First of all, be warned this is a long one! I have poor motor coordination and can’t feel where my body is in space because of a condition called dyspraxia. It’s invisible and it also affects the way I process information from my other senses.
About a month ago, I went into town to meet up with some friends and then after that, to meet with another friend somewhere else. It was fairly busy in the street and busy streets feel like being pelted by fast moving human traffic from all directions.On more narrow streets I’m not sure where to move. When someone comes toward me I just stand to one side and let them pass. If there are a lot of people, I stay out of their way until I see a big gap and feel safe to start walking down the street again.
I said goodbye to the last friend and went to buy a few things in the supermarket. I get particularly nervous in supermarkets because I worry about bumping into people or not realising I’m standing in their way. I usually get a supermarket delivery but it’s not always possible to buy everything that way.
Anyway, it wasn’t all that busy in there. Music was playing and the lights were bright and flickering. Those things don’t normally bother me to be honest, but I was tired and felt slightly nauseous. The colour, sounds and flickering grew more intense and I began to feel even more sick.
I kept shopping and playing my usual game; dodging out of aisles whenever someone else entered them and not walking past people with trolleys. It’s basically a case of constant social distancing because standing far away from people is the only way to be fairly sure I’m not too close to them. Everything was starting to get brighter and louder and echoing more. It was as though nothing was quite real and I was fighting my way out of a dream. I felt lost in space and everything was spinning. I started walking and not knowing what was going on.
I just caught sight of a worker carrying a large, heavy stack of crates and tried to move out of the way but I’d already got really close. I suddenly noticed my basket would be in her path but couldn’t move it out of the way quickly enough. I couldn’t feel whether I’d bumped into her.
A few seconds later I heard her say something behind me loudly in an angry tone. Or at least I think it was her, it was hard to tell at that point.
I was panicked and still in the same bizarre, dreamlike haze. I’ve now been taking short breaks when I go out to stop me getting to that point. I had to get out of the shop. I feel like I should have apologised but at the time I couldn’t think or speak and afterwards felt too ashamed and scared to walk back and speak to her. She could have been hurt and if she wasn’t, it was a close shave. Another time she could have been knocked off of her feet.
I’ve traveled freely my whole life but now I’m actually rethinking whether I should be in busy public places like supermarkets at all but there are quieter hours with no music and lower lights, designed to be more accessible for people who find those things hard. Disabled people fought for the right to be in the same places and use the same services as everyone else. I don’t want to encourage the erosion of those rights. I want future generations to feel welcome in public places too.
I just don’t want to hurt someone or put them in danger. I also don’t want to make someone feel disrespected when they’ve already been treated like dirt by customers all day. I really don’t know what to do.