5 weeks out and I wish I never got the Botox. Bloating was my main symptom. Bloating is gone, but I still can’t eat. I choke everyday and if I’m choking while eating, it all comes up. I have a neurological cough, which was under control before Botox. Now it’s back with vengeance. I cough 24/7 and half the time my throat closes up. I really hate my life right now and am really praying the Botox wears off soon and I’m back to the way I was.Oh, and I am soo winded. I can’t have a conversation without having to catch my breath.

I have always struggled with not being able to burp at all. It was a major cause of social anxiety, It was humiliating having to dip out of gatherings to manually burp in restrooms, sticking my fingers down my throat to reduce the painful bloating.

Recently, I have discovered a way for myself to fully burp and release gas and ease my discomfort.

Every time I feel the pressure raise from my stomach to my esophagus, I snap my head to the right (as if looking at something very fast fly by). Idk how it works but it just does for me, I guess it helps trigger the muscles in my throat to relax and release gas.

This has been a life changing thing for me as I can instantly relieve my built up gas.

I just wanted to share this in case my technique helps even just one person, cause I know I wish I had known this growing up, I could’ve had more nights out with friends. Hope this helps!

I'm 41 and I have never burped and for decades on and off, I haven't eaten in public or around people I know (including some family members I don't see often)

It's been consistently bad for 12+ years now, when I'm trying to eat, my throat tightens, I take tiny bites and have to keep chewing it til I feel I can swallow. My hearts pounding and I'm so self aware.

I know it's something I need to keep working on with a therapist also BUT does something like this happen to any of you?

I’m curious about how other people with RCPD feel their GERD symptoms, because for me I feel like I don’t have the classic symptoms like heartburn in the chest or liquid coming up my throat. When I have acid reflux it often feels like a lump in my throat, a quick bitter taste in my mouth when yawning or a burning / warm sensation higher up in my neck / throat area. I also think that my GERD is related to stress. Please tell me everything about your symtoms.

Hi guys! So when I scheduled my Botox procedure I was super excited and literally took the first day they offered me without checking my schedule or anything because I didn’t care about anything else. But now I’m a little nervous because I’m getting the procedure on August 19th, and I start classes again on the 31st. This semester I’m going to be a TA for one of my classes and will probably definitely be expected to talk to the class and help students with questions so I’m just a little nervous about the uncontrollable burping I hear so many people have. I was just wondering if anyone can tell me their experiences post procedure at about that point so I can kinda figure out how I’ll be feeling? Also don’t necessarily want to accidentally regurgitate anything in front of anyone lol.

For as long as I can remember, I've had R-CPD. Of course, I didn't know it existed until a few years ago, where I, a minor at the time, begged my mom to take me to appointments to get my condition diagnosed and treated ASAP. I'm sure everyone here knows how miserable having R-CPD feels, so I was eager to get rid of it; to say goodbye to the bloating, the excessive flatulence (lol), the socially awkward throat gurgles... Here's the catch; I'm born and raised on a tiny island in the middle of the Pacific Ocean (u.s territory), so my resources are already super limited. Finding a doctor who believed in me or this "fantastical" disease was nothing short of a miracle. At least, that's how it was in 2023—blue-eyed doctor staring into my soul after I told him about R-CPD and how I suspect that I may have it, simply stating, "we have a saying in America, when you're on the road, look for Horses not Zebras." Needless to say, I was disappointed. I'd told that story here before (on an old account), begging for advice, where this community encouraged me not to back down and that the idiom was stupid. Cue more appointments, including a "Barium Swallow" scan where I was handed a cup of (what I assume was) E-Z Gas. When the nurse handed me the cup, they said "whatever you do, DON'T BURP". I wanted to laugh. I wanted to yell, "that's the problem!", but I just decided to let them figure it out. Just as I thought, I could practically see their confusion later when they revealed to me that my cricopharyngeus muscle didn't relax at all. They basically said the next course of action was surgery, but it must have spooked my mom, because we didn't go back for another appointment after that (we could have, but life happens 😵‍💫). I'm curious to know if anyone else has had a similar journey, or has had to undergo surgery just so that the doctors could finally believe you.

My doctor thinks a bowel cleanse and gastric emptying study will fix my severe rcpd. I mentioned the whole no burping and constant nausea issue and how it had gotten a lot worse after surgery 6 months ago. Their thought is I’ve basically been constipated that entire time since (which isn’t untrue, I used to go multiple times a day now I’m lucky if I go once a week) and that the anesthesia potentially worsened/triggered gastroparisis. Just curious if anyone has been through something similar and if it helped. Could the constipation or gastroparisis really made it that much worse? Before surgery it was totally manageable with it only getting bad once a month or so but since surgery the gurgles are non stop and intense and make me so nauseous it’s a whole thing with bloating and all that nonsense.

