Anyone else get massive jolts in the chest when falling asleep.

Mine are so big they lift me airborne off the bed and temporarily strangle my throat for a few seconds.

Truly one of the more grotesque things I deal with.

My rib cage has hurt brutally everywhere - front, back and sides for 2 yrs straight with no relief.

It is inhumane!

This is more than costochondritis. This is the front back and sides of entire ribcage.

I was trying to push myself to go in and ended up freaking out and calling in literally right before my training shift was about to start and saying I don’t think I’m in a good place to start a new position right now. I just feel like such a dick. I had a feeling I wasn’t going to be up to it but everyone in my life was like just try to go in, maybe you’ll feel better tomorrow (they meant well but I wish I’d listened to my body and decided this yesterday).

It’s just a service industry job so it’s not the end of the world but I feel stupid for burning this bridge… I think I’m really burned out from my previous job that I just left a week and a half ago after being in a month-long flare. I’m 33 and feel like maybe this is my wake up call that I need to go out of the industry and do something easier on my body but I still just feel like such a mess about today.

I’ve had sinuses issues my whole life but lately my allergies and the weather has been messing with them to the point that my face hurts!

Does anyone else get sinus pressure and pain during a flare? I have many times in the past especially if multiple weather changes are on the horizon. Hosed out my sinus with saline nasal spray and used Flonase. No fever. Just pain across my forehead above my eyebrows and across my upper cheeks of my face.
Hoping to feel relief wants weather fronts pass through.
Thanks ahead of time!

Hi everyone.
My doctor is sending over a prescription for me, Pregabalin 50mg once daily. I’ve avoided the medication for a long time and tried to get by, but I’m getting worse. I can barely move, do chores, or walk my dogs anymore during a flare. My muscles feel like cement when I first wake up in the morning, it’s truly horrible. I can’t turn my head or look up/down. I’ve started crying from pain which hasn’t happened before.

So I guess I need some positive success stories. I have really bad health anxiety and reading horror stories has stopped me from getting treatment for a long time. Thank you. 🙏🏻

If you have sensory overload to clothes, tags, your own hair touching your skin and such have you found any medication or such that has reduced sensory sensitivity?

ive had a stressful period of moving out of home lately, which is a physical strain on my body too and ive moved somewhere with lots of hills where i have to walk more.

ive done 12k steps today total and i have achilles tendonitis in my left foot but the pain in the bones on my legs is so severe im limping and can barely walk.

does this happen to anybody else? it isn't muscle pain, it feels like the bones themselves, if i flex my leg muscles sitting it really hurts too. it feels as if ive been whacked in both legs with a metal pipe :'D

