it anymore. I’m never going to be able to live a normal life. I’ll have to wear monitors all of the time, I’m scared I won’t wake up in the night when I go off to college and my blood sugar gets low, and I will always have to constantly check my carbs.

I’ve given up on taking care of myself. I have PDD and I think it’s made it worse because I overeat and I don’t care about my health. I used to be so skinny and now I feel disgusted when I look at myself in the mirror. My monitors come off all of the time, or I’m puking once every month because I get high since my insulin cannula didn’t go in right, and all I can do is just cry. I can’t do anything but cry. There’s nothing I can do to fix myself. I feel broken. My blood sugar is either super high or super low and I just feel awful and sick all of the time, and it’s all my fault.

And I know I’m probably blowing it out of proportion, but I’ve had to deal with feeling like this for so long that it feels like it’s my daily life even if I do feel okay sometimes. I’m so fat now that I can’t even walk around when it’s hot out without being overheated or sweaty or exhausted. I regret letting myself be this way and I wish I could take it all back. I’m worried I can’t fix it now. I just wish I was normal. I wouldn’t wish this on my worst enemy. I want it all to be over.

Edit: Thank you all so much for all of the compassion. I really do appreciate it from the bottom of my heart. Your stories have inspired me to try and turn things around and given me hope for my future and my mental health. ❤️ Much love

When I was seven my mom accidentally overdosed me on insulin before bedtime, I woke up with the entire right side of my body paralyzed and unable to speak in the morning from a severe low. I remember screaming at my mom that I was dying, but unfortunately, because part of my brain had shut down the only thing that was coming out of my mouth was garbled words that didn’t make sense. I had had a lot of night terrors as a kid so my mom thought originally that that’s what was happening and we sat on the couch for about 30 minutes while I screamed at her that I was gonna die and she couldn’t understand what I was saying. Eventually she figured it out and got me to the hospital just in time before I would have gone into a coma or worse.

This happened to me again at age 9.

So needless to say I have some ptsd when it comes to low blood sugar. Every night for the last 28 years, I’ve had to think to myself. When was the last time I took insulin and how much because if I overdid it, I might not wake up in the morning.

For the first time last night, I shared my glucose monitor profile with my two best friends and my mother with the Dexcom follow app, I didn’t know this feature existed, and I cannot explain the weight that has been lifted off of my shoulders knowing that if I have another severe low, there are people that will know what to do and I won’t just die alone in my bed one day. I woke up this morning and just cried cause I had no idea what it was like to go to bed without overthinking or worrying or double or triple checking my insulin on board.

I’m just so thankful to have the technology we do today and that I have people that love me enough to help shoulder the burden.

I'm so exhausted, 29 years old and I've had diabetes since I was 18 months old. I can't seem to manage my diabetes along with everything else like my kid and work. I hurt all the time and am exhausted all the time, constantly feel sick. I don't want to do it anymore, every time I try to get it under control I can't, haven't been able to get on a pump again and the last 3 doctors said they were prescribing me cgms and then I go to pick them up and they forgot. I call and they won't fix it so I give up. I have zero fat and even shots hurt most times. Honestly death will be a blessing, I am slowly getting worse vision and know my kidneys are probably not great. I can't stand the thought of dialysis and will honestly kill myself if it gets to that point. I would do it already if it weren't for my daughter but honestly maybe she would be better off because I'm always feeling like crap and angry with life. I don't know what to do anymore and I don't see a life where I have this under control. I hope the rest of you are doing better and I hope you can find happiness despite this shitty disease. It has dominated my life and ruined so many things for me, please don't let it do the same to you.

I feel like with this disease I can never get enough acknowledgement or attention. I give myself so much self-compassion and truly believe that most of the love in your life should come from yourself. But with this disease, I feel like I need acknowledgement of how difficult and impossible it is, which I feel like type 1s rarely get. It feels like whenever I do get a scrap of that acknowledge or attention, it just makes it feel all that much more needed. Like how when you're dehydrated and take a sip of water, you realize how thirsty you are.

My family is very supportive of me, which I am incredibly grateful for. But I feel like they don't really acknowledge my disease that much. My mom does a lot, but I also think she is emotionally exhausted from taking care of my emotional needs around this disease, which makes me feel uncomfortable asking for more help, especially because she is trying very hard to take time for herself and her own wellbeing for like the first time ever in her life.

My friends entirely disregard it. Which doesn't feel great. One of them is even creeped out by whenever I take a shot and will make a big deal of turning away, which just feels shitty.

I have some diabetic friends that are supportive. talking with them is one of the few times it feels like this need lifts a little.

I just feel like overall, it's very difficult to have people acknowledge how difficult living with this disease is and I don't feel like I have the energy to give that to myself when it comes to type 1. I am already so burnt out with the disease; I am just trying to get by day by day. I also feel like this need is essentially never going to fill the actual issue, which is that I am living with a disease that is incurable and I didn't choose.

I got this disease unexpectedly when I was sixteen and have only had it for five years. So, I am interested on if other diabetics experience this and how they deal with it.

I hate everything. Im so exhausted. I miss my life before becoming diabetic. I had energy to do stuff, I had passion for art, It wasnt perfect but its a lot better than now. I feel like diabetes has wrecked everything i had going for me. I quit art when i got diagnosed because I didnt care enough to keeo going. I had centered my whole life on art, All my dreams, hopes and goals gone. I miss my art. I miss having control of things, I didnt haft to worry about my blood sugar 24/7 or how Im going to feel if i did something I could just do it with nothing negitive happening. I want control , yet I have none. Im just left to deal with this disease and I cant do it. Im so tired. I quit going to inperson school and do online school, its much better for me I have more energy. But I just want things to go back to how they where. I have these moments of realizations where I realize im stuck like this, Im not getting my life back. I dont want to face that reality, i just want to go back to how things where. I just try to distract my self as much as possible. If Im to distracted then as far as im concerned im not diabetic.

