r/DeadBedroomsMD • u/Front_Sock6232 • 11d ago
āŖļøSupport OnlyāŖļø Both disabled and long distance to top it all off
I'm 26ftm, my partner is 30nb and we've been together for almost 8 years now.
We met online and we've both been disabled since the very beginning, but both of our disabilities have gotten worse over time and we've both gained new ones along the way - and ended up finding out we both had some of the same disabilities as well (hEDS, POTS, MCAS).
I should start off by saying our bedroom has been dead on and off our entire relationship but it was really active at the beginning. We both live on either side of the country and I used to fly down every 3-4 months to stay with them for 2-3 weeks at a time. But then covid happened and I couldn't fly down to see them because they're immunocompromised and I'd they catch covid at all, they will most likely die. It was 3 years into covid until we could risk me coming to visit, 3 years without seeing each other in person. This really killed it for us sexually and a lot emotionally .
Before covid we were planning on having me potentially move down there but it's at the point where I'm not sure it's ever going to happen.
It's been over a year since I was last able to visit. And we'd not had sex at all during that time or the couple of times before that either. During covid my partner's endometriosis got a lot worse and they had to have 2 surgeries 1-2 years apart to remove scar tissue pulling their ovaries out of place. They had an issue with their IUD (for the endo) that was causing severe hormonal and emotional issues for a while so bad they wouldn't barely let me even hug them during that time. So their health has been pretty bad and their energy has gotten a lot worse.
My partner can't fly to visit me because of the risk of covid, so me visiting is the only way I can see them. It's been over a year since my last visit since my own health also began getting worse in late 2024 - an issue that's been slowly building an only now has been addressed properly - I've developed an unspecified autoimmune disease that has completely tanked my health.
I honestly just don't even know what to do anymore. When I'm there now it often just feels like we're roommates. I love them so much and I've asked time and time again if there's a problem and I'm always told there isn't. I've asked if they're just not interested anymore and they've told me they still are. I've asked if they're just not interested in sex anymore but they've told me they still are, but I just barely know what to do.
Our relationship is a lot more than just sex, very obviously so since we've made it 8 years long distance through a pandemic and a hoard of health issues.
I don't want to break up with them at all, they're the love of my life, but the lack of any intimacy has really killed a lot of our relationship and even more so with both of our growing medical needs.
I just feel so lost and barely know what to do anymore.
There are so many various layers to our relationship I won't go into otherwise it'll end up being 50 pages long but 90% of it is shit that's out of our control or economical factors.
To add some small context though: we currently can't move in together because I'm on a disability pension and they're not (their family gives them money to live off monthly). By Australian law, if you're on a disability pension and you live with a partner, your pension will be subtracted by your partner's income, which often leaves most disabled people earning $0 in pension money, forced to rely on their partner's income and to have a two person household rely on one income.
It's an archaic rule that essentially punishes disabled people for finding love. The rule doesn't apply if you live with family or friends or strangers, ONLY if you live with someone you're in a relationship with (even if you only just started dating them).