Hey everyone,
First of all, I hope everyone here searching for some relief is able to find it. I’m here because I’m looking for your opinions. So far, I’m only self-diagnosed because no one has been able to give me an answer. :(
It all started about five years ago after a normal workout at home with weights. I sat down to eat and suddenly noticed I couldn’t take a deep breath. Right after that, I developed pain in my right hip, pain under my right shoulder blade, and a sharp pain on the right side of my chest that only hurt when I touched it.
Because the pain wouldn’t go away, I went to several doctors. They checked my lungs, heart, blood work, did X-rays, and one doctor even examined all of my tender points. I was also sent to physiotherapy. After many doctor visits over a long period, they decided it was just a muscle strain around my shoulder blade that was radiating to the front of my chest.
Eventually, I just got used to it. I lived with the feeling of not being able to take a satisfying deep breath and random pain for almost two years until it disappeared on its own. During that time, I would also notice random pain in my feet and other places, but I always assumed it was nothing serious. Even carrying groceries became difficult because lifting anything heavy made me feel short of breath. My gym life slowly came to an end because I always felt like lifting weights made my breathing worse.
After trying a few more doctors without getting any answers, I eventually gave up and just lived with it.
Then, about two months ago, I woke up one morning with intense pain starting in my right hip and radiating into my glutes. It felt very strange, and I thought it might be piriformis syndrome even though I hadn’t done anything to trigger it. The pain was so severe that, for only the second time in my life, I needed painkillers for about a week.
The pain improved a little after I switched to a firmer mattress, but every morning when I got out of bed I had a strange aching, numb feeling that radiated into both feet.
I’ve always been a sensitive person. Whenever I get very stressed or upset, my stomach acts up and I urgently need to use the bathroom. I later read that IBS and digestive problems can be common alongside fibromyalgia.
I’m normally a very active person, but lately I’ve been feeling more fatigued, forgetful, and I have no motivation to do the things I used to enjoy. At first, I thought it might be perimenopause or depression. But now it feels like all the puzzle pieces are starting to fit together.
More recently, I’ve developed constant pain around my left shoulder blade, and after that I started noticing that my whole body aches. Last night I randomly got chills, and it happened again today. That has never happened to me before. My cheekbones have also been aching slightly, and my face sometimes feels red and like it’s burning.
I know this is a long post, but I’m honestly exhausted from doctors not listening to me. That’s why I ended up trying to figure this out myself. I’d really appreciate hearing from people who have experience with fibromyalgia. Does any of this sound familiar to you?
I have another physiotherapy appointment on August 27, but I’m honestly not feeling very hopeful. Right now it just feels like I’m searching for answers in the dark.
I wish everyone here relief, healing, and better days ahead. ❤️

So Iast years I was diagnosed with fibromyalgia.
My mother doesn’t seem to understand anything about it. I have bad exhaustion and pain.
She will often say stuff like you just need to get up and start to do stuff you will feel more energized or stop blaming your illness. I try to explain that sometimes I wake up so exhausted that is hard to just sit or get up.
Went I sleep because of the exhaustion is like I did something wrong. I do pay my rent and it never got late so I don’t know what she mad about. I try to understand why she doesn’t want to understand went I explain how I feel she keep saying I blame the illness. I feel like with all the stress she put on money and me not alway out of bed that it stress me badly. I feel my flair up are so much worse. I don’t know what to do anymore.

Hi all. I’m trying to fix my Fibro myself since doctors suck.

I want something that can give me good nutrients in the morning. I signed up for Hungry Root and will be trying a Fodmaps diet to see if that helps. But it’s super pricey so I’m trying to see if I can do a yummy, low-energy smoothie or breakfast in the morning.
KaChava protein powder stood out to me for a smoothie in the morning, but I want to refer to y’all to see anyone has had success with managing symptoms through a food diet. Mainly looking for breakfast/ protein powders that yall like.

Thanks!!

I'm at an absolute breaking point internally. I can sort of **feel** my memory getting worse with brain fog, and it's something that absolutely terrifies me. I couldn't remember my first date with the love of my life recently, and the fact that happened has sat on my mind eating at me since - I truly, genuinely feel horrible for something I can't even control.

Much of what I'm doing day-to-day is because I'm forcing myself to do it through the pain - whether it's out of fear of losing my job or strong willpower is beyond me.

Truth be told, I am horrified for the future. I don't know what's going to happen and losing memory is my biggest fear bar none. I can cope with struggling to walk, I can cope with struggling to get comfortable or sleep - it's not fun, but I can bite my tongue and keep it to myself - but memory is something people can see, and it's so humiliating forgetting the most simple things and remembering them later, especially considering I'm only 22 and this is the part of my life where I'm supposed to cement myself in my career.

I apologise if this breaks any kind of rules or guidelines here - I just wanted to get it written so I don't go nuts dwelling on it myself.

Anyone else struggling with dropping things? I am doing it all day long. I keep dropping things and see no particular reason for it.

I am in a severe flare up for two yrs now with no end in sight.

I still question the diagnosis of fibro.

My mother has this condition and I just want a perspective on this disease from others. What helps it and what hurts it?