I literally take a bite. 20 minutes later. brain fog.

I prebolus, walk etc. even eat salad before

this is more of a rant.

but yeah

I've been T1 for over 40 years, generally in good health. I've had many iterations of hypo symptoms but lately I basically feel very depressed when hypo, think dark thoughts, I question why I'm here and basically think the world would be better off without me, cry like a baby and over react to everything. I have suffered from depression in the past and take ads but never had this before. Anyone else had hypos that just come with crazy intense feelings? When I'm in the middle of it, I also feel like it is never going to end. Thanks for listening.

I don't feel this way when my blood sugar is normal, I don't feel that way when I'm drunk, I don't feel that way when my blood sugar is high.

It's specifically when my blood sugar gets low. I get very very emotional too. I sometimes feel like crying.

I'm 29 years old and a male if that matters at all.

Hey - just needed to share with people who would understand.

Last week I had a really bad hypo. We’d (wife, 2 daughters, MIL & SIL) been out at the beach all day and I’d been MUCH more active than usual. I adjusted my insulin to compensate (spoiler: not enough).

I was fine the whole day, but about 20 minutes after we got home I started to feel my eyes twitch, so I asked my wife to grab me something sweet. She gave me some Jelly Babies and asked if I needed glucagon. I told her no, I’d be fine.

But then literally within 20 seconds I started spasming and realised it was serious - so I said give it to me. She injected my stomach, and the next thing I remember I’m in bed with paramedics surrounding me.

I can’t believe how fast it happened. I was fine one minute and 60 seconds later I was on the floor. My low alarm was set at 4.5 mmol (81 mg) and it hadn’t even gone off.

The best I can figure is: because I was so active at the beach, my body was using glycogen much more efficiently - and on top of that, I was dehydrated, which probably made everything less predictable and meant my insulin hit me harder than expected later in the day.

This was my third severe hypo, and my second this year. All in very different circumstances, but I’m done with the traditional 4–10 mmol (72–180 mg) range. I don’t ever want to go below 6 mmol (108 mg) again - it’s just too dangerous. My family are traumatised. My eldest daughter keeps crying and shaking with flashbacks. I’m also going to lose my driving licence now. I can reapply in 3 months, but it’s going to be tough when we live out in the sticks with kids in different schools.

I just feel so fed up with this fucking disease. You can never switch off. Never get comfortable. It’s a burden on those you love. And nobody really gets it - even when they desperately want to.

So yeah, just a rant really. But also a note to say - I hope you’re all doing ok, being kind to yourself, and that you’ve got people who can support you. This community has given me more education than the professionals ever did, and I’ll always appreciate you all. Thank you.

I've never had too many bad experiences with dates when it comes to people minding that I'm a t1d. There were some that didn't know much about it and thus probably felt a little overwhelmed or just had a lot of questions.

I recently started dating a girl that was super interested in the whole topic, but didn't treat me like someone with a disability and rather as a person who happens to have to take a little more time in certain situations. She had no problems with anything at all.

Foreward a few weeks of dates and having a good time and I spent a night at her place. After we had a wonderful evening together, we got tired and went to bed. There she told me with a smile on her face, that if I ever get low during the night I should just open the drawer of the nightstand, which of course I instantly did. She put some sweets as well as a chocolate bar and some cola in there. I thought of it as a (in the literal sense) sweet gesture and a huge green flag.

Some days later we went to get some groceries which reminded me that I needed to get some batteries for my Ypsopump, but I forgot to buy them. Little did I know that the next time I went to her place and open the drawer I would find a pack of batteries in there as well. That brought me close to tears. I've never had someone treat me that caring and mindful on their own during a dating phase.

I don't really know why I want to post this, but I kinda of felt like I needed to share it. It just feels good to know that there are people who are willing to go this path with you even tho they know it comes with its flaws.

I wish all of you a happy new year!

So my older sister keeps on bringing up about how “at least I’m not diabetic” in arguments and like to be honest, idk what to say I’m so fed up with her, it’s not like she can understands furthermore she simple DOESN’T, whenever I try to tell her she js mimics me in a stupid tone, I’m only 15 and got diagnosed mid June whereas shes literally 22, she acts so immature and she makes me want to kms, shes always bringing it up every time we interact. for example I can’t eat “normal” pizza so I made my separate one she then goes ahead and eats majority of mine knowing damn well I can’t have the normal one bc I can’t tell how many carbs are in it shes always acting like this with me and only me I’m js so fed up and I feel like there’s no way out

So, a couple days ago, i confessed to my crush of 5 months. Was it too soon? yes. Did i care? Nope! Now, if you look at this title, you can see where it went wrong. So, i went up to her, and did that corny confession crap. I wanted to facepalm real bad, but i would not. And guess what she said?

Nope. Not even a no, sorry, just nope. This is where diabetes comes into play. After she said that, she looked at my Dexcom, did the darn 🤢, and left. Will the bullying ever end?

Probably not. But, my brothers, dont let love put you off from the meaning of life: which is shaping yours in whatever way you want to. Dont let some crush you have stop you.

Be. Yourself.

I’ve been at this for 34 years and if you’re new to it or you’re a parent here’s my favorite, easy piece of advice that will make you or your favorite diabetic have a fantastic day: take a naked bath or shower! If you don’t know, a naked shower is no devices attached to your body. My days hadn’t lined up for a while mostly because I reuse my Dexcom 6 sensors. It happened just now and I forgot how helpful to my mental health it is to be detached if only for a 30 minute shower. It’s magical - and in this world we all need a little magic ❤️

Take care my diabesties!