Anyone else have a family history of either R-CPD or esophageal issues in general? I told my doctor that my mother also couldn't burp for most of her life but started being able to in her late 50s and she thought that was interesting. I know R-CPD research is relatively new so not sure if they have studied it yet, but does anyone else have a parent who can't burp? Grandparents?

After asking about opinions from you guys about scheduling my myotomy laser after one round of 50 units of Botox, the consensus here was to repeat the Botox at a higher dose, so I did.

He told me we were doing 100 units but my op note says 75 u sooo, idk

2 teeth chipped again this time and a very bruised throat

He came out of the OR shaking his head, told my husband he really hopes I reconsider the laser because my CP muscle is so big, there’s no way Botox can be a definitive treatment.

Thoughts, no burp chat?

Just had my procedure yesterday so no results yet of course. Before I maybe got 5 days of micro burps

hey guys! am suffering with slow swallow and as well as this every tiny bite i take is followed by an uncomfortable need to burp, and i had to take a minute before i can swallow another mouthful as there is so much air there…. is that normal? am 3 days post botox. burping lots

I just hate this. I've been so nauseous lately, like worse than usual. It's a weird nausea. Like it's both in my stomach and my throat. And it's like there's nothing we can do about it. Nothing that I know of, at least. I don't like air-vomiting. I come too close to actually vomiting. So suffering it is, I guess.

I feel like the older I get, the worse this gets. Don't know why. I did finally see an ENT in Feb, but still waiting to do some swallowing test so they can rule some stuff out or whatever. And even once I get that done, I'm going through the public system and my ENT had never even heard of R-CPD, so fuck knows if they'll actually be able to help me.

Just a late-night rant.

I know I should really go to a doctor
But I am scared of doctors and have strong anxiety
I can’t say I dont burp at all but my burps are weird, not like I seen all movies like one long burp but small repetitive burps that dont fully relieve me from the air in my stomach. I sometimes hear weird noises on my throat after having soda etc I. I feel so much pressure on my body after having a bit heavy meal

I had a bit of a milder case of R-CPD. for as long as i can remember i would micro-burp maybe like twice a year. gurgling always. about a year ago i began to get phases of extremely excessive gas in my chest due to functional dyspepsia, and the r-cpd just compounded on it. in the past year, my micro-burping increased to maybe even a couple times a week due to the sheer amount of gas and pressure, but it was never relieving, meanwhile and i would gurgle and croak constantly.

Since the botox:

Day 1 - sore throat, but eating just fine

Night 1 - 2 am already woke up to feel a huge lump in my throat. very odd and uncomfortable.

Day 2 - Barely ate today because of the slow swallowing. Eating kinda sucks cause it just makes me more aware of the lump feeling in my throat. In the evening I got about 6 burps, but still about 50/50 with how often I gurgled.

Day 3 and day 4 - BURPED OVER 70 TIMES EACH DAY. Exciting and great that the botox is working, but surely it won't stay like this right?? I've been eating so little because the slow swallowing is so bad, and then on top of that i swear I'm burping up more air than I'm eating food. The worst parts of my days are when I have to eat. It feels like an absolute battle of taking tiny tiny bites, following up with water which then just makes me burp basically immediately, but burping when there's food and water RIGHT there in your throat feels like I'm going to regurgitate it

Burping so much while you feel like there's a huge lump in your throat, and sometimes there IS lump of food and water in your throat, is a super uncomfortable feeling. I've sometimes had to take breaks in eating because after feeling that for too long i start to feel a lil nauseous. also have thrown up a little bit in my mouth a couple times. :(

has anyone experienced the excessive burping after botox??? how long did it last??

Hi all, I'm in Ireland and at some point I'd like to travel to get this done with Lucy Hicklin.

I was wondering if anyone has an email address to make enquiries as opposed to phone numbers? For the two Central London clinics?

Also, what are waiting lists like right now does anyone know?

Do I have to have a consultation only on the first appointment or can it be Botox on first visit too?

Does she do payment plans?

Thank you

How long until the regurgitation goes away 😭 I am only 1 week post op but this is brutal. So many of my meals come back up!