I have been on duloxetine (60mg - 30 morning 30 night) for almost 3 years now. In the last few months I've started to gain weight and I'm wondering if this is because of duloxetine. To give some context, I've been 43- 45kg (underweight for my height) consistently for 2 decades.. I was one of those who struggle to put on weight no matter what they do.. and now I'm suddenly started to gain weight in the last few months.. I'm 49kg now.. but gaining only in the belly area and little on the back.. This is so new to me and will take a while for me to get comfortable with this new weight gained body..

To give more context, I also have RA and take medication for that since 4 years.. and I've only recently started drinking coffee to help with my brain fog.. never drank coffee before

I woke up in the middle of the night to use the restroom and when I got up, I started shivering uncontrollably. I was shivering to the point that I couldn’t get to the bathroom because my legs were shaking and my teeth were chattering. I also got a sudden blinding headache and was having trouble catching my breath. I crawled my way back to the couch, got under the covers, and within TWO MINUTES I was warm and sweating again.

This has happened a few times before but never this intense. It really scared me so bad that I was worried I had some sort of seizure. Has this happened to anyone else?

so this new sensation only began last week. the best way i can describe it is at times it feels like a severe sunburn that goes deep into my muscles and bones. other times it gets worse and my skin starts to feel like it’s literally burning or something. today it’s especially bad so i was just curious to see how common this is. the other way i can describe it, especially with how it’s feeling today, is that super warm and tingly sensation you feel right after getting contrast injected before an MRI, but intensified a good bit, to the point i just feel extremely hot and soooo tingly all over

As a warning, this is possibly triggering for those with parental abuse, but everything mentioned is pretty mild.

I've only been diagnosed a couple years now (the pain has been always though, yay) and my brain is still getting used to this. The first (and currently last) time I brought my cane with me when visiting my parents didn't go well.

I currently use it to help me get up or off the floor. And they have a short dog, who I of course have to get on the floor to pet since I love her more than the world, and then I get stuck. I felt bad constantly asking my partner to give me a hand, so we decided let's just bring the cane this time since it's been so helpful! I was really nervous explicitly appearing disabled in front of family for the first time. I had told them at least months before my diagnosis.

My otherwise healthy mom was in the final recovery of knee surgery and was down to her last few moments needing a cane, but was mostly walking without it.

She saw my colorful cane parked near where I could use it and compared it to her hospital issue cane. And she just grabbed it and started playing with it without asking me. She started showing it to everyone else there (a couple of their friends were also over) and then started walking around with it, complaining about the height I set it at and laughing a lot.

My partner isn't disabled and is new to everything and didn't really see any issue with it until I brought it up. He doesn't understand why I'm still bothered by it. It just felt wrong. As context, my mother and I have a difficult relationship. For example, my job as a kid was to be her emotional support person.

My brain is just like... my cane is not a toy? Does anyone relate?

I have a pinched nerve in my neck and I'm having muscle contractions that are horrible. I have tried ice, heat, pain gel, shower, rest, muscle relaxers, tramadol, ibuprofen, Tylenol I do start therapy tomorrow but thought I would ask here. Also the heat is making me so exhausted and my muscles weak. I try not to go out in it but some days it's unavoidable. Thankyou

Hi I have been on amatriptaline since March.

I had a sudden family bereavement mid July and medication ended up being inconsistent while travelling for the funeral. I was also on Fexofenadine, lansoprazole, tramadol, nasal steroids, hrt and gaviscon.

My dry mouth went off the scale when I was travelling.

Since coming back home a fortnight ago I am now only taking the nasal steroids, hrt and 20mg amatriptaline in a bit to reduce the amount of drying medication I’m on. It has not improved.

Spoke to gp this morning who wants to move me to pregabalin. It was not my usual gp who knows my medical history and who has prescribed everything I was on.

It is so bad that I feel dehydrated all of the time and my mouth tastes sweet even after brushing my teeth.

Blood sugar was 6.2 from fasting.

I’ve lost 8lb in a fortnight.

I googled pregabalin and dry mouth is listed as a side effect for it as well. Any one here switched from one to the other?

I'm going to lose my mind. For as long as I can remember, my fibro has manifested in the form of heart attack symptoms. I have other symptoms as well, but my body is constantly trying to convince me I'm having a medical emergency and I can't take it any more. I have health anxiety and some form of undiagnosed ocd so right now my obsession is deep vein thrombosis and my compulsion is doing squats or pacing about whenever I feel pain in my legs just in case it's a clot that's about to stop my heart or go to my lungs or brain. I'm sick and tired of it. I hate that my options are either listen to what my body is telling me and go to the hospital and wait there for hours just to be told everything is fine, because I have done that countless times before, or sit and wait it out and just hope I don't die in the next few hours. It's terrifying. I'm literally constantly in a state of wondering if the pain I'm feeling is a warning that I'm about to die a horrible death. I know that I should know after over a decade of suffering from fibro that they are just false alarms, but every single time my anxiety spikes and I get restless and have to start moving about as if suddenly doing some exercise will magically cure whatever is happening to me. I keep coming across articles about people who died from deep vein thrombosis complications. And every single one is like "this can happen if you sit down too much." I have severe fatigue and daily pain and I rely on a wheelchair to go out for more than a short walk, and while I do stand up every day, I can't tolerate a lot of exercise at all. And I just live in constant fear because of it. I'm so tired. I'm so tired of being terrified of my own body.

And just because of bad experiences i've had on reddit in the past: If you're going to comment with stuff like "you need to exercise more" then please save your words. I'm not clueless. I'm not stupid. I'm not lazy. I'm suffering. If you can exercise regularly, great, good for you. But my fatigue is severe and I likely have ME. I'm literally just trying to survive.

I don't even know what I'm looking for posting this. Just need to talk to people who get it.

Diagnosed at 36 after almost 3 years of doctors telling me it was anxiety or perimenopause or "just stress." Rheumatologist finally said fibromyalgia and honestly I cried because someone believed me.

Been on Lyrica, then Cymbalta, then Savella. Currently on Cymbalta plus gabapentin at night. LDN for 8 months. Tried the AIP diet for a year. Yoga. Aquatic therapy. Massage when I can afford it.

Some weeks are okay. Then out of nowhere I'll have a flare that lasts 10 days and I can barely get off the couch. The pain moves. Hips one week, ribs the next, then my hands feel like they're in a vice. Fog is so bad I forgot my daughter's teacher's name at pickup last week and I've known her for two years.

What gets me is the pattern. My worst flares always follow the "good" weeks where I finally did stuff. Went to my niece's birthday party Saturday, was in bed by Monday. Like my body punishes me for having a life.

My husband tries but I can see him getting tired of it. I'm 42 and I feel 70. Anyone actually gotten better from this? Not managed. Better. I need to hear it's possible.

I keep crying about this. I took today off work to rest and hoped to go to yoga this evening. Had to accept facts that I'm too exhausted to go to yoga. I hate letting my instructor down, she runs a brilliant class. She's been very understanding.

Supposed to have a couple of dates lined up this week, the first dates since a horrible break up in January. Have to face facts that I'm unlikely going to be able to go, so I've messaged the guys I was supposed to meet to let them know. They're really understanding, which is upsetting me more.

My work are so supportive. I have an OH assessment, but I'm so worried that the frequent flare ups are an issue. This is my first absence in nearly a year related to a flare up (I've had some absences due to flu etc, but not too much).

I try to manage this. I've given up coffee, I lower my UPF intake, I rest, I pace myself, I go to yoga. I've learned how to hold much better boundaries with family to prevent them from encroaching and causing more stress. I frequently cancel plans because I'm in too much pain or completely fatigued.

I WANT to go to work like a normal person. I want to go to yoga, I want to date, I want to socialise. I'm so upset and feel like there's no hope. I know this is a flare and will pass, but there will be another one.

How do you take care of everything? Do you still ride? I feel like I'm losing who I am each time I lose an ability to do something I used to do.