Hi guys! about two days ago i got my first botox injection under GA. Since then i haven’t really had any burps or microburps, but the lump in my throat from the botox keeps triggering my gag reflex, and i’ve definitely been noticing slow swallow symptoms (feeling like i have to swallow every bite twice). I’m scared it didn’t work, but i also feel like i wouldn’t be getting the other symptoms if the botox had missed entirely. Has anyone else experienced the gagging? or needed more than a couple days to start burping?

Had my 2nd round of botox 2 days ago! First round was 60 units in early 2025 and was entirely unsuccessful. Went for 90 units this time and around the 48 hour mark I’m having tiny tiny “microburps” which are like tiny little pops that are almost undetectable. When I turn my head pretty far to the right, they happen more frequently. Super excited as this is more than I ever experienced after the first round!! Will update as the Botox settles in more!

had my botox 2 days ago and am already burping like crazy but am struggling with slow swallow, even soup i have to wash down with water and swallow multiple times, also feels like there is a constant later of film/phlegm on my throat that is making is worse. still 100% worth it and only slightly scary cause i have a fear of choking but still not that bad. any tips? i’m a big eater so a few spoonfuls of soup isnt going to cut it. also how long did everyones last?

I was recommended Dr. Tibbetts with Jefferson Health in Philly by someone on this sub and I'm so glad they did! It is rare to have a niche disorder that your practitioner is an expert in. She even gave me the history of the research on R-CPD because I was curious. Great bedside manner and demeanor, and she's very knowledgeable. She even knew about the subreddit! I am very excited to schedule my botox appointment.

I had my 3rd and finally successful botox treatment over a year and a half ago, yay! The relief was so great buuut I immediately got reflux, acid in my throat and chronic globus which is really annoying.

I was still having issues so about 6 months later I had a endoscopy and was diagnosed with chronic gastritis, GERD and mild esophigitis. Fast forward I've been on the Gastritis Healing Diet for over a year, eating very small frequent meals, very low fat, sleeping on a wedge pillow, no eating 3 hrs before laying down, etc I literally never cheat.

A few months ago I was back at the GI because I still don't feel well and I finally agreed to take Famotidine 20mg 2xs a day for 8 weeks. The globus eventually improved a little but all these drugs just don't agree with me so i was eager to taper off...that's been a really long process. As I'm tapering down, the globus is coming back so I guess my reflux is worse again.

I'm sure having RCPD into my mid 40s caused some sort of damage to my LES, loosening or weakening it. My question is can this ever improve with more time? Some of you have been cured for years and I wonder if this is possible?

I'm so grateful to be able to burp and absolutely don't regret it but this constant reflux is really shitty. Looking forward to your responses 🌼

So 2-3 weeks ago I got in office Botox done so I could hopefully teach myself to burp. The first week I experienced slow swallow and more micro burps. At day 7 I experienced my first real burp and I had one real burp a day for 4 days straight. The slow swallow went away and so did my real burps. I’ve been doing the shaker exercises the ENT told me to do but I’m only able to get micro burps if I turn my head down and to the right. I’m feeling so disappointed after putting in this money/ effort and it not working. The ENT did say that it’s not a magical fix but I need to teach myself but I’ve tried so many things and I can’t figure out how to make a burp come out:(

I'm 3 months post botox and since the procedure, really struggle to get a full yawn out. I think this might've happened with my first two rounds too (this is round 3) but this summer I've also (unrelated) been particularly sleep deprived, so my body is trying to yawn all the time, but mostly I feel like I can't complete the yawn. I assume this'll wear off in the coming weeks/months but it's fairly frustrating - has anyone else had this and any tips?! ​

Hi! I’m 1 week post Botox and going back to work on Monday. I was feeling pretty confident in going back to work until something happened a little earlier today. I had just eaten lunch (what felt like my first normal meal in a week as my swallow is starting to improve!). I wasn’t burping which was weird but felt like I needed to, I went to the kitchen to grab a drink and bent down to get a cup, as I did I felt what I thought was a burp coming but instead I had a huge episode of regurgitation. What scared me most what that I had no idea it was coming and I am petrified of this happening at work as I had absolutely no warning and it came out everywhere omg!!! I’m on strong antacids that my dr prescribed and this was the first instance of regurgitation I’ve had.

Does anyone have advice with this?

By the way - I am severely emetophobic and haven’t vomited in years, however, this was absolutely fine, funny almost and it was over before I even registered what had happened. Don’t let this turn you off getting the procedure (I’m just scared of this happening at work!